Any advice on fighting EBV w/ new Lyme infection

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COlymeFIGHTER
New Member


Date Joined Dec 2017
Total Posts : 1
   Posted 12/20/2017 1:35 PM (GMT -6)   
Hello-- just diagnosed last week with a recent Lyme infection-- burning and pain in my hands and feet since Late Oct and started the antibiotic treatment a few days ago-- Meds seem to be working by signs of the Herx.

My PCP would not test for Lyme and sent me to an allergist... Allergist was concerned it was autoimmune (she thought Lupus) so we ran every possible test out there and I also popped a positive result for an acute current reactivation of EBV. I did have mono in college as well. The combination of these bugs have been kicking my butt with like nothing I have ever experienced.

I am wondering if anyone with a similar situation has any advice on how to kick the EBV.

I consulted with a very good LLMD who is getting me on a 6 month protocol and he said I really needed to focus on the EBV and keep up with the ABX, but I am at a loss on what to do... his EBV protocol was Lauric acid, sleep, exercise, fluids and diet. He said that anti-virals are mostly a waste of time with EBV.

I am already sleeping 10-12 hours a day (not by choice), doing light/moderate exercise (anything more and I can't stay awake through dinner) , have improved my diet and I will be starting the Lauric acid today.

I'm open to any suggestions and appreciate any advice-- I'm a 38 year old male, father of 2, sole provider, healthy and fit-- really slowed down by all of this but still have to work and keep going.

RK

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32656
   Posted 12/20/2017 1:48 PM (GMT -6)   
Hi COlymeFIGHTER - welcome

Glad to hear you already have a LLMD...that's good.

Regarding the EBV - here is a thread where it was discussed on the forum.
There may be some helpful information in there.


/www.healingwell.com/community/default.aspx?f=30&m=3624155

We do encourage our new members to take a look through the information in the thread at the top of the page: "New to Lyme?..Start Here!" It's packed full of useful information.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

tickbite666
Veteran Member


Date Joined Mar 2014
Total Posts : 1604
   Posted 12/20/2017 2:01 PM (GMT -6)   
I have rotated Valtrex and Famvir anti-virals in with my ABX and herbal protocols over the years, but never made a difference for me.

I've also tried Lomatium, Monolaurin, and L-Lysine. Right now I'm using L-lysine for maintenance and I feel pretty good.

goshawk
Veteran Member


Date Joined Sep 2016
Total Posts : 2122
   Posted 12/20/2017 2:05 PM (GMT -6)   
Hi and just wanted to say welcome to our forum.

You will find knowledgeable and caring members here that understand what you are going through.

There are also some good books out there that are helpful.

"How can I get Better' by Dr. Richard Horowitz

Stephen Buhner 2nd edition "Healing Lyme"

"Unlocking Lyme" by Dr . William Rawls

New Paradigms in Lyme Disease Treatment: 10 Top Doctors Reveal Healing Strategies That Work by Connie Strasheim (Features Dr Jernigan)


Well Take care and I wish you the best of healing, Jo

gabybee
Regular Member


Date Joined Nov 2015
Total Posts : 207
   Posted 12/20/2017 7:57 PM (GMT -6)   
I have had an EBV virus with lyme- never had mono in my life, I believe I got it while my immune system was low with lyme over the last 2 years.

I've been on famvir, valtrex, all kinds of anti-virals which seemed to just make me feel worse. The best thing you can do for EBV, in my opinion, is boost your immune system to try and knock down the viral load.

When I was on antivirals I always felt like I had an antiviral "herx" of some sorts, it was really strange, even though you're not supposed to herx from it, it felt very different from my lyme herxes.

Right now I'm focusing on bartonella and lyme and I'm doing Bee venom therapy which is supposed to help with basically everything and get your immune system working better.

momem3
Regular Member


Date Joined Dec 2017
Total Posts : 22
   Posted 12/20/2017 8:55 PM (GMT -6)   
I did this protocol years ago. It was the best I felt in a long time. It’s a bit labor intensive but worth it, to me.
https://goop.com/wellness/health/the-medical-medium-and-whats-potentially-at-the-root-of-medical-mysteries/

The Dude Abides
Veteran Member


Date Joined May 2017
Total Posts : 1130
   Posted 12/20/2017 9:38 PM (GMT -6)   
COlymeFIGHTER:

Welcome to the Island of Misfit Toys!

If you've not yet done so, I suggest reviewing the New To Lyme? Start Here! thread. It's full of great information.

Also, people take many different approaches, in an effort to help support their bodies. This includes Pharmaceuticals, Herbs, Homeopathy, Supplements, Ozone, Rife Machine, Bee Venom Therapy, Coffee Enemas, Detoxing, Fasting, Elimination Diet, Sleep, Stress Management, Massage, Exercise, and more. In some cases, people may be using a combination of these approaches.

Therefore, there's no "one way" to healing. Obviously, if someone had "the" magic formula, none of us would be sick. And, what works for one person may not work for another person. Heck, what works for one person now may stop working for that same person next week or next month.

Thus, I encourage flexibility and patience in your approach.

With that segue, following is a video that I watched last night. I like his philosophy and approach to helping support patients' bodies.

Helping the Body Beat Lyme Disease - Dr. David Jernigan, Hansa Center for Optimum Health
/youtu.be/u8_dyHJWR7U

Here are some other resources you may find interesting:

Lyme Disease: Why An Antibiotic Bug Bomb Is Not The Answer!
bit.ly/2shKR2J

Heavy Metal Toxicity: A Modern Day Epidemic Not Being Addressed
bit.ly/2sWbS9N

5 Steps to Restoring Health Protocol (AudioBook)
bit.ly/2rUEJNB

I'm not suggesting that the above approaches are the only way (or, even the RIGHT way) for you or anyone. It's just about being an informed consumer and then making the choice that feels appropriate.

Remember, I'm not a Doctor and I don't play one on TV! turn

Good luck and Godspeed,

The Dude

The Dude Abides
Veteran Member


Date Joined May 2017
Total Posts : 1130
   Posted 12/20/2017 9:43 PM (GMT -6)   
momem3 said...
I did this protocol years ago. It was the best I felt in a long time. It’s a bit labor intensive but worth it, to me.
/goop.com/wellness/health/the-medical-medium-and-whats-potentially-at-the-root-of-medical-mysteries/


momem3,

It's good to find someone on here that's followed Anthony's protocol -- and, had success. How are you feeling now?

Sincerely,
The Dude

Spanish
Regular Member


Date Joined Sep 2017
Total Posts : 137
   Posted 12/26/2017 8:43 AM (GMT -6)   
Op your story sounds similar to mine, I too am 38 yo male, father of 2 and sole provider, I was diagnosed with lyme and EBV around 4 months ago.

This also kicked my butt like nothing I have experienced before, For the EBV the only thing that seemed to help me was as much water as I could drink and rest. Any kind of exercise made me feel terrible but not sure if this was the lyme or the EBV. I know its hard but patience is key.

I started ABX a couple of months ago and have started to feel a bit better the past couple of weeks just hoping it continues, just this week I was re-tested for EBV and it came back negative.

I wanted to post vecause when i was at my worst i felt like this would never improve, as hard as it is, keep positive try not to stress, take things easy and you will make progress.
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