Tachycardia /Pots question

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Traci
Regular Member


Date Joined Mar 2017
Total Posts : 99
   Posted 12/15/2017 9:54 AM (GMT -6)   
*Help* What do y'all do/take for your tachycardia/Pots???? They caught tachycardia on my heart monitor and last night I had to go to the ER because my heart and blood pressure spiked up really high. I thought i was going to die. And this isn't the first time this months
its happened. The past few days it's been really bad that I've been bedridden along with other symptoms like weakness, fatigue, neruo symptoms, and more.... In the middle of the night it just seems like I'm too weak to breath like my heart is just going to stop. I have 2 boys who need me so I need some advice..

PeteZa
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Date Joined Jul 2015
Total Posts : 9729
   Posted 12/15/2017 10:33 AM (GMT -6)   
I had bouts of very high blood pressure and pulse when I had full blown lyme. It was scary for sure. I did not notice any symptoms of POTS.

I had no idea when it was time to go to the ER and many times I came so close to going.

I read this article and it was helpful. I began Hawthorn right away and slowly saw improvements. I also did the other recommended things.

www.sagewomanherbs.com/general-info/article-center/caring-for-the-heart/

Traci
Regular Member


Date Joined Mar 2017
Total Posts : 99
   Posted 12/15/2017 11:53 AM (GMT -6)   
Thank for your reply! I'm interested in taking Hawthorn. But my cardiologist prescribed me fludrocortisone (Haven't started yet). I don't know if you can take them together or if i need to choose one or the other. Plus if my symptoms are so bad I can't get out of bed much then should i take what he prescribed me since it will kick in faster than the herb? I'm lost.

PeteZa
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Date Joined Jul 2015
Total Posts : 9729
   Posted 12/15/2017 11:57 AM (GMT -6)   
My advice is just my opinion -- I think you should do what your cardiologist says! He knows one heck of a lot more than I do.

Do the drugs and hopefully all will be fine.

If not, you know you can go to plan B.

Good luck and keep us posted on how you are doing.

Fingers crossed for ya.

hammer8
Regular Member


Date Joined Oct 2017
Total Posts : 61
   Posted 12/15/2017 12:04 PM (GMT -6)   
Hawthorn is a miracle. I was having 25,000 skipped beats per day (PVCs), and now that I am on Hawthorn, I am maybe in the 1,000-2,000 range. Beta blockers and the other prescriptions didn't do anything. It works within the first few hours. Not sure for tachycardia.

I normally am all on board with pharmaceuticals for Lyme and co, but in this case the herbs did way more for me.

Girlie
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Date Joined May 2014
Total Posts : 33909
   Posted 12/15/2017 1:36 PM (GMT -6)   
I have 'mild' pots - from Lyme disease.

My blood pressure isn't affected...but my pulse is. When I stand from sitting it rises but not severely.


I have read exercise is actually good for people with POTS.
Not sure if that's something you should be doing without consulting your Dr. and maybe you're not able to try it at this point.
A recumbent bike may be an option for people who can't stand up and exercise due to POTS.

I take hawthorn and was taking CoQ10 before I was on the atovaquone.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

nonames
Regular Member


Date Joined Sep 2017
Total Posts : 29
   Posted 12/15/2017 2:58 PM (GMT -6)   
Cardioselective beta blockers are good for tachycardia and for high pressure.
I take it for years in small dose, even before I knew about Lyme. Helps for tachycardia but
usually you'll have to use it all time if it helps you first time. POTS will improve when you're in better shape.

I was taking hawthorn as well but always few hours after beta blocker.

Traci
Regular Member


Date Joined Mar 2017
Total Posts : 99
   Posted 12/15/2017 4:04 PM (GMT -6)   
PeteZa- Thank you!

Hammer8- That's great I really want to get some now.

Girlie- I am bed ridden right now. Walking to the bathroom is making my heart race. I wish I could.

Nonames- He put me on a steroid, I want to take a better blocker but I have low blood pressure so I don't know if that will work.

Purrrsiankitty
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Date Joined Dec 2016
Total Posts : 1780
   Posted 12/15/2017 4:09 PM (GMT -6)   
Traci said...
PeteZa- Thank you!

Hammer8- That's great I really want to get some now.

Girlie- I am bed ridden right now. Walking to the bathroom is making my heart race. I wish I could.

Nonames- He put me on a steroid, I want to take a better blocker but I have low blood pressure so I don't know if that will work.
Traci, what steroid are you on?

nonames
Regular Member


Date Joined Sep 2017
Total Posts : 29
   Posted 12/15/2017 4:26 PM (GMT -6)   
Traci, I have low blood pressure too but minimal dose is fine for me.

Traci
Regular Member


Date Joined Mar 2017
Total Posts : 99
   Posted 12/15/2017 4:33 PM (GMT -6)   
Purrrsiankitty- It is fludrocortisone

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33909
   Posted 12/15/2017 4:38 PM (GMT -6)   
Traci said...
PeteZa- Thank you!

Hammer8- That's great I really want to get some now.

Girlie- I am bed ridden right now. Walking to the bathroom is making my heart race. I wish I could.

Nonames- He put me on a steroid, I want to take a better blocker but I have low blood pressure so I don't know if that will work.


Hopefully, you will be out of bed soon. So sorry!


I was prescribed a beta blocker at one point, as well...but for something else...and my blood pressure isn't high - and didn't want to lower it...so I declined the Propranolol.

I'm also wondering about the steroid. If it's a low dose cortisone - then it's alright if your adrenals are suffering, but you don't want to take the dosages that are prescribed for autoimmune diseases...when you have LD.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33909
   Posted 12/15/2017 4:40 PM (GMT -6)   
Traci said...
Purrrsiankitty- It is fludrocortisone


Okay - I think that's the same as Florinef - and is small doses, right?
Low doses to support the adrenals is generally okay.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Traci
Regular Member


Date Joined Mar 2017
Total Posts : 99
   Posted 12/15/2017 5:27 PM (GMT -6)   
Girlie- It's only 0.1mg. He said that it's used for tachycardia but when I look it up it doesn't say anything about tachycardia ??

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33909
   Posted 12/15/2017 6:35 PM (GMT -6)   
I haven't heard about cortisone - albeit low dose for POTS symptoms, either.

Unless, he figures it's suffering adrenals that are causing your POTS symptoms.
So, trying to support them.

www.potsuk.org/medication_overview

So, I did see it on the list of medications - to increase blood flow...
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi
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