My Journey to Healing Lyme

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Maverick6981
Regular Member


Date Joined Apr 2016
Total Posts : 160
   Posted 12/13/2017 3:03 PM (GMT -6)   
Hello everyone!

I wanted to make a journal to keep track of my progress of healing myself from Chronic Lyme. It is my goal that this thread will not only keep myself motivated and on track, but will provide value to other members in this community who are on the same path as me.

Here's a quick background on my story. In the summer of 2012 when I was living in Pennsylvania, a few friends and I set off into the woods in search of a local swimming hole near a waterfall. What started out as a fun day went south when we got lost for 6 hours. We eventually made our way back to the car and I thought nothing of it, other than being very annoyed that we got lost for so long.

Fast forward a few days (or two weeks, can't remember) and I was down visiting a buddy in North Carolina for a college get together. We didn't get in until super late so we only had a few beers before calling it a night. I remember not being able to get out of bed in the morning, profuse sweating, lots of muscle pain, and a weird red dot on the back of my right knee.

I eventually got out of bed but started to get progressively worse over the weekend until I noticed that the small red dot progressed into a full bullseye rash. I didn't know what this meant at that time because I wasn't too familiar with Lyme even though I lived in a hotspot. I took some pictures of the rash and sent it to my friend who was a nursing student asking her what she thought it might be and she suggested, "It looks like Lyme, I would go get tested ASAP." When I got back to PA, I went to Urgent Care and got tested for Lyme. When the results came back, sure enough I tested positive for Lyme.

I went through the standard 3 weeks of antibiotics (I think it was doxycycline). The rash went away and everything seemed to get better. But as time went by, I started to develops lots of neurological symptoms (depersonalization, derealization, brain fog, fatigue, memory loss, tripping over things, filmy vision, etc.) I have some other less severe symptoms nowadays but the main symptoms mentioned above are still present will me. Thankfully they haven't gotten worse.

Fast forward a few more years to summer of last year and I'm now living in Colorado, a state less versed in Lyme Disease and it's effects. I had a wild night out with some friends and woke up with severe Lyme issues including vertigo, not being able to see, etc. I was terrified and got somebody to drop me off at the ER. They ran all sorts of tests but couldn't find anything wrong with me. I started reading Buhner's Healing Lyme a few weeks prior to this experience and knew what was going on. After tons of bloodwork and stuff I convinced the doctor to prescribe me more antibiotics, which I'm not sure now was a good idea, but oh well. Eventually I got "better," that is back to my normal Lyme symptoms and I kept pushing on with my life.

I have tried staying active as I refuse to mentally let this disease destroy my life. I am currently in a relationship with a woman that I see myself marrying so I want to get ahold of these psychological Lyme sypmtoms so I can be present and a normal healthy, emotional being since Lyme has since stole all of my ability to feel emotions and connect with other people. I started taking Japanese Knotweed yesterday (per the new Buhner Core Protocol). I need to start this journal for myself so that I can remain focused on sticking to the protocol. I did it for a few weeks last year and fell off the wagon because I didn't have a support system. Now I finally have someone who is there to be supportive and understanding of what I'm going through and I want to heal this disease so we can get on with our lives together.

If you've made it this far, thank you for reading about my story! I hope that I can provide some value on your own journey to healing. We can do this everyone!

-Mav

Post Edited (Maverick6981) : 12/13/2017 2:06:03 PM (GMT-7)


Maverick6981
Regular Member


Date Joined Apr 2016
Total Posts : 160
   Posted 12/13/2017 3:27 PM (GMT -6)   
Current Treatment Program: Buhner Core Protocol

Started taking Japanese Knotweed (NuHerbs Organics brand) last night. Started with 1 tsp in the evening before bed. I woke up a few times throughout the night. I have had some sleeping programs, but I think it is more due to drinking a lot of alcohol over the previous few days I was on vacation. I am eliminating alcohol completely from my diet as of 12/11.

Today, I am plan on taking 3 tsp of JK 3x throughout the day. I took 1 tsp this morning when I woke up around 8:00 am. I am about to take another tsp right now and I plan on taking my final dose before bed. I will slowly increase my dosages over the next week, pending my reaction. After two weeks of no issues, I will add in the next herb per the protocol.

Does anybody know if you should work up to the full dosages for each herb before adding in the next herb or once you are able to take a consistent amount of one herb without major herxing before adding the next one in?

I will say that the JK powder tastes pretty bad, but I'll drink anything if it will heal me!

-Mav

goshawk
Veteran Member


Date Joined Sep 2016
Total Posts : 1900
   Posted 12/13/2017 4:09 PM (GMT -6)   
Hi and welcome to our forum,

Sorry that you are dealing with Lyme, some people do self treat but you might also want to consider finding an llmd(Lyme literate MD) or Nautropath. You can do that here if you wish by enabling your email so embers may respond. Then just start a new post asking"Seeking an llmd in your area."

We encourage all new members to read our "New to Lyme"start her thread at the top of the page.

It has excellent information on Lyme,detoxing, treatments, testing, symptoms and more.

Usually it is advised to start low and slow with any herbals. I always started one at a time and just a few drops to see if i had any issues with it. If I was fine i increased it after a few days and then you can add another one in.

There are many people that can tolerate the regular our higher doses right off but others cannot.

It is also good to start one at a time so if you have an allergic reaction, you know what herbal caused it.


We are all different and not everyone needs the full doses.

Be careful of herxing, and detox by drinking water with lemon juice in it,taking Epsom baths, dry brushing etc.

Always do your own research on the herbals and check for side effects and contradictions.

Take care, Jo

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 9709
   Posted 12/13/2017 4:35 PM (GMT -6)   
So I did one herb and got to what I felt was my maximum dose and then I started on the next herb. I did tinctures. It was easy to put those drops in a highball glass, add a little water and chug it all down.

You can see there is no set exact way and Buhner does not say in his book exactly how to take it. I have gone to 2 herbalists and they both had said "either way is fine." There is not rule.

However, both herbalists said make sure you start with a very low dose so you check for allergies and reactions.

I did have 2 herbs that I could not tolerate. I got horrible symptoms immediately after taking one drop.

I am very sensitive to stimulating herbs.

Maverick6981
Regular Member


Date Joined Apr 2016
Total Posts : 160
   Posted 12/13/2017 4:40 PM (GMT -6)   
PeteZa said...
I am very sensitive to stimulating herbs.


Hi PeteZa, I did a few weeks of the Buhner Protocol last year and got up to the part where you add the Vitamin C, so I was taking a lot of herbs. I didn't seem to herx from any of them even after upping the dosages. I know my body is different a year later but I'm hoping that by creating this journal, I will stay motivated to stick with the plan this time around and eventually get rid of this!

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 9709
   Posted 12/13/2017 5:18 PM (GMT -6)   
I will add your wish to my Christmas list! You can do this.

Maverick6981
Regular Member


Date Joined Apr 2016
Total Posts : 160
   Posted 12/14/2017 10:58 AM (GMT -6)   
Day 1 of treatment yesterday went well. No issues. I took 1 tsp of JK twice yesterday. Today I am stepping it up to 1 tsp 3x a day. I also am adding in Ginkgo and Eleuthero today. I remember taking these last year and noticing some positive effects. I have also been taking a supplement (prior to starting the Buhner protocol) called Clarity by Neovicta hoping that it would help with my brain fog. I do notice that it helps slightly with feeling more present during the day, but it's still too early to tell if there will be long-term success with it. I will update this journal as needed. I can't wait until I'm on the entire Core Protocol taking all of the herbs!

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 9709
   Posted 12/14/2017 12:08 PM (GMT -6)   
Mav, you are going to fast, in my opinion. You shouldn't up the J/K and add in 2 others on the same day. That is rough on a body.

Unless, of course, you have done this before and were fine.

I just don't want you setting yourself up to be hurting and then have to start all over.

The tortoise wins this lyme race. Slow and easy and one herb at a time. Detoxing every day.

Eat healthy, good sleep and try as hard as you can to stay out of stress.

Maverick6981
Regular Member


Date Joined Apr 2016
Total Posts : 160
   Posted 12/14/2017 12:11 PM (GMT -6)   
PeteZa said...
Unless, of course, you have done this before and were fine.


I was almost up to the full dose of all herbs last year and ramped it up pretty quickly. I don't ever remember herxing at all. I'm pretty in tune with my body and am very aware if something feels off. I have been taking Eluthero and Gingko off and on even while I wasn't on the protocol and it hasn't had any negative affects on me. I'll definitely make changes if something feels off! But you're definitely right, I need to take things slowly. I just want to heal sad

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 9709
   Posted 12/14/2017 12:20 PM (GMT -6)   
I so understand the huge want to heal!

I also don't want those new or just looking to think this is the way you take your treatment.

It's the mother hen in me.

Maverick6981
Regular Member


Date Joined Apr 2016
Total Posts : 160
   Posted 12/14/2017 12:36 PM (GMT -6)   
PeteZa said...
I also don't want those new or just looking to think this is the way you take your treatment.


I totally understand that! I will be sure to add more background/disclosures in future posts!

Maverick6981
Regular Member


Date Joined Apr 2016
Total Posts : 160
   Posted 12/15/2017 10:43 AM (GMT -6)   
Day 2

I woke up today with lots of stiffness in my neck and a runny nose (herx?) so based on what I've been reading, I'm going to scale back the dosages of my herbs. I am going to drop down to 2 flat teaspoons of JK 2x a day and 10 drops of Gingko and 10 drops of Eluthero 2x a day. Does anybody know when to increase dosages? Is it when you have had no negative reactions to the herbs for a few days? And if you up it too much (thanks PeteZa!) do you just back off till you don't herx? Do you want to herx?

I only woke up twice throughout the night (a huge milestone for me!) last night and got a solid 8 hours of sleep. No night sweats or anything which is good. But I am still ridiculously tired.

Edit: I also had a question about skin brushing for detox. Since the primary function in skin brushing is moving lymph to help eliminate toxins, wouldn't rebounding be a better form of detox? Or does skin brushing do other things that I'm not aware of? Thanks for all your help!

Post Edited (Maverick6981) : 12/16/2017 11:43:39 AM (GMT-7)


PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 9709
   Posted 12/15/2017 11:05 AM (GMT -6)   
Herxing is stress on your body. I don't think it should be done, but sometimes it is unavoidable because you just can't detox enough or your body doesn't detox correctly. Some herx with just one drop of an herb.

I only upped my herbs if I felt good. If I was flaring I did not up my herbs. How could I tell and feel the effects of an herb when something else was happening like a flare? So when everything was calm, then I would either up herbs or that would be the time I added an herb.

If you get a herx, this way you will know a place that you were calm and doing fine and you can back up to that dosage.

Did that make sense?

When I say calm, I don't mean symptom free. Just that you have your regular symptoms and they are not more intense than usual.

Maverick6981
Regular Member


Date Joined Apr 2016
Total Posts : 160
   Posted 12/15/2017 11:19 AM (GMT -6)   
PeteZa said...
Did that make sense?


That makes total sense, and that's helps me a lot. Thank you!

Maverick6981
Regular Member


Date Joined Apr 2016
Total Posts : 160
   Posted 12/15/2017 12:04 PM (GMT -6)   
I am noticing today I am feeling full body weakness. No pain involved, but my body is feeling as if I went swimming all day long. My arms feel heavy and weak. I am starting to have slight amounts of joint pain in my elbows, but I am also a rock climber so that could be related. Are these signs that my body is killing off the bacteria?

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 9709
   Posted 12/15/2017 12:16 PM (GMT -6)   
Lyme roams the body. Lyme also waxes and wanes. Most of all lyme has no rhyme or reason. It is frustrating because we all have different symptoms and in all different places.

The most common thing I have noticed is that a place in your body that is weak, lyme will go for it. Any old injuries or over use areas seem to attract lyme on my body. But then as soon as I think I get this figured out I would get twitching on my chin.

I got tired of trying to figure out lyme. It became a joke in our house. "Another lyme symptom" was announced almost daily between hubby and I, and we would laugh. We had to laugh about it or we would have been so depressed.

Maverick6981
Regular Member


Date Joined Apr 2016
Total Posts : 160
   Posted 12/16/2017 12:42 PM (GMT -6)   
Day 3

Yesterday went much better than the day before. I dropped my dosages to 1 flat teaspoon of JK 2x a day and 10 drops of Gingko and Eleuthero 2x a day taken with the JK. No aches and pains today like I had yesterday. I will stay at this dosage for awhile before upping them or adding in the next herb of the Core Protocol. Going to get out in nature tomorrow for a low stress beautiful hike in the mountains.

Maverick6981
Regular Member


Date Joined Apr 2016
Total Posts : 160
   Posted 12/17/2017 10:53 PM (GMT -6)   
Day 4

I tried going for a hike this morning but the car I was driving crapped out on me and I had to turn back less than an hour away from the trailhead. I spent most of the day getting rid of almost everything I own that hasn't been used within the past 6 months. I found that when I do these purge days once or twice a year, my stress level drops tremendously. I have not had any issues since switching up my dosages (JK 1 flat tsp 2x/day, Gingko and Eleuthero 10 drops 2x/day). I am looking at moving more towards a minimalist lifestyle here coming into 2018. I am getting rid of a lot of stuff (toxins and physical stuff) and am looking to save as much money as possible next year to pay off the debt that has accumulated since contracting Lyme. We can all do this!

Maverick6981
Regular Member


Date Joined Apr 2016
Total Posts : 160
   Posted 12/19/2017 8:43 AM (GMT -6)   
Day 5 (12/18)

Nothing of interest to report on. No herxing, symptoms neither getting worse or better. Nearing one week of treatment with the Buhner Protocol.

Maverick6981
Regular Member


Date Joined Apr 2016
Total Posts : 160
   Posted 12/19/2017 7:26 PM (GMT -6)   
Day 6

Another day without issues. The only thing I would say is any different is that I have been extremely bloated since beginning taking the herbs. I assume this is Lyme related as I cannot recall ever feeling this bloated. And it's like really bloated haha. I did forget to mention that I slept really well last night and only woke up once! That's a miracle for me as Lyme has badly affected my sleep cycles! I'm still super tired throughout the day but I know that the longer I keep taking these herbs, the better I will get. I think if I can go through next week without any issues, I will add in the next herb in the core protocol. I still start with a low dose of course. One more day and I have officially been treating myself for 1 week!

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 9709
   Posted 12/19/2017 9:43 PM (GMT -6)   
turn turn turn turn turn turn

Yippeee!!! Sounds good and so happy for you.

Maverick6981
Regular Member


Date Joined Apr 2016
Total Posts : 160
   Posted 12/20/2017 12:33 PM (GMT -6)   
Day 7

*HUGE improvement with my sleep schedule! I was able to sleep all the way through the night until 5 am! This is the first time this has happened in over 3 years. I hope this is a sign of winning the battle against the Lyme bacteria! I have noticed that my urine has been becoming darker yellow since taking the herbs. I think I need to drink water because I've only been drinking about 2 liters per day. I also added in 5 minutes of rebounding this morning prior to getting in the shower after taking my morning dose of herbs. Besides this, nothing of major importance to report on.

-Mav

Maverick6981
Regular Member


Date Joined Apr 2016
Total Posts : 160
   Posted 12/21/2017 4:32 PM (GMT -6)   
Day 8

Over the past 3 days, I have been noticing a lot of bloating in my stomach. And as of yesterday, I noticed that my abdominal muscles have been feeling "numb" when trying to flex them, as if I didn't have as much control over my muscles as I am used to. It make me do a forum search here and it lead me to find previous older threads mentioning the Lyme bacteria being able to paralyze the abdominal muscles. So now I have a ton of bloating. I am going to be monitoring this symptom to see if it gets worse. I will not be adding any new herbs or increasing my dosages until I know where this leads. As of right now, the numbness while trying to flex my abs has gotten less severe but I am still very bloated.

*I am curious to see if adding a probiotic to my regimen will help with the bloating. I will do more research on this.

Edit: Thanks to a recommendation from a member on a previous thread, I have found the following piece of information:
"Another borrelial cause of massive increases in abdominal girth associated with "gasless" bloating may cause diagnostic confusion. Unrelated to gut symptoms from Lyme's disruption of the body's internal "wiring," Bb-inflicted polyradiculopathies of T7- 12 (nerve root inflammations) may result in paralysis of external abdominal muscles such as the rectus abdominus. This in turn can also lead to the appearance, not the reality, of extensive bloating. No exercise "crunches" will alleviate this distention even for a previously well-toned individual. Antibiotic treatment for borreliosis may resolve this symptom (45, 46)."

Source - http://www.publichealthalert.org/palsy-of-the-gut-and-other-gi-manifestations-of-lyme-and-associated-diseases.html

Post Edited (Maverick6981) : 12/21/2017 3:37:19 PM (GMT-7)


Maverick6981
Regular Member


Date Joined Apr 2016
Total Posts : 160
   Posted 12/22/2017 8:12 PM (GMT -6)   
Day 9

Feeling pretty sluggish and exhausted today. It doesn't help that I have been the only manager working all week. open to close every single day since Monday. I'll be over 80 hours by the time my week is finished so this surely isn't helping me. Thankfully I'm off work in 2 hours and tomorrow is my last day before I have the next few days off. I'm thinking on Monday, I will add in the next herb of the Buhner Protocol. I'm really glad I started this log because I wouldn't be able to tell you when I started taking the Japanese Knotweed. This is why I NEED to keep a journal, I would never be able to remember anything about my recovery process if I didn't. I am super exhausted right now and could totally fall asleep, but alas, I have 2 more hours of work to go. Here's to making it through the work week from hell...

-Mav

Maverick6981
Regular Member


Date Joined Apr 2016
Total Posts : 160
   Posted 12/23/2017 11:01 AM (GMT -6)   
Day 10 - PICKED UP A NEW SUPPLEMENT

Today marks Day 10 in my journey to healing Lyme. I was shopping around at Sprouts this morning to pick up some Activated Charcoal to help with detox as I haven't been doing any this week because I've been working from the time I wake up to the time I go to bed. I'm hoping by incorporating the charcoal, it will help alleviate some of the weird symptoms I've been experiencing. The new supplement is called Green Vibrance /shop.vibranthealth.com/products/green-vibrance?variant=47532601732

I bought it mainly because of the pH enhancing properties and the fact that it has 25B probiotics. I'm hoping this will help with the crazy bloating I've been experiencing lately. I'm still having "numb" ab muscles for most of the day but it seems to go away towards the late afternoon/early evening. Not sure what's going on with that. As of today, here is my herbal dosage schedule:

Morning:

1 tsp of Japanese Knotweed
10 drops of Gingko
10 drops of Eleuthero
1 scoop of Green Vibrance

Before Bed:

1 tsp of Japanese Knotweed
10 drops of Gingko
10 drops of Eleuthero

I am going to take 1 pill of activated charcoal 2 hours after breakfast to see if that will help with detoxing.

-Mav

Post Edited (Maverick6981) : 12/23/2017 10:13:21 AM (GMT-7)

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