Peptide therapy

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Aurora2013
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Date Joined Jun 2017
Total Posts : 90
   Posted 12/8/2017 5:09 PM (GMT -6)   
Hello all,

I was recently reading about the role of peptides in the healing process and wondered if anyone here has tried peptide therapy? If so, what was your experience like? I find it fascinating to know that these peptides are very specific and can target particular problem areas. It sounds great on paper but I wonder how well it actually works in practice? Any feedback is greatly appreciated!

PeteZa
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Date Joined Jul 2015
Total Posts : 9729
   Posted 12/8/2017 5:31 PM (GMT -6)   

CeeKay
New Member


Date Joined Dec 2017
Total Posts : 10
   Posted 12/14/2017 2:38 PM (GMT -6)   
I will be starting it in a few weeks. My LLD is just beginning to use this. She said she has 3 patients who have started it and very quickly felt improvements. Apparently it's a 2-3 month protocol with virtually no side effects. I'm intrigued and trying to find info about it online. Can't find much since it is apparently still in trial phases. Gotta love being a guinea pig!
Happy to have a Dr who is always learning and willing to try new things.
I would love to hear from anyone who has tried this!
Thanks!

Aurora2013
Regular Member


Date Joined Jun 2017
Total Posts : 90
   Posted 12/14/2017 5:15 PM (GMT -6)   
CeeKay,

I am also in the process of learning more about it as well. I watched a lecture on it and was impressed with the presentation and what I learned. It seems that peptides have the potential to do some amazing things...especially as they relate to activating killer T cells and reducing inflammation. I am optimistic with this new therapy and how it may be one of the missing links in my recovery. By any chance did you hear about peptide therapy from a doctor in MA?

CeeKay
New Member


Date Joined Dec 2017
Total Posts : 10
   Posted 12/14/2017 7:22 PM (GMT -6)   
Aurora, yes! I heard about this from my LLD in MA.
I had an appt with her today and she was excited to share that she has seen remarkable results with 3 of her patients with stubborn cases like mine.
Are you being treated in MA also?

Aurora2013
Regular Member


Date Joined Jun 2017
Total Posts : 90
   Posted 12/14/2017 7:36 PM (GMT -6)   
Ceekay

It really is a small world. I am in Maine but my llmd knows a llmd in MA who is really an authority on this subject. My llmd is excited for me to give this a shot and so am I. Like you, I have been sick for quite some time (4.5 years) and look forward to the possibilities of peptide therapy. I have have heard there are virtually no side effects. Maybe a game changer for lots of people.

Aurora2013
Regular Member


Date Joined Jun 2017
Total Posts : 90
   Posted 12/14/2017 7:45 PM (GMT -6)   
Ceekay,

Any idea if insurance covers any portion of this treatment? Just wondering what it may cost out of pocket...

CeeKay
New Member


Date Joined Dec 2017
Total Posts : 10
   Posted 12/14/2017 7:50 PM (GMT -6)   
Aurora -
According to my doc, it is still in clinical trials so not covered by insurance.
She is aware of only 1 compounding pharmacy that currently offers it at approx $300 a month (for daily injections).
BUT - starting sometime in Jan (just a few weeks from now!) it will be available thru another source that will be much less. She thinks $50-100. So I'm waiting for that.
Fighting Lyme, Bartonella, Babesia since Nov 4, 2013

k07
Veteran Member


Date Joined Sep 2015
Total Posts : 2501
   Posted 12/14/2017 7:58 PM (GMT -6)   
Can you post a link to lecture? Curious to learn more about this. Keep us posted on how you both do with this!

Lapis_29
Veteran Member


Date Joined Sep 2017
Total Posts : 844
   Posted 12/14/2017 8:34 PM (GMT -6)   
peptide is a really braod term. there are like hundreds of peptides, maybe thousands.

which specific peptide are you referring to? Thymosin Alpha-1?





Somebody said...

Thymosin alpha-1 (T α 1) is a peptide, or small protein, consisting of 28 amino acids. T α 1 is produced naturally by the thymus gland. The thymus is located behind the sternum and between the lungs, and is where immune cells known as T cells mature and are released, prompted to do so by the T α 1 peptide. T cell production and action within the body is vital to adaptive immunity—the mode by which immune cells are able to recognize and eradicate foreign invaders.

Aurora2013
Regular Member


Date Joined Jun 2017
Total Posts : 90
   Posted 12/14/2017 8:45 PM (GMT -6)   
Ceekay,

Thanks for the quick reply. Glad to know its not 500.00/600.00 a month and that another compounding pharmacy will be offering at a lower price. I am looking forward to comparing notes.

K07,

I Will look for the link and will certainly keep you updated.

Aurora2013
Regular Member


Date Joined Jun 2017
Total Posts : 90
   Posted 12/14/2017 8:50 PM (GMT -6)   
Lapis

Yes TA 1 is one of the peptides that could potentially help. It sounds good in theory but will need to give it a try to know how well it works. Will keep you posted.

Aurora2013
Regular Member


Date Joined Jun 2017
Total Posts : 90
   Posted 12/14/2017 8:51 PM (GMT -6)   
Ceekay,

Also fighting Lyme, bartonella and Babesia since July 2013. Been a long haul thus far.....

CeeKay
New Member


Date Joined Dec 2017
Total Posts : 10
   Posted 12/15/2017 12:38 PM (GMT -6)   
Lapis -
I will be given 3 kinds, daily injections of each type one at a time, one per month:
thymosin alpha 1
thymosin beta 4
LLb37 (cytotoxic)
This is all new to me so I don't really know what the differences are or any other info.
My doc gave me info to read on each of them so I hope to know more soon.
Fighting Lyme, Bartonella, Babesia since Nov 4, 2013

Lapis_29
Veteran Member


Date Joined Sep 2017
Total Posts : 844
   Posted 12/15/2017 12:46 PM (GMT -6)   
CeeKay said...
Lapis -
I will be given 3 kinds, daily injections of each type one at a time, one per month:
thymosin alpha 1
thymosin beta 4
LLb37 (cytotoxic)
This is all new to me so I don't really know what the differences are or any other info.
My doc gave me info to read on each of them so I hope to know more soon.


ok, great. very interesting.

please let us know how the therapy goes.

GiProbs
New Member


Date Joined Jul 2015
Total Posts : 8
   Posted 12/21/2017 8:01 PM (GMT -6)   
Ceekay, I am wondering who your Lyme doctor is? Thanks!

CeeKay
New Member


Date Joined Dec 2017
Total Posts : 10
   Posted 12/22/2017 2:57 PM (GMT -6)   
So I decided not to wait till Jan, the first round of peptide injections arrived in the mail today.
I will be starting them tonight. Will let you guys know how it goes.
GiProbs: Happy to share my doc's name. Are we allowed to do that here in the forum? Some groups don't allow posting of doctor's names. If not, pls post your email address and I will send the info that way.
Thanks all and hope everyone is able to enjoy the holidays- <3
Fighting Lyme, Bartonella, Babesia since Nov 4, 2013

GiProbs
New Member


Date Joined Jul 2015
Total Posts : 8
   Posted 12/22/2017 3:06 PM (GMT -6)   
Thanks CeeKay! My email is Much appreciated!!

Post Edited By Moderator (Girlie) : 12/22/2017 4:51:59 PM (GMT-7)


Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32592
   Posted 12/22/2017 5:51 PM (GMT -6)   
Hi Ceekay - welcome to our community!

I see in your signature line that you've been fighting the lyme and co's since 2013.
Have you been treating this entire time...and have you made progress?


No, we don't post the names of the Dr.'s. just initials only.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32592
   Posted 12/22/2017 5:53 PM (GMT -6)   
Hi GiProbs, welcome!

I edited your post to remove your email address. We aren't permitted to post our contact information.

Instead, you can enable your email address (through "My Profile") - then members can send you information that way.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

CeeKay
New Member


Date Joined Dec 2017
Total Posts : 10
   Posted 12/23/2017 9:48 PM (GMT -6)   
Thanks, Girlie -
Likely I've had Lyme for many years before sudden/dramatic onset of symptoms and positive Elisa in 2013. Took me a long time to realize traditional docs were not helping me and finally found great LLD who treated me brilliantly - 6 months later was feeling great. Sadly I've had 2 relapses and a fresh tick bite with a new infection (sent tick to UMass Zoology lab and confirmed it carried Lyme) in the middle of all of it all.
Babesia has been making it difficult to get better. Been on aggressive treatment for that in addition to multiple antibiotics and herbals now for 15 months. Phasing out antibiotics and dialing up herbals this month, along with introducing the peptide therapy. Praying this all brings me back to feeling human again.

Giprobs - I sent you an email with my Doc's info. Jope you received it? If not, you can find my email address in my profile so please drop me a note.
Fighting Lyme, Bartonella, Babesia since Nov 4, 2013

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32592
   Posted 12/24/2017 12:53 AM (GMT -6)   
CeeKay - I look forward to hearing how this works...

Please let us know how you do - as you progress through this treatment...
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32592
   Posted 12/24/2017 12:58 AM (GMT -6)   
Is this therapy for repairing damage...or actually treating the infections?

Is it affecting the immune system?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

CeeKay
New Member


Date Joined Dec 2017
Total Posts : 10
   Posted 12/24/2017 9:39 AM (GMT -6)   
As I understand it, both.
But there are many different types of peptides that have different functions.
I will be taking 3 different kinds. (see my earlier post)
There is not much out there to read about, but I did find this source if you are interested to learn more.
https://www.holtorfmed.com/peptide-therapy/

Here is what it says about the first type I am using:

Thymosin Alpha-1
Thymosin alpha-1 (T α 1) is a peptide, or small protein, consisting of 28 amino acids. T α 1 is produced naturally by the thymus gland. The thymus is located behind the sternum and between the lungs, and is where immune cells known as T cells mature and are released, prompted to do so by the T α 1 peptide. T cell production and action within the body is vital to adaptive immunity—the mode by which immune cells are able to recognize and eradicate foreign invaders.

Current Uses
T α 1 has been found to have a profound effect on the immune system, and is the active ingredient in the immune modulating drug, Zadaxin®. Zadaxin® is used to treat hepatitis B and C, and has been studied extensively for its ability to support an immune system that has been suppressed by chemotherapy in cancer patients.

T α 1 Helps Support Important Immune Cells
Specifically, T α 1 has been shown to enhance the function of certain immune cells called T and dendritic cells. This is very important to anyone with a depressed immune system or suffering from an infection, as these white blood cells play pivotal roles in the body’s defense process. T cells, for example, come in two forms: killer and helper T cells. Killer T cells are responsible for hunting down and destroying our body’s own cells that are cancerous or infected with bacteria or viruses. Helper cells work with the other cells of the immune system to orchestrate and carry out appropriate immune responses.

Dendritic cells are just as valuable to our body’s defense system. These cells gather important information about infection or the presence of cancerous cells, and communicate with the T cells, who then act appropriately to eradicate the unhealthy cells and stop the infection or cancer growth.

T α 1 itself has been shown to exhibit antibacterial and antifungal properties, suppress tumor growth, increase vaccine effectiveness, and protect against oxidative damage.

Infection and T α 1
Studies have shown that individuals fighting infection have a lower amount of circulating T α 1 and suppressed helper T cell numbers compared to healthy individuals. This is problematic, as optimal immune function is vital to recovery from infection. Supplementation with T α 1 has the potential for great therapeutic benefit for patients suffering from infection or autoimmune disease.

In addition to its use in the treatment of Hepatitis, AIDS, and cancer, T α 1 has shown great promise in the treatment of Lyme disease. This is unsurprising when one considers the large role the immune system plays in combating the disease.

T α 1 assists the immune system in the location and eradication of the Lyme bacteria and infected cells, while helping to prevent oxidative damage, thereby decreasing inflammation and enabling better quality of life throughout treatment.

CeeKay
New Member


Date Joined Dec 2017
Total Posts : 10
   Posted 1/13/2018 5:42 PM (GMT -6)   
Quick update on my peptide therapy. I've been doing the daily injections for just over 3 weeks.
Day 1: Had the first uninterrupted 5 hours of sleep overnight in years. Maybe 20 years. That can't be a coincidence. That said, my husband also got me a weighted blanket for xmas and that has been helping to keep me in bed (I still wake up every 2 hours). Get one of these if you have sleep issues!
Day 2-5 sorry if TMI but I noted a gradual return of libido. I'm a 51 year old woman who hit menopause early...so this, again, is notable.
My doc had me stop my LDN when I started the peptides, and within 3 days I had a return of joint pain.
I sent her a note about it and she said it's fine to be on both so I continued and also got more serious about my diet that had slipped over the holidays. Cut out gluten and restarted the LDN and joint pain is gone.
Once I hit 2 weeks on the peptide shots I started to feel really good. Energy up. No lyme headaches. Reduced fatigue....very promising.
Now I am waiting to hear from doc about round 2 which is supposed to be a different peptide.
Unfortunately the compounding Pharmacy that was supposed to be offering it in Jan at reduced pricing (I paid 300 for round 1) is not ready to offer it yet, so if I want to continue (which I do) I will have to pay the higher cost.
LLD is researching if these are to be done back to back or a break in between.
My advice: If you have doc wiling and able to have you try it, try it.
No side effects. Just the maintenance of daily injections. All upside from where I sit.
Would love to hear from anyone else trying them.
Peace, love, health,
CeeKay
Fighting Lyme, Bartonella, Babesia since Nov 4, 2013
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