Early onset alzheimers

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gfields
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Date Joined Oct 2015
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   Posted 12/21/2017 8:12 PM (GMT -6)   
Has anyone here been tested for early onset alzheimers? What were your results?

I was thinking about getting tested.

Girlie
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Date Joined May 2014
Total Posts : 32601
   Posted 12/21/2017 9:08 PM (GMT -6)   
No - I haven't - isn't there a quiz you can do online?


I know my MIL was tested because of her cognitive/memory decline and one of the tests is : they give you three names of items at the start of the test...and tell you that they will be asking you what they are later on.

I don't know if that was part of a test specifically for Alzheimer's though.

I'm not sure I want to know...at this point.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

magoo2
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Date Joined Mar 2015
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   Posted 12/21/2017 10:41 PM (GMT -6)   
https://www.youtube.com/watch?v=6D5aA_-3Ip8

If needed here is a great study that reversed memory decline

astroman
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Date Joined Mar 2014
Total Posts : 4879
   Posted 12/22/2017 12:28 AM (GMT -6)   
Isnt "oldtimers" disease is to the brain what fibromyalgia is to the whole body? Just a label of symptoms right?

Just how reliable is this test? Prob not to much. How can you make a test to diagnose a large set of mental symptoms?

A lyme literate phyc will say its lyme,...... its all opinions. They recognize the symptoms of Alzheimer's are in many ways, the same as lyme.

Infections, hormones, genetics (methalation), metals, this all effects mental cognitive.
Had initial lyme symptoms late 80's, then again w/with bullseye early 90's. Ended ABX for Lyme in 2015. Rebuilding / repairing / fine tuning since then; member "10 Percenters Lyme Club". What an adventure this has been. Did I mention Hashimoto sucks?

gfields
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Date Joined Oct 2015
Total Posts : 956
   Posted 12/22/2017 2:11 PM (GMT -6)   
I'm not sure astroman. I dont know enough about it.

I'd like to get tested by a neuro for this.

astro, you got lyme in the 80s, and then you had the rash in the 90s? Excuse my naivete, but I was always under the impression that you only saw the rash as soon as you got bit. Is that not the case? You can get the rash at any point in time? I know I've got the cats claw rash, but have never had the bulls eye.

astroman
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Date Joined Mar 2014
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   Posted 12/22/2017 2:42 PM (GMT -6)   
gfields said...
I'm not sure astroman. I dont know enough about it.

I'd like to get tested by a neuro for this.

astro, you got lyme in the 80s, and then you had the rash in the 90s? Excuse my naivete, but I was always under the impression that you only saw the rash as soon as you got bit. Is that not the case? You can get the rash at any point in time? I know I've got the cats claw rash, but have never had the bulls eye.


Spent a lot of time in the north woods in mn and wisc starting in the 80's but had occurrence of ticks on me my whole life since a boy is the 70's, so its quite possible/probable that I was infected many times.

Since there is something about us that makes us develop Lyme vs some who will carry but without symptoms, so it seem highly likely of multiple occurrences I would think.

I did however have a "title wave" of symptoms at once the same time of a bulls eye which was very early 90's I think. Time flies.

lyme literate phyc are rare, but I did see one who is now retired. Was a very interesting physical/mental 10 hr test. He ruled out other possibilities to which are noticed in that filed of study, as sometimes he found other things to be the cause. It was a $1200 2 day exam which to my surprise, insurance actually covered. I also had a brain MRI which showed no lesions.

astroman
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Date Joined Mar 2014
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   Posted 12/22/2017 2:51 PM (GMT -6)   
Interesting note: there is a gene identified in the 23andme data which is known to exist in "alzheimers" patients. They've studied it enough to know this at least.

I dont have double copies of this gene (yippie). Yet I had nuero lyme real bad. Could hardly talk. People thought I was high or drunk.

I still have lyme brain, just less of it. But some hashimoto people have it forever too, and drs do nothing.

Have tried and muscle tested many herbs/supps for this, some make it better some worse. I talk much better, cant type worth beans though. I do need coffe in the AM for my brain to work, then I combine that with mellow hers/supps to take the caffine jitters away. Green tea does that itself (two in one deal). but its real weak and I dont like the taste.
Had initial lyme symptoms late 80's, then again w/with bullseye early 90's. Ended ABX for Lyme in 2015. Rebuilding / repairing / fine tuning since then; member "10 Percenters Lyme Club". What an adventure this has been. Did I mention Hashimoto sucks?

astroman
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Date Joined Mar 2014
Total Posts : 4879
   Posted 12/22/2017 3:21 PM (GMT -6)   
I'm a firm believer that the shorter you have this, the less after effects and more 100% healing. Notice the people who heal are here for a year and gone.

Many who have this a long time slowly go away and live with it, but usually in better shape than when they came here.

But constant worry about it does not help either. Some peoples really fried brains got better even if not 100% thats still good.

Being a realist, I will not mislead and say everyone will heal 100%, because thats just not true. At least not with the current information we have. That said, my brain was really cooked, had to change to a less thinking career -to a "job". I think much better most days, and the joksters at work no longer have the upper hand LOL. My brain improved without using any of the weird of beat lyme therapies.

After 50, I no longer wish to spend all my retirement on things that might not even work. I met retires who are now broke and still not 100% healed. If you have no "fall back" going broke is not an option in my opinion.

Kct
Regular Member


Date Joined May 2016
Total Posts : 172
   Posted 12/22/2017 9:05 PM (GMT -6)   
If your serious you need to get a formal Neuropsyche exam. Preferably by someone experienced doing Lyme patients.

gfields
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Date Joined Oct 2015
Total Posts : 956
   Posted 12/22/2017 9:08 PM (GMT -6)   
Yeah, money-wise Lyme has really screwed me. I was thinking about that yesterday. I have pretty much 0 retirement savings. Probably will not ever be able to retire.

I still have a career that requires a lot of thinking, but I will probably quit my job soon and try to get disability through the insurance company. Probably won't happen, but it's worth a shot I suppose.

My brain is really fried. I've been treating for 5 years, but I haven't had any improvements. It just seems to get worse. I'm scared I'll end up in a nursing home drooling on myself. That is my fear.

I guess my plan is to make it another 6 months at my current job, then tell my boss I have lyme and I need to leave, and then file for disability. Piss through all my savings and aggressively try to treat this disease with dapsone that Horowitz talks about. My current problem is I can only treat on the weekends. I think if I treat every day for 2 years, I might have a chance to get rid of it. I think lyme has an 8 month life cycle, so if I treat every day for 2 years, I might have a chance of eradicating it, and getting my life back.

If I tested positive for early onset alz, then it would be one more thing that I might be able to use to get disability.

Kct
Regular Member


Date Joined May 2016
Total Posts : 172
   Posted 12/22/2017 9:08 PM (GMT -6)   
Read " The End of Alzheimers " by Dr Dale Bredeson.

gfields
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Date Joined Oct 2015
Total Posts : 956
   Posted 12/22/2017 9:54 PM (GMT -6)   
watched youtube video on this. sounds interesting
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