Lingering Symptoms - Lyme

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Tsak11
Regular Member


Date Joined Sep 2017
Total Posts : 51
   Posted 12/18/2017 3:20 PM (GMT -6)   
So I went through the Lyme battle and came out on the other side. After and early diagnosis and 3.5 months of IV Rocephin, my C6 test which my LLMD who has been doing this for decades swears by came back negative. Wooohooo!!! 0.90 and below is negative for any sign of Lyme and I was 0.12. Now... A lot of symptoms have gone. Even one's that resembled Bart and Babs however, before meeting my LLMD I was treating with the dreaded infectious disease and my PCP. Neither believed in probiotics, neither recommended gall bladder protection while on Rocephin, and neither mentioned detox. So without saying I'm sure I have built up stuff. So this is my question, no Lyme but still have pain-tension and weakness in my quads, inflamed spinal nerve that gives me symptoms resembling sciatica, and mild to moderate pain in my one foot (arch and heel). My anxiety through all this has been over the top really and I'm still having trouble calming it down even with a negative test and it's because of these lingering symptoms. So, is it pushing through continuous detoxing and gut health and/or pushing through the discomfort exercise brings that can push those toxins out and break up fibrous tissues OR could this be a co like Bart? I'm obsessed. I feel like I'm so close to baseline so wanted everyones opinions on what I need to do, your experiences, and what you think it may be?? Hope all is well. Side note... I've had the co-infection conversation with my LLMD and he says he doesn't think my complaints resemble any.

Kat1000
Veteran Member


Date Joined Feb 2017
Total Posts : 670
   Posted 12/18/2017 3:33 PM (GMT -6)   
I don't have the anxiety but everything else, and LLMD says it's bart.
pos for MTHTR single mutation; Positive Igenix IgG Jan 2017
March/Apr '17: doxy, Tinizadole. 5/1 samento and exchange mino for doxy. 5/28- switch mino back to doxy, added activated charcoal. 6/9 - stopped antibiox; staying with samento, red root and houttiya and supps. 7/10 added LDN; 8/24 rifampin, samento, red root and supps

goshawk
Forum Moderator


Date Joined Sep 2016
Total Posts : 2299
   Posted 12/18/2017 4:54 PM (GMT -6)   
Hi Tsak11,
I would seriously consider Bartonella. I cant fathom why your llmd would not consider the mild to moderate pain in my one foot (arch and heel)and anxiety as possible bart.

It is well known that ticks carry co infections and other things.

You need to be symptom free for 2 months or more or you still need treatment.


Take care and hopefully others will also chime in, Jo

k07
Veteran Member


Date Joined Sep 2015
Total Posts : 2547
   Posted 12/18/2017 6:17 PM (GMT -6)   
I am not sure I agree with the fact that the neg test means no lyme. Did you have these symptoms at end of treatment? Antibody testing is not accurate. Do you mind sharing initials of who you see? I see Dr. H and he also likes c6. I was highly positive but he never said clearing infection (not sure you really can) would result in neg test.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33876
   Posted 12/18/2017 6:29 PM (GMT -6)   
Tsak11 said...
So I went through the Lyme battle and came out on the other side. After and early diagnosis and 3.5 months of IV Rocephin, my C6 test which my LLMD who has been doing this for decades swears by came back negative. Wooohooo!!! 0.90 and below is negative for any sign of Lyme and I was 0.12. Now... A lot of symptoms have gone. Even one's that resembled Bart and Babs however, before meeting my LLMD I was treating with the dreaded infectious disease and my PCP. Neither believed in probiotics, neither recommended gall bladder protection while on Rocephin, and neither mentioned detox. So without saying I'm sure I have built up stuff. So this is my question, no Lyme but still have pain-tension and weakness in my quads, inflamed spinal nerve that gives me symptoms resembling sciatica, and mild to moderate pain in my one foot (arch and heel). My anxiety through all this has been over the top really and I'm still having trouble calming it down even with a negative test and it's because of these lingering symptoms. So, is it pushing through continuous detoxing and gut health and/or pushing through the discomfort exercise brings that can push those toxins out and break up fibrous tissues OR could this be a co like Bart? I'm obsessed. I feel like I'm so close to baseline so wanted everyones opinions on what I need to do, your experiences, and what you think it may be?? Hope all is well. Side note... I've had the co-infection conversation with my LLMD and he says he doesn't think my complaints resemble any.


Great that you have made good progress..BUT, I don't agree with the 0.90 C6 test determining that you are in remission.
And...if you still have symptoms - pain/weakness in quads, inflamed spinal nerve symptoms, foot pain, and anxiety...that sounds like active infection to me.
Possibly bart and/or babesia .
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi
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