STRUGGLING-read these encouraging posts

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goshawk
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Date Joined Sep 2016
Total Posts : 1341
   Posted 12/7/2017 4:20 PM (GMT -7)   
Hi for those of you struggling , this post has two members offering success and encouraging words.

https://www.healingwell.com/community/default.aspx?f=30&m=3815792



I hope I got the link correct, if not look for the post that was by evianangel recently.


Take care and hope this helps a bit to bring some hope into your day today, Jo

KB69
Regular Member


Date Joined Jan 2017
Total Posts : 216
   Posted 12/7/2017 5:23 PM (GMT -7)   
Thanks for pointing these out, Jo. This was definitely a day that I needed a dose of inspiration!

Happy for evianangel and Artermix! Hopeful for the rest of us.

astroman
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Date Joined Mar 2014
Total Posts : 4016
   Posted 12/7/2017 5:36 PM (GMT -7)   
same link , but clickable= /www.healingwell.com/community/default.aspx?f=30&m=3815792


"In his book "Freedom from Lyme Disease", Bryan Rosner writes that the last 10% of healing often takes longer than the first 90%"

Official Member; "10 percenters club"

Post Edited (astroman) : 12/7/2017 5:40:26 PM (GMT-7)


Purrrsiankitty
Veteran Member


Date Joined Dec 2016
Total Posts : 1736
   Posted 12/7/2017 6:09 PM (GMT -7)   
thanks for the reminder. in our everyday struggles we do lose sight of healing.
Dx May 2015 Quest pos Elisa/neg WB. Doxy only. Restest Igenix lyme pos, neg CDC, 18 +, **23-25 IND, *30 +, **31+, **34 IND, **41+, **83-93++. Retest12/16 Igen 41+, 83-93+ whole blood-plasmid pos. Retest Lyme/co's. Neg co's. Suspected Bart. 7/15 start 16 mo of doxy, azith, ceftin. Finished 09/16. Cowden start 12/16 and stop April 2017 to deal with yeast & leaky gut.Restart Buhner for BBB.

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 9218
   Posted 12/7/2017 6:10 PM (GMT -7)   
Thank you Jo! This time of year our emotions can become heightened with all the holiday bustle.

Nice to see happy, encouraging posts.

Kat1000
Veteran Member


Date Joined Feb 2017
Total Posts : 557
   Posted 12/8/2017 10:07 AM (GMT -7)   
astroman - interesting quote. I think most days I'm 85-90 but then I have times where I feel more like I've slid backwards, but they tend to be hours rather than days. It's been a rollercoaster ride for me, and I'm ok with the last 10% taking longer provided the hills are smaller!
pos for MTHTR single mutation; Positive Igenix IgG Jan 2017
March/Apr '17: doxy, Tinizadole. 5/1 samento and exchange mino for doxy. 5/28- switch mino back to doxy, added activated charcoal. 6/9 - stopped antibiox; staying with samento, red root and houttiya and supps. 7/10 added LDN; 8/24 rifampin, samento, red root and supps

1000Daisies
Veteran Member


Date Joined Apr 2016
Total Posts : 2059
   Posted 12/8/2017 11:09 AM (GMT -7)   
I don't think we (in general) talk enough about healing from the damage caused from the pathogens, inflammation, and the treatments themselves. I think that it can definitely be a factor in these last percentages.
Kid#1: Extremely sick for several years, very difficult to treat, but doing great now!
Kid#2: Still sick now despite being treated for years but doing better (not well yet).
Kid#3: Generally good but relapsing off/on.
Me: Adv Labs positive 2016 (suspected I passed to my kids)-not as sick as others, mostly battling fatigue and yeast issues (heart/kidney issues resolved)
Treating with herbals now.

Kat1000
Veteran Member


Date Joined Feb 2017
Total Posts : 557
   Posted 12/8/2017 11:57 AM (GMT -7)   
1000Daises - I think you are right, that there needs to be healing from the infection and treatment. My LLMD is a big believer in diet - improving microbiome. All I hear is "it's all about the inflammation", and that does seem to be my worse symptom now though I do still sometimes get fatigure.

I've already read antibiox only get us 85% of the way, and that's if they can be tolerated. I think to get the rest of the way is a lot of trial and error and figuring out how to build the immune system back up after it's been so beaten down.
pos for MTHTR single mutation; Positive Igenix IgG Jan 2017
March/Apr '17: doxy, Tinizadole. 5/1 samento and exchange mino for doxy. 5/28- switch mino back to doxy, added activated charcoal. 6/9 - stopped antibiox; staying with samento, red root and houttiya and supps. 7/10 added LDN; 8/24 rifampin, samento, red root and supps

astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 4016
   Posted 12/8/2017 6:50 PM (GMT -7)   
1000Daisies said...
I don't think we (in general) talk enough about healing from the damage caused from the pathogens, inflammation, and the treatments themselves. I think that it can definitely be a factor in these last percentages.


Yes. My thoughts on the few "10 percenters" with very little life responsibilities, ( a life of leisure) might be just fine. For the normal people who place demands on there brains and bodies, the last 10 percent is still quite noticeable.

Obviously I believe in the phrase "Lyme damage", some do not.

Two years after ABX I continue to slowly improve, and measure/document this with repeated improved "marker" and inflammation tests. My diet does seem to help too, and I'm not even very strict compared to some. It doesn't take much in my experience, worth it, but my gut was trashed, so thats prob why.

Post Edited (astroman) : 12/8/2017 9:29:23 PM (GMT-7)


Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 27967
   Posted 12/8/2017 10:31 PM (GMT -7)   
Hard to know what is active infection and what is just needing more time to heal.

I don't have an answer - still trying to figure that out.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi
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