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Emjax
New Member


Date Joined Dec 2017
Total Posts : 2
   Posted 12/17/2017 3:01 PM (GMT -6)   
I feel like I know many of you, as I have been reading posts and learning from all of you for the year and a half since I was diagnosed. I won’t creep you out by mentioning names, but you have all been a source of comfort (sometimes just by knowing I am not the only out here).

In the beginning, I could not focus very long or very well...but I wrote things down and looked them up whenever I had a halfway decent brain day.

I do not have an LLMD. Was diagnosed cdc pos. by western blot and was treated by the only ID that was willing to, in the Miami area (because “Lyme does not exist here” and “Lyme patients tend to be ‘difficult people’). 30 days oral doxy followed by 30days IV rocephin.

They were worried by some vitamin deficiencies and anemia that my blood work showed but, as soon as they pulled my pic line, I LITERALLY never heard from them again—except for calls from billing 😩

Since then, 5/2016, I have been managing and maintaining with a modified Buhner protocol and supplements (plus no gluten, as much organic/non gmo as I can and low sugar). A lot of internet research— often leading me here, to see your posts about whatever I was looking up. I have good days and I have flares...but I felt compelled to let you ALL know how helpful you have been on my journey.

gabybee
Regular Member


Date Joined Nov 2015
Total Posts : 207
   Posted 12/17/2017 3:10 PM (GMT -6)   
Hello! I live in Miami too and I can recommend an LLMD or a lyme literate naturopath if you would like to start seeing someone again- let me know!
22 years old, symptoms started in 2013 and was diagnosed in 2015
HHV6/EBV
Lyme
Bartonella
MTHFR
ecoli+klebsiella
Candida

Treating with multiple vitamins + Supplements, Byron white formulas, and bee venom therapy.

goshawk
Forum Moderator


Date Joined Sep 2016
Total Posts : 2299
   Posted 12/17/2017 3:11 PM (GMT -6)   
Hi and welcome,

So happy you have officially joined us. I hope you improve daily and get better soon. If you ever have questions or just need a shoulder to lean on please reach out and post.

I wish you the very best of healing and take care, Jo

Purrrsiankitty
Veteran Member


Date Joined Dec 2016
Total Posts : 1780
   Posted 12/17/2017 3:14 PM (GMT -6)   
We are so glad you are here!
Dx May 2015 Quest pos Elisa/neg WB. Doxy only. Restest Igenix lyme pos, neg CDC, 18 +, **23-25 IND, *30 +, **31+, **34 IND, **41+, **83-93++. Retest12/16 Igen 41+, 83-93+ whole blood-plasmid pos. Retest Lyme/co's. Neg co's. Suspected Bart. 7/15 start 16 mo of doxy, azith, ceftin. Finished 09/16. Cowden start 12/16 and stop April 2017 to deal with yeast & leaky gut.Restart Buhner for BBB.

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 9729
   Posted 12/17/2017 4:36 PM (GMT -6)   
Welcome!! So glad you joined us.

Emjax
New Member


Date Joined Dec 2017
Total Posts : 2
   Posted 12/17/2017 8:57 PM (GMT -6)   
Thank you all so much for welcoming me!!

Gabybee, I am actually in broward...but work a lot in Miami. I would LOVE to know your recommendations! Also, am curious about your bee experience. I almost pulled the trigger on trying it but I chickened out.
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