It sure is a life changer! I saw one of the tennis coaches last weekend, and she asked, again, when I'd be back. I said, again, .... not yet. So she remarks about how good I look. It's a tough disease to understand - for those who have it and those who don't.
I hate that.. even on my worst days, my coworkers, boss, family, friends will tell me I look good. I'm sure they mean well, but it is unreal how bad we feel on the inside and they will never understand the struggle. Our outward appearance is a misleading mirage that is disguising this nasty disease.
I love family get togethers, but I hate when people ask me about
my Lyme. For one, it is too much to explain, biofilms, co-infections blah blah blah but yet it seems necessary to explain because they want to know why I am not better. They need to understand the complexity to understand that treatment can take years. "Oh wow, you're still sick? You look great!"
Oh, and one time at a get together in the summer I JUST got done explaining to my aunt how bad my fatigue and brain fog was and not more than 2 minutes later she asks me if I want to do a 30 mile bike ride... ???