Lyme results?? I was bit around 8 years ago...

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TylerRho
New Member


Date Joined Dec 2017
Total Posts : 3
   Posted 12/21/2017 7:28 AM (GMT -6)   
Lyme Disease Ab, Quant, IgM 1.16 index 0.00 - 0.79 index
Negative <0.80
Equivocal 0.80 - 1.19
Positive >1.19
IgM levels may peak at 3-6 weeks post infection, then
gradually decline.


P93 Ab. Absent
P66 Ab. Present
P58 Ab. Present
P45 Ab. Absent
P41 Ab. Present
P39 Ab. Absent
P30 Ab. Absent
P28 Ab. Absent
P23 Ab. Absent
P18 Ab. Absent
Lyme IgG Wb Negative
Positive: 5 of the following
Borrelia-specific bands:
18,23,28,30,39,41,45,58,
66, and 93.
Negative: No bands or banding
patterns which do not
meet positive criteria.

P41 Ab. Absent
P39 Ab. Absent
P23 Ab. Present
Lyme IgM Wb Negative


From reading around, Ive heard that p23 is a given factor in only Lyme bites. I suppose my question to you all is, Reading into Chronic Lyme symptoms i could say that i have been quiet effected in the last 5 years or so from many of the symptoms.

Is it too late for treatment? I have not yet followed up with my PCP regarding the test results. but am assuming he may just brush it off, i live in the northern VA area, and was bit at a posted Lyme Tick habitat. This is a regional park that is located near what use to be Lorton Federal Prison. Billboards around the park state that Lyme infested Ticks have been released into the area.. Now With these results would you recommend me having an ingenex test done? Are their tests more in depth? or do they simply qualify you as positive for less bands? Just curious as to all this and how many of my symptoms over these past years have been related to chronic lyme?

Thanks all

k07
Veteran Member


Date Joined Sep 2015
Total Posts : 2502
   Posted 12/21/2017 7:39 AM (GMT -6)   
If you have the funds and want another test, you could do IGeneX or DNA Connexions. The latter will give some coinfection results and you don't need a doctor.

If you've had symptoms since the bite, an LLMD would treat you based on the band 23.

I was in NC (very close to VA border) when I was infected. Tick borne illness is a much bigger issue in the South than the CDC lets on. Rocky Mountain Spotted Fever is very prevalent too.

Missouri
Regular Member


Date Joined Sep 2017
Total Posts : 337
   Posted 12/21/2017 8:42 AM (GMT -6)   
I’m guessing that was a Labcorp test. I honestly wouldn’t pay for more testing unless you have extra money to burn. I would think most LLMD’s would use that result plus clinical judgement to make diagnosis without additional testing.

I think you should decide if you want to treat. If so, antibiotics, herbs, and or alternatives.

I would interpret your test result as positive. Mine was fairly similar 41, 58, 66

Let me guess- twitching, fatigue, brain fog, leg cramps, vision/eye issues.... etc.

Most of the people I have seen with 41, 58, 66 seem to have similar symptom profiles

TylerRho
New Member


Date Joined Dec 2017
Total Posts : 3
   Posted 12/21/2017 10:19 AM (GMT -6)   
It is very strange indeed to think about. turning 29 this year, Maybe i'd assumed a lot was having to do with just getting old.. coming from my teens, i was super coordinated and spry as a tack.

Been through chronic joint pain, fatigue, lethargic feelings, some diagnosed with things such as pre femoral pain in my knees.. which strangely enough the pain vanished without a trace within a few weeks. not having performed all the doctors stretches to loosen my ham string's that were supposedly causing this unbearable joint pain. these symptoms became prevalent id say 2-3 years after my infection. but have tapered off..

Now fast forward a few more years to current times. Haven't been on insurance for many a years. being newly married i've had the benefit of getting in to have a full physical done. I have chronic bowel issues to have gotten worse this past decade, I have arthritic pain, Am now noticing an abnormal reaction to lights such as the sun off of cars.. I use to just squint a little and drive, But now i'm finding it hard to have my eyes open at all if i do not have sunglasses while driving during sunny periods. freezing cold extremities 75% of the time. My feet are constantly ice cold to the touch. Also cramping and leg pain are an issue for me.

now I've read into this "brain fog" as they call it. I can say I've noticed it tougher to concentrate, especially learning new tasks/reading is almost gone to me I feel. i find myself traversing back over sentences multiple times throughout paragraphs. and also the sudden blank.. I have times that my thoughts are seemingly lost as they roll off my tongue. As I said I've mainly attributed this to my not being actively engaged in new schooling and or simply aging. however it seems more and more of an issue the more time progresses.

I cant say ive noticed any twitching in the past years, which I should consider to be good.

Are treatments situational per person/case alike?

RUSS504
Regular Member


Date Joined Dec 2015
Total Posts : 36
   Posted 12/21/2017 11:39 AM (GMT -6)   
29 years old is young! Please find a LLMD (Lyme Literate Medical Doctor). Your symptoms sound similar to mine. Every person is different and needs to be treated differently with Lyme. If you haven't already you need to keep a log of your symptoms.

If enable your email one of the moderators can send you suggestions of where to find an LLMD. Have you read all the information in the New to Lyme at the top of the page? On there is Horowitz's symptom checker which you can do and get an idea of how many symptoms you have.

I will say after 2years and 4months I am feeling so much better. It just takes time.

LymeSick 🌟
Regular Member


Date Joined Aug 2017
Total Posts : 234
   Posted 12/21/2017 11:47 AM (GMT -6)   
Wait, you have these positive?

P66 Ab. Present
P58 Ab. Present
P41 Ab. Present

That definitely sounds like Lyme.
In fact:


66 = cross-reactive for all Borrelia, common in all bacteria
41 = flagellin protein of all spirochetes; this is usually the first to appear after a Bb infection
58 = unknown but may be a heat-shock Bb protein


Also, the idea that igm = recent and igg= chronic isn't necessarily true.


I read an article by a very well known lyme doctor, and he says, often in patients, the body keeps seeing the Lyme as a "new virus" even after many years. It keeps fighting it as a "new virus".


I know this is true because I was igm positive after many years. And when I started antibiotics I herxed like there was no tomorrow. Same thing happened on herbs.


You can do iGenex but to be honest, the results you have say a lot already. Maybe you should just start treatment.

TylerRho
New Member


Date Joined Dec 2017
Total Posts : 3
   Posted 12/21/2017 12:28 PM (GMT -6)   
I have enabled email. Would love a little info regarding LLMds in my area.. My next stop is the new to Lyme post. Thank you all for this wonderful help, Here i've been getting laughed at for the past years, always complaining and siting lyme..

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 9729
   Posted 12/21/2017 12:51 PM (GMT -6)   
Billboards around the park state that Lyme infested Ticks have been released into the area..

Is this true? They intentionally released ticks into the area? Good grief.

By the way, welcome here.

Borrelia-specific bands:
18,23,28,30,39,41,45,58,

Notice you have 2 of those bands. And on the IgM you have band 23 present.

Nothing but lyme can make those bands positive. I think it is strange that a doctor can say you "kinda" have lyme.

Lyme should be based on clinical diagnosis. If you have lyme symptoms and those bands reactive, you have lyme.

Here are some sites I used to find my llmds.

/sites.google.com/site/lymedoctors/virginia

[url]/globallymealliance.org/education-awareness/find-medical-professional/[url]

[url]ilads.org/ilads_media/physician-referral/[url]

[url]/www.lymediseaseassociation.org/[url] -- Go to Dr. Referral tab

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32680
   Posted 12/21/2017 8:07 PM (GMT -6)   
TylerRho said...
Lyme Disease Ab, Quant, IgM 1.16 index 0.00 - 0.79 index
Negative <0.80
Equivocal 0.80 - 1.19
Positive >1.19
IgM levels may peak at 3-6 weeks post infection, then
gradually decline.


P93 Ab. Absent
P66 Ab. Present
P58 Ab. Present
P45 Ab. Absent
P41 Ab. Present
P39 Ab. Absent
P30 Ab. Absent
P28 Ab. Absent
P23 Ab. Absent
P18 Ab. Absent
Lyme IgG Wb Negative
Positive: 5 of the following
Borrelia-specific bands:
18,23,28,30,39,41,45,58,
66, and 93.
Negative: No bands or banding
patterns which do not
meet positive criteria.

P41 Ab. Absent
P39 Ab. Absent
P23 Ab. Present
Lyme IgM Wb Negative


From reading around, Ive heard that p23 is a given factor in only Lyme bites. I suppose my question to you all is, Reading into Chronic Lyme symptoms i could say that i have been quiet effected in the last 5 years or so from many of the symptoms.

Is it too late for treatment? I have not yet followed up with my PCP regarding the test results. but am assuming he may just brush it off, i live in the northern VA area, and was bit at a posted Lyme Tick habitat. This is a regional park that is located near what use to be Lorton Federal Prison. Billboards around the park state that Lyme infested Ticks have been released into the area.. Now With these results would you recommend me having an ingenex test done? Are their tests more in depth? or do they simply qualify you as positive for less bands? Just curious as to all this and how many of my symptoms over these past years have been related to chronic lyme?

Thanks all


Hi Tyler, welcome to our community.

Band 23 is lyme specific and that plus the fact that you were bitten points to lyme disease. I would take these test results along with your symptom list to a LLMD appointment.

To find a LLMD, you can start a new thread: "looking for LLMD in/near____" and fill in the blank.
You can also send me an email and I will check if I have some LLMD's listed for your location.

We encourage our new members to read through the information package in the thread: "New to Lyme?..Start Here!" (it sits at the top of the page)

One of THE best LLMD's Dr. H. listed these bands as significant to backing up a clinical diagnosis:

23(OspC), 31(OspA), 34(OspB), 39, and 83-93 kDa bands on the Western Blot.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi
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