Daughter's MRI results back - Impressed Radiology Dr. Suggested Lyme!

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PeppermintTea
Regular Member


Date Joined Oct 2014
Total Posts : 266
   Posted 12/13/2017 3:12 PM (GMT -6)   
We just got the results back from my daughter's MRI. They mentioned the 1cm FLAIR bright focus might be a manifestation of Lyme disease. I am impressed!

Results are a double edged sword - glad to have some proof something is going on in her head but the results are also scary. My uncle died from MS complications. Looking forward to talking to the JC clinic about the results next week.

Fingers crossed -

Peppermint Tea

k07
Veteran Member


Date Joined Sep 2015
Total Posts : 2550
   Posted 12/13/2017 3:40 PM (GMT -6)   
Wow - that's a first I've seen that from an MRI report.

I can understand how on one hand happy and the other scared. The good news is she can hopefully reverse it all with treatment! Has she treated before? Keep us updated!

PeppermintTea
Regular Member


Date Joined Oct 2014
Total Posts : 266
   Posted 12/13/2017 4:13 PM (GMT -6)   
I know! I think I might have to go back and hug that doctor and give him a gold star from the lyme community!

Yes. She was treated back in 2014. We just started with the JC clinic in November. We are definitely feeling in good hands.

PeteZa
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Date Joined Jul 2015
Total Posts : 9729
   Posted 12/13/2017 5:28 PM (GMT -6)   
I'm with k07 and am very surprised at the MRI suggesting lyme. Wow, just wow.

PeppermintTea
Regular Member


Date Joined Oct 2014
Total Posts : 266
   Posted 12/13/2017 5:33 PM (GMT -6)   
K07 & PeteZa - Times are a changing. I am seriously going to thank him.

yancync
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Date Joined Nov 2015
Total Posts : 551
   Posted 12/13/2017 5:37 PM (GMT -6)   
Great plan Peppermint Tea. Anything drs in the know can do to educate their peers is great too ;) I'm so glad you got more insight on your daughter. Dr. J will definitely have thoughts on the next steps with this new information.
Parent of teen DS w/ CDC+ Lyme test Nov 2015, late stage Lyme + mycoplasma, bartonella, babesia. Currently treating with antibiotics/anti-malerials, multivitamin, magnesium, Charlotte's Web Advanced CBD oil.

Website I started: ParentsofLymeKids.com aka Lyme Disease 101 for Parents

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33907
   Posted 12/13/2017 6:50 PM (GMT -6)   
PPT - let us know what Dr. J clinic says about it.


BTW - did Dr. J request she have the MRI done?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

PeppermintTea
Regular Member


Date Joined Oct 2014
Total Posts : 266
   Posted 12/13/2017 7:47 PM (GMT -6)   
Yancync - yes. I appreciate these new pieces added to her lyme puzzle.


Girlie - Will do. Appointment next week. This will be out 3rd appointment in just over 30 days for her (last two being phone). Yes. JC Clinic/ our NP CW ordered the MRI.

Girlie
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Date Joined May 2014
Total Posts : 33907
   Posted 12/13/2017 8:07 PM (GMT -6)   
PeppermintTea said...
Yancync - yes. I appreciate these new pieces added to her lyme puzzle.


Girlie - Will do. Appointment next week. This will be out 3rd appointment in just over 30 days for her (last two being phone). Yes. JC Clinic/ our NP CW ordered the MRI.


Well, your daughter is in good hands (IMO) with Dr. J.

...and I'm thinking she will be seeing him about the results and not the NP.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

eldonkey
Regular Member


Date Joined Oct 2017
Total Posts : 82
   Posted 12/13/2017 8:20 PM (GMT -6)   
May I ask where the flare was on her brain? My MRI showed that the very back of my brain did not curve under as it normally would and protruded out slightly. They said it was genetic and probably had been there my whole life..

PeppermintTea
Regular Member


Date Joined Oct 2014
Total Posts : 266
   Posted 12/14/2017 2:49 AM (GMT -6)   
Eldonkey - left posterior of mid brain. Wow. Does the fact your brain not curve under affect you?

Kct
Regular Member


Date Joined May 2016
Total Posts : 219
   Posted 12/14/2017 10:25 AM (GMT -6)   
Wow, aan open minded radiologist !!! My mri had multiple T2 white flares went to MS cllinic with tremor, mild drop foot and balance issues and the MD said I had an " over stressed neurological system " he couldn't say I don't know or wouldn't say Neuro Lyme.

PeppermintTea
Regular Member


Date Joined Oct 2014
Total Posts : 266
   Posted 12/14/2017 12:15 PM (GMT -6)   
Good grief, Kct. You need to come on up to NH to get a MRI read. Sorry you have a noodle head for a radiologist.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33907
   Posted 12/14/2017 1:07 PM (GMT -6)   
PeppermintTea said...
Sorry you have a noodle head for a radiologist.




tongue
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

eldonkey
Regular Member


Date Joined Oct 2017
Total Posts : 82
   Posted 12/14/2017 2:24 PM (GMT -6)   
PeppermintTea said...
Eldonkey - left posterior of mid brain. Wow. Does the fact your brain not curve under affect you?


I'm guessing it doesn't affect me. It's apparently not that uncommon. Thank you for sharing by the way. The reason I was asking is with all the anxiety and difficulty concentrating I'm having, I wonder if the person who looked at my MRI new what they were looking at. This Dr J everyone keeps mentioning on this thread, would you mind private messaging me the name of the Dr?

PeppermintTea
Regular Member


Date Joined Oct 2014
Total Posts : 266
   Posted 12/14/2017 3:25 PM (GMT -6)   
Eldonkey - I will absolutely email you later this evening.
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