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jambermush
New Member


Date Joined Jan 2012
Total Posts : 7
   Posted 12/20/2017 12:36 PM (GMT -6)   
Hi there,

I was bitten 6 years ago, shortly before falling pregnant with my son who is now 5.

When he was 2 he was diagnosed with a complete heart block and has since been paced.

In our quest to find out what caused it, we were led to this path. My son has had a positive arminlabs result, but my gp wanted nhs tests done before proceeding.

My sons came back negative, but today mine has come back as a weak positive, but lgg is negative. The gp said RIPL are therefore treating it as a negative result.

I assume this is wrong?

I went back to the gp and questioned it, and he offered to refer me to an ID specialist, which I understand is futile.

So I’ve asked him if he will treat us.

If (and I know that is a huge if) he will, what should he be prescribing? Abx, dosage, timescale...?

Thanks in advance

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32685
   Posted 12/20/2017 12:46 PM (GMT -6)   
Hi jambermush, welcome to our community.


Even though you were bit 6 years ago, you can still have an IgM be positive. Is that what you're saying - the IgM is positive, but negative IgG?
With most diseases, IgM seroconverts to IgG within a few weeks...but with lyme, the IgM antibodies can persist for many months to years.

What is RIPL? something...post lyme?

Did you have symptoms after your tick bite?

There are many different antibiotic combinations to treat lyme. But, lyme rarely travels alone - so you are looking at coinfections - two of them being: Bartonella and Babesia. They must be considered.

So, not one antibiotic at a time...but two is needed.

Dosage depends on the antibiotics.

Timescale - many months...to a few years.

You should find a LLMD. You are in England?
I have a few options - if you want to email me. Just click on the envelope under my screen name on the lefthand side.

We encourage our new members to look through the information in the thread: "New to Lyme?..Start Here!" It's packed full of useful information.

You will want to educate yourself - so keep reading posts, ask questions...it's a great group here...
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 9729
   Posted 12/20/2017 1:02 PM (GMT -6)   
Welcome jambermush. Your poor little wee one. I so feel for him.

Girlie, RIPL - rare and imported pathogens laboratory

I googled lyme literate medical doctor in UK and found many forums where options are discussed.

There are many options if you can't find a doctor close. We have a lady here who is doing herbs in the UK. Some herbs she had a time finding, but she did a work around. So herbs are an option also.

Bee venom therapy has shown to be effective on some people also.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32685
   Posted 12/20/2017 1:43 PM (GMT -6)   
jambermush - I have replied to your email...with some options.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Szabo246
Regular Member


Date Joined Sep 2017
Total Posts : 484
   Posted 12/20/2017 3:31 PM (GMT -6)   
Jambermush I am also in the uk happy to help if I can in any way. I’m
Sure one of the reccomendations given to you from Girlie is where I have been
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