Very low white blood count... from rifampin possibly??

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Evanston1
Regular Member


Date Joined Jan 2017
Total Posts : 410
   Posted 12/17/2017 8:43 PM (GMT -6)   
Anyone else have low white count? Mine has gotten lower and lower since starting rifampin/minocycline combo. Now it's less than 3! I was planning on stopping both meds on 12/27 as I prepare to go to treatment at a clinic on 1/6. However.... now I'm thinking I should stop asap. Like maybe even tomorrow. But I'm scared to stop. I don't want to totally relapse as I need to be functional.

Has anyone else had low white counts from rifampin? I've read that both rifampin and minocycline can cause low white cell counts. And I'm on both.

The weird thing is that I've been feeling better and better. I've even been back to working out again. What should I do?? I feel like I'm aned if I do and darned if I don't.

gabybee
Regular Member


Date Joined Nov 2015
Total Posts : 207
   Posted 12/17/2017 9:19 PM (GMT -6)   
Thats how I felt on rifampin... it raised my liver enzymes but I immediately relapsed and would get sick if I stopped. I wish I could offer advice. Maybe it's time to rethink your protocol and switch to something more natural
22 years old, symptoms started in 2013 and was diagnosed in 2015
HHV6/EBV
Lyme
Bartonella
MTHFR
ecoli+klebsiella
Candida

Treating with multiple vitamins + Supplements, Byron white formulas, and bee venom therapy.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32667
   Posted 12/17/2017 9:21 PM (GMT -6)   
Prior to treatment my WBC was in the 4's.

After starting Lyme treatment they were mid to high 3's.

After starting Bart treatment they were often low 3's and at one point dipped down to 2.9 (Rifampin/Minocycline).

My reg Dr wasn't concerned, nor was my LLND.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

LymeSick 🌟
Regular Member


Date Joined Aug 2017
Total Posts : 234
   Posted 12/17/2017 9:29 PM (GMT -6)   
Wow I was just watching Dr. Horowitz talk about a new Lyme co-infection virus that causes low white blood count, right when I saw your post!

Skip to the 3 minute mark if it doesn't start there:

/youtu.be/_o1jU1XohqM?t=3m

The Heartland virus. It's a new virus according to him, spread by ticks.

Evanston1
Regular Member


Date Joined Jan 2017
Total Posts : 410
   Posted 12/17/2017 9:32 PM (GMT -6)   
Thank you! That makes me feel better. I just looked up the past results of my CBCs and there has been a significant downward trend since starting rifampin/minocycline. I'm sure it will normalize when I go off. I'm praying hyperthermia helps..... I really really really want to be done with meds!!!

Evanston1
Regular Member


Date Joined Jan 2017
Total Posts : 410
   Posted 12/17/2017 9:34 PM (GMT -6)   
Lymesick.... I just read about Heartland virus. I for sure don't have this because I respond very well to antibiotics. A virus, on the other hand, does not respond to antibiotics.
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