Intro and question about workout videos

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everseeking
Regular Member


Date Joined Feb 2017
Total Posts : 30
   Posted 12/26/2017 11:24 AM (GMT -6)   
Hey everyone. This is my first post but I've been reading here for about a year now. You guys have already helped me more than I can say! I've had lyme for about a year and a half. We caught it fast, treated it with doxy for 21 days, and then moved on to natural stuff when I still felt like crap and the ID Dr told me that the lyme IS gone but that I may continue to have symptoms for the rest of my life! eyes

I did Vital Plan for a while but was getting worse instead of better... I realized after quiting that I was probably herxing but I was in denial at the time. (Their support system is awesome though and if I'd have listened more I may have done better on it. I have no complaints about their product or their company and continue to learn from Dr. Rawls even though I no longer use their products.)

In March I started Jernigans neuro antitox after reading about it here and I felt so immediately better! Because I felt so much better on that I went ahead and started their lyme protocol and have stayed on that since. I still have my good days and bad but even my bad days now are better than my good days before starting it.

I also have misc stuff that I take on top of that... Multivitamins, probiotics, teasel, colostrum, glutathione spray, and l-lysine are the main ones right now. I try to stay on top of detoxing with dry brushing, epsom salt baths, and charcoal when needed. Next month I plan to start The Life Tree's parasite cleanse because I feel like there's more than just lyme that needs addressed and that's where I think I need to start... I took mimosa pudica for a while and I herxed like crazy until I had to back off and then eventually stop. I've been working at getting myself better prepared before starting anything for parasites again... Getting my diet cleaned up again, getting my bowels moving regularly again... just getting rest and knowing that I'm in for hell when I start again and mentally preparing myself for that... The Life Tree seems to have a decent product for supporting your liver and colon while cleansing so I'm hoping that that will help next time... But I'm still nervous. sad So I'm getting past the holidays and then starting again, that way if it goes bad and I feel like crap (can I say that here?) I am at home and have no plans to flake on and no fun to miss out on if I can't function like a normal human being. ;)

Anyways... That's the intro... Sorry so long... rolleyes

Now my question... I've been trying to build myself back up and do some light exercising now that I can. I've been doing Leslie Sansone's Walk Away The Pounds, 2 miles is all I can do right now... but I'm working on it..., and I enjoy it but I need some variety. Does anyone have any favorite workout videos that are fairly light? I didn't realize how out of shape I was in until I started doing Walk Away The Pounds again... Any ideas would be greatly appreciated! And anything available for free on youtube like sites even more so! ;)

Thanks for reading and for any thoughts! <3

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32695
   Posted 12/26/2017 12:14 PM (GMT -6)   
Hi everseeking - welcome!

"We caught it fast, treated it with doxy for 21 days, and then moved on to natural stuff when I still felt like crap and the ID Dr told me that the lyme IS gone but that I may continue to have symptoms for the rest of my life! "

Unfortunately you were under -treated with the antibiotics. When caught early, it needs to be treated until symptom free plus 4-8 weeks longer.

But, it's good that you are continuing to fight it. No, your lyme isn't gone.
ID Dr.s aren't worth listening to unless they are lyme literate.

It sounds like the Jernigan's products are working for you..so far.

It's important to treat the co-infections - not just lyme. Lyme rarely travels alone. Are you just on the Lyme treatment?
You should look into treating bartonella and babesia as well.

Re: Physical rehab. I see a physiotherapist to help guide me.
Make sure you don't overdo it -especially with the Cardio.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 4880
   Posted 12/26/2017 12:16 PM (GMT -6)   
Hello and welcome to the club.



Infectious Dis Dr usually dont treat long enough. What was his proof that the lyme is gone?

There can be some lasting symptoms, but its important to first treat it for at least 3 months from a new bite.

How is your gut health? Do you understand its importance in the immune system?

Sorry I cant help you on video selection. I will say a harde/firmer foam body fitness roller is important and will make sore muscles fell better used before and after workouts.- No matter what the workout is. Good $25-$40 investment to used the rest of your life.

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 9729
   Posted 12/26/2017 1:25 PM (GMT -6)   
Welcome!!!

Here is a good article on exercise -- www.tiredoflyme.com/exercise.html

I think my best advice is to not overdo anything. You will pay for it.

Only you will know if you have gone too far. Yoga, QiGong, using a mini trampoline, walking or other gentle exercises are advised for beginners.

Since you can do 2 miles, I don't think you are a beginner. When you are walking you can carry a 2 lb weight in your hands. You can strap sand bags onto you ankles. So, there are ways to just up your walk.

Any physical education teacher at any school would love to give you hints. They love to Teach!

Here is a good read. I know it is not the same disease, but it is a great analogy. It's called the spoon theory.

/butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/

everseeking
Regular Member


Date Joined Feb 2017
Total Posts : 30
   Posted 12/26/2017 1:31 PM (GMT -6)   
Girlie, I'm just doing the Lyme treatment. I've looked at co-infections and none seem fitting for me. The main thing that I still have on my bad days is exhaustion and nausea.

Astroman, her proof that it was gone was that she had given me 21 days of doxy and her computer said that that is the cure for lyme! Lol. I walked out knowing that I wasn't done, that it wasn't gone, that she is incompetent (at least as far as lyme goes), and went immediately on Vital Plan.

My gut is a mess. I do understand it's importance and am working on it. I'm trying to eat clean but I'm struggling, I admit, especially with the holidays and traveling to family's homes. I told my husband over the weekend that I was tired of feeling like crap and recommitted to eating foods that build me up. My gut was at it's best before Lyme after I did a whole30. I felt great then but that's not a sustainable diet and they don't mean it to be long term. I figured out what foods did and didn't work for me during that time... and then I slowly started adding foods back in that didn't make me feel good because I have emotional ties to food and haven't broken them... And then I got lyme and basically lived off bread and crackers for several months because the nausea was so bad. It destroyed my gut again and I gained 30 lbs. sad Now the nausea is rare and I've found other ways to deal with it when it happens so I can get back to eating better now that I've made the decision and the commitment to do so.

I'm also taking LD colustrum to help with gut health. I made bone broth... and then have been clueless as to what to do with it! I used some in a paleo potato soup but otherwise it's just sitting there waiting for me to figure out what to do with it.

I have a roller from an injury a long time ago... I hadn't thought to use it with my lyme aches! Thanks!

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 9729
   Posted 12/26/2017 1:48 PM (GMT -6)   
I love bone broth. It is the liquid in most anything I make. My soups have no water, just bone broth. My turkey dressing had bone broth in it. My faux garlic mashed potatoes (cauliflower) have bone broth in it for liquid. I cook beans in bone broth.

I drink bone broth like tea.

Hubby puts it in his smoothies along with tons of other stuff - this tastes weird to me, but not bad.

Don't put too much pressure on yourself this time of year. It will soon be 2018 and you can make a new resolve then. Just be nice to yourself.

everseeking
Regular Member


Date Joined Feb 2017
Total Posts : 30
   Posted 12/26/2017 2:03 PM (GMT -6)   
Thanks PeteZa! I'm trying to be kind to myself. That's really the only thing I can do this time of year, unless I want to send myself into a depressive spiral from my self condemnation! I've learned through years of therapy to be gentle on myself when I make mistakes and just do a little better next time.

I'm taking it easy on my workouts. Even though I do 2 miles of Walk Away The Pounds I don't go as hard as they do in the video. The first time I started trying to work out, back in April after I'd started taking Jernigans and was feeling so much better, I did some crazy workout, overdid it, and set myself back. I'm being much more careful this time. I need to get my rebounder out! I'd forgotten about it. I've seen it mentioned here many times but I keep forgetting to actually get it out. I'm going to do that as soon as I hit submit.

Thanks so much for the spoon post! That is a great analogy! Many of my spoons each day go to homeschooling my kids. When I first got sick I tried to keep up with everything and I was too tired and my boys felt it. I had to learn quickly to prioritize and their schooling was at the top of the list. I'm doing better now and usually have enough spoons for the important things, I even have enough to clean the house most of the time now, but I often still don't have any left over by the end of the day to do extra stuff like socializing. I took a couple of days at the beginning and taught my boys to cook some basic food because I wasn't consistently able to do it and then we'd cuddle on the couch and I'd read and help them with their work until I needed to take my 3-4 hour nap and then we'd finish their school after I woke up! I've still got a ways to go but I look back and see how far I've come from then! <3

Post Edited (everseeking) : 12/26/2017 1:06:44 PM (GMT-7)


PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 9729
   Posted 12/26/2017 2:16 PM (GMT -6)   
Everseeking oh gosh, more power to you to be able to home school and have lyme. I did not take care of the house very well at all and barely took care of me.

I was a slug around the house for months when I first got ill. I really got the wind knocked out of my sails. I was not used to being sick.

Little by little and I swore I was going to paint the word patience on my living room wall so I would remember it.

Mom's/wives have it tough, in my opinion. I look at the members here with kids and am amazed how they do it.

Kudos to you for finding what works for your family.

astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 4880
   Posted 12/26/2017 2:30 PM (GMT -6)   
everseeking said...
Girlie, I'm just doing the Lyme treatment. I've looked at co-infections and none seem fitting for me. The main thing that I still have on my bad days is exhaustion and nausea.

Astroman, her proof that it was gone was that she had given me 21 days of doxy and her computer said that that is the cure for lyme! Lol. I walked out knowing that I wasn't done, that it wasn't gone, that she is incompetent (at least as far as lyme goes), and went immediately on Vital Plan.

My gut is a mess. I do understand it's importance and am working on it. I'm trying to eat clean but I'm struggling, I admit, especially with the holidays and traveling to family's homes. I told my husband over the weekend that I was tired of feeling like crap and recommitted to eating foods that build me up. My gut was at it's best before Lyme after I did a whole30. I felt great then but that's not a sustainable diet and they don't mean it to be long term. I figured out what foods did and didn't work for me during that time... and then I slowly started adding foods back in that didn't make me feel good because I have emotional ties to food and haven't broken them... And then I got lyme and basically lived off bread and crackers for several months because the nausea was so bad. It destroyed my gut again and I gained 30 lbs. sad Now the nausea is rare and I've found other ways to deal with it when it happens so I can get back to eating better now that I've made the decision and the commitment to do so.

I'm also taking LD colustrum to help with gut health. I made bone broth... and then have been clueless as to what to do with it! I used some in a paleo potato soup but otherwise it's just sitting there waiting for me to figure out what to do with it.

I have a roller from an injury a long time ago... I hadn't thought to use it with my lyme aches! Thanks!


This will help your gut: /www.healingwell.com/community/default.aspx?f=30&m=3953707

I did whole30 for 3 months, then did paleo another 6, now I'm about 90% paleo. It cured an elevated antibody for the last 20 years. Sugar, glutan, and all milk products are bets avoided in my case. I took digestive enzymes with read meats, dont need for chicken.
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