Lyme Patients speak to the Tickborne Disease Working Group

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Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33852
   Posted 12/13/2017 2:47 AM (GMT -6)   
/www.youtube.com/watch?v=0y7zHrruPbQ&t=54s
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Post Edited (Girlie) : 12/13/2017 12:56:37 AM (GMT-7)


LymeSick 🌟
Regular Member


Date Joined Aug 2017
Total Posts : 234
   Posted 12/13/2017 8:30 AM (GMT -6)   
Maybe we can find a video of the entire meeting somewhere. This is very informative.

1000Daisies
Veteran Member


Date Joined Apr 2016
Total Posts : 2473
   Posted 12/13/2017 9:56 AM (GMT -6)   
I watched some of the live presentations of the Lyme survivors. Definitely heartbreaking. Just like many of the stories/posts here.

So much suffering.
Kid#1: Extremely sick for several years, very difficult to treat, but doing great now!
Kid#2: Still sick now despite being treated for years but doing better (not well yet).
Kid#3: Generally good but relapsing off/on.
Me: Adv Labs positive 2016 (suspected I passed to my kids)-not as sick as others, mostly battling fatigue and yeast issues (heart/kidney issues resolved)
Treating with herbals now.

yancync
Veteran Member


Date Joined Nov 2015
Total Posts : 551
   Posted 12/13/2017 1:08 PM (GMT -6)   
I wasn't able to catch the personal testimonies and would love to view them. I did have a chance to watch yesterday afternoon and I'm now hopeful that perhaps the gov't will start taking this seriously. They established 6 working areas and are assembling groups and accepting online nominations for the working groups for a few weeks. All the information should be and will continue to be accessible online according to what I heard yesterday. It may take a bit but I expect there will be more to be seen at the link below as time passes.

/www.hhs.gov/ash/advisory-committees/tickbornedisease/index.html
Parent of teen DS w/ CDC+ Lyme test Nov 2015, late stage Lyme + mycoplasma, bartonella, babesia. Currently treating with antibiotics/anti-malerials, multivitamin, magnesium, Charlotte's Web Advanced CBD oil.

Website I started: ParentsofLymeKids.com aka Lyme Disease 101 for Parents

OptimisTick
Regular Member


Date Joined Jan 2016
Total Posts : 103
   Posted 12/16/2017 12:14 AM (GMT -6)   
Here you go yancync

/www.youtube.com/playlist?list=PLrl7E8KABz1EpJM8RjWoQQYvSwdLq30KB

Day 1 has the testimonials.

(Edit to add part 3 is where you will find it specifically)
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