Neuropathy worse when eating certain foods

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Aurora2013
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Date Joined Jun 2017
Total Posts : 45
   Posted 12/7/2017 4:03 PM (GMT -7)   
Hello all,

I was just wondering if any of you experience an increase in neuropathy depending upon what you eat. I have been battling Lyme, Bart and Babesia and have terrible neuropathy all over my body. When I eat for example, gluten freeze tortilla chips, my neuropathy rages in certain body parts. It happens with other foods as well. Physiologically, it just does not add up but the increase in pain is very real. I would love to know if any of you have experienced something similar. Met with my land this am and she is stumped as am I. Thank you for your thoughts

k07
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Date Joined Sep 2015
Total Posts : 2197
   Posted 12/7/2017 4:09 PM (GMT -7)   
I thought when I had a certain type of tortilla chip that my facial numbness increased but I am not certain - it happened a few times and I never bought the brand again. I thought maybe it was the corn but it was organic. Have you had food allergy testing done? We can develop allergies with these infections - it is just another immune system problem. It would be nice to know if you have developed an allergy so you can avoid those foods.

PeteZa
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Date Joined Jul 2015
Total Posts : 9223
   Posted 12/7/2017 6:09 PM (GMT -7)   
Aurora tortilla chips can be made of corn. Corn is a very common GMO product. Also when you go to an allergist one of the first things they say that can cause a food allergy is corn. It is very common allergen.

You said it happens with other foods also and nightshades are often the culprit of allergic reactions.

Mine were corn, tomatoes and strawberries. I was also highly allergic to all grasses. Corn when it is first coming up out of the ground is like a grass.

My acupuncturist desensitized me to all my allergens. It was a process and it lasted for years but the strawberry one didn't last but a month.

Hope you figure it out.

When you have a baby that has developed allergy symptoms, you do the elimination diet to see what is causing their allergies. You stop all foods and start again one by one. Hard to do, but very successful.

PeppermintTea
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Date Joined Oct 2014
Total Posts : 201
   Posted 12/7/2017 6:17 PM (GMT -7)   
Was it Zochitl chips? Do you have a ragweed allergy? If so, like Peteza states, it might be an allergic reaction. zochitl chips are baked with Safflower oil. If you have a ragweed allergy you will likely have an allergic reaction. Just a thought.

Warmly peppermint Tea smile

iLyme
Regular Member


Date Joined Feb 2014
Total Posts : 47
   Posted 12/7/2017 6:44 PM (GMT -7)   
When first diagnosed I was following the MCT Ketogenics Diet and then added the Fast Mimmicking Diet into the mix. I can say that any type of bread made my minor symptoms noticeable. During those diet times I followed both diets pretty strictly, the FMD is done for 4 days straight every month at 600 calories a day. I feel great until I indulge myself with a cheeseburger or pasta or pizza. As long as I have small quantities of bread based carbs my body maintains.

For example: every morning I eat 3 eggs and spinach in a flour wrap. It's low carb, high protein, healthy and low calories; only 240. My body has become used to this and the flour from the wrap does not affect me like eating 3 slices pizza affects me.

So to answer your question simply, unnecessary sugar from carbs in the bread-based family affect me in very odd ways.
dx with RR/MS in 12/12, treating Lyme since 10/13

more @ www.learnlyme.com

Aurora2013
Regular Member


Date Joined Jun 2017
Total Posts : 45
   Posted 12/7/2017 7:10 PM (GMT -7)   
Peppermint tea, yes you guessed it zochitl chips. Very interesting about the connection between the ragweed allergy and the allergic reaction. I should know better as I sometimes will eat erewhon cornflakes and I get a similar response.

Peteza/k07 that's is too bad about the strawberries. Seems like the elimination test would be easy for me as my diet is quite restricted already...would be much worse had I not already given up the gluten, sugar, dairy, caffeine, alcohol, yeast, etcetera...

I have been tested for food allergens and corn is on there but it was not crazy off the charts. Not like barley malt and rye. Crazy to think I used to love beer before getting sick. I guess it's time to find something else for breakfast...preferably something fattening as I need to put somepounds on my frame.

Ilyme,

I have the same problem it seems with carbs. Meat never gives me any increase in pain...its just the carbs. Somehow I feel like this is a piece of the puzzle that needs further investigation as it could certainly be playing a significant role in keeping my immune system surpressed

iLyme
Regular Member


Date Joined Feb 2014
Total Posts : 47
   Posted 12/7/2017 7:14 PM (GMT -7)   
In my years of research, two items became extremely clear:

Lyme loves sugar
Lyme hates oxygen

Looking for a hyperbaric chamber that insurance will cover.
dx with RR/MS in 12/12, treating Lyme since 10/13

more @ www.learnlyme.com

k07
Veteran Member


Date Joined Sep 2015
Total Posts : 2197
   Posted 12/7/2017 7:17 PM (GMT -7)   
I actually have ragweed allergy too. I need to go to store and see what the brand was that I had.

Edit - found the brand - garden of eatin bowls tortilla chips which can be made with sunflower and/or safflower.

Post Edited (k07) : 12/7/2017 7:31:24 PM (GMT-7)


Georgia Hunter
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Date Joined May 2012
Total Posts : 2024
   Posted 12/8/2017 1:40 AM (GMT -7)   
iLyme said...
When first diagnosed I was following the MCT Ketogenics Diet and then added the Fast Mimmicking Diet into the mix. I can say that any type of bread made my minor symptoms noticeable. During those diet times I followed both diets pretty strictly, the FMD is done for 4 days straight every month at 600 calories a day. I feel great until I indulge myself with a cheeseburger or pasta or pizza. As long as I have small quantities of bread based carbs my body maintains.

For example: every morning I eat 3 eggs and spinach in a flour wrap. It's low carb, high protein, healthy and low calories; only 240. My body has become used to this and the flour from the wrap does not affect me like eating 3 slices pizza affects me.

So to answer your question simply, unnecessary sugar from carbs in the bread-based family affect me in very odd ways.

I wouldn't say eating 3 eggs per day was healthy. It may cause you less oxidative stress now, but overall, eggs are not healthy despite the hundreds of millions spent in advertising telling us they are.

This one states that eggs can increase heart disease, cholesterol accumulation and are high in saturated fat.

ajcn.nutrition.org/content/67/3/488.2.extract

The American Heart Association recommends less than 300mg of cholesterol per day. Three eggs would be over 600mg and nothing else has been eaten that day. If you have high cholesterol, the recommendation is 200mg per day.

Elevated choline levels can also be an issue. Many Lyme patients have elevated choline levels which leads to TMAO production which is harmful.

Kat1000
Veteran Member


Date Joined Feb 2017
Total Posts : 557
   Posted 12/8/2017 9:58 AM (GMT -7)   
I have another thread about this, but my LLMD raves about Dr Gundry. His newest plan is The Plant Paradox. You don't even need to buy the book - plenty online. Basically, he thinks lectins are the root of all evil.

My LLMD thinks most of my remaining problems are from bart and inflammation, and there are testimonials that this diet will get rid of the inflammation. I was on the earlier version (Diet Evolution I think) earlier this year, and I did feel better so I'm going to try the new one. I feel off the wagon, so to speak, just before Halloween.
pos for MTHTR single mutation; Positive Igenix IgG Jan 2017
March/Apr '17: doxy, Tinizadole. 5/1 samento and exchange mino for doxy. 5/28- switch mino back to doxy, added activated charcoal. 6/9 - stopped antibiox; staying with samento, red root and houttiya and supps. 7/10 added LDN; 8/24 rifampin, samento, red root and supps

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 9223
   Posted 12/8/2017 10:30 AM (GMT -7)   
PeppermintTea, I too am allergic to ragweed and I have never considered this connection to the Safflower. Thank you for pointing that out!!!

iLyme, I chose my screen name of PeteZa because once I got lyme I could not longer eat pizza. Up it came and that was a very sad day....... I love my pizza. Not funky restaurant stuff like dominos or whatever. I tend to make my own or the store bought is Amy's. Lyme took pizza off my grocery list..... and ice cream made me sick too.....

Lyme stinks

PeppermintTea
Regular Member


Date Joined Oct 2014
Total Posts : 201
   Posted 12/8/2017 10:41 AM (GMT -7)   
PeteZa - I love the origins of things. Hate the origin of your name is that you had to give up pizza BUT I love the cleverness.

Here is an origin tidbit. Do you know why pirates wore patches over one eye? It actually served a purpose. It allowed pirates the ability to change from fighting above ship to below ship in a moments notice because one eye was always prepped for fighting in the dark . Kinda cool, eh?

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 9223
   Posted 12/8/2017 10:54 AM (GMT -7)   
Whoa, that is so cool. I had no EYE D. lil more of my humor there,

Pirouette
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Date Joined Mar 2014
Total Posts : 6201
   Posted 12/8/2017 2:17 PM (GMT -7)   
Aurora2013 said...
Hello all,

I was just wondering if any of you experience an increase in neuropathy depending upon what you eat. I have been battling Lyme, Bart and Babesia and have terrible neuropathy all over my body. When I eat for example, gluten freeze tortilla chips, my neuropathy rages in certain body parts. It happens with other foods as well. Physiologically, it just does not add up but the increase in pain is very real. I would love to know if any of you have experienced something similar. Met with my land this am and she is stumped as am I. Thank you for your thoughts
Hi Aurora -
My Lyme-knowledgeable neurologist suggests that most neuropathy we experience is due to inflammation. I have had success with anti-inflammatories - might be something to try. You can do a search or start a new thread specifically discussing which anti-inflammatories people have tried.

The connection to the gut is that 70% of the immune system IS the mucosal lining of our GI. And when the immune system activates, one primary symptom it creates is inflammation - in a rudimentary way, the purpose of the inflammation is to "punt" anything harmful from tissues, thus the inflammation response. And of course, the mucosal lining in the GI is solely responsible for absorbing nutrition but also everything else you eat and anything that might trigger aggravation or damage to the mucosal lining will also exacerbate the immune response.

Also, if there is already damage to the mucusa likely means that this damage has created permeability in the lining, where undigested food particles, fecal matter, toxins and other debris seeps through the lining and into the bloodstream, which takes the toxins throughout the body as well as the immune system's inflammatory response! This is called "leaky gut" - there is a lot of good info online about this.

Also, in many "gluten-free" foods, the gluten (which is a protein binder) is simply replaced with other binders that the body can be just as reactive to... And there are SO MANY other problematic foods that are harming our GI. It might be something for you to look into as I have lost count how many people have resolved not only GI problems but many other problems like neuropathy simply by avoiding grains and non-organic produce.

Hope this is helpful.

-p

Aurora2013
Regular Member


Date Joined Jun 2017
Total Posts : 45
   Posted 12/8/2017 3:57 PM (GMT -7)   
HI Pirouette,

Thank you so much for the insightful response. I have heard about "leaky gut" but have never heard it explained as well as you have. I would not be surprised if I have this issue given the duration I have been on antibiotics. I imagine one of the keys for me will be to heal the mucosal lining....easier said then done as I am still on antibiotics. I take several probiotics daily and eat fermented foods to offset the damage the antibiotics are causing but know it's an uphill battle while using antibiotics.

I would be curious to know what anti inflammatories have worked well for you?

Georgia Hunter
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Date Joined May 2012
Total Posts : 2024
   Posted 12/10/2017 2:05 AM (GMT -7)   
Technically, the neuropathy we experience is from free radical formation or ROS (reactive oxygen species.) The inflammation is a byproduct of our immune response's reaction to the detection of pathogens. During this process, ROS are formed to help reduce pathogen load. It helps and hurts us at the same time. ROS can come from other reactions as well so inflammation isn't always the culprit.

Aurora2013
Regular Member


Date Joined Jun 2017
Total Posts : 45
   Posted 12/10/2017 7:11 AM (GMT -7)   
Georgia,

I guess it's good to know that somewhere in me, my immune system is recognizing pathogens. It's too bad the byproduct is neuropathy. It's curious to me that my neuropathy is worse when trying to get off of the antibiotics. Perhaps the antibiotics not only surpressed the bacteria but also my immune response?

You mention that ROS can come from other things, would be curious to know other reasons why this may occur. Thank you for your insight. Perhaps I need to look at reducing the free radical damage through supplements like quercetin?

Georgia Hunter
Veteran Member


Date Joined May 2012
Total Posts : 2024
   Posted 12/10/2017 7:23 AM (GMT -7)   
Aurora2013 said...
Georgia,

I guess it's good to know that somewhere in me, my immune system is recognizing pathogens. It's too bad the byproduct is neuropathy. It's curious to me that my neuropathy is worse when trying to get off of the antibiotics. Perhaps the antibiotics not only surpressed the bacteria but also my immune response?

You mention that ROS can come from other things, would be curious to know other reasons why this may occur. Thank you for your insight. Perhaps I need to look at reducing the free radical damage through supplements like quercetin?


In a nutshell, it seems you need to methylate more efficiently. ROS can come from many places but for someone who is sick, they need to examine normal cellular respiration, pathogen load, and metal load. This link can explain it better than I can. It is possible that the pathogens that you harbor (I always look for yeast) are responsible for metal sequestration and mobilization.

/www.biotek.com/resources/white-papers/an-introduction-to-reactive-oxygen-species-measurement-of-ros-in-cells/

Aurora2013
Regular Member


Date Joined Jun 2017
Total Posts : 45
   Posted 12/10/2017 7:35 AM (GMT -7)   
I see, thank you for the link Georgia, I will look at it today. I still think I have issues with yeast and I am not convinced that it is contributing to my symptoms. I am also thinking possibly mycoplasma as well. From what I understand it is very difficult to culture mycoplasma so I am not sure how to accurately determine if I really have it or not.
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