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Spanish
Regular Member


Date Joined Sep 2017
Total Posts : 31
   Posted 12/26/2017 12:53 PM (GMT -7)   
Hi, Im pretty new to all this and it has been a pretty steep learning curve I have to admit..

This forum and its members are so helpful when you have no idea where to turn and it has been a great place to educate myself byt I have also found it to be a little dissheartening due to the fact that there are not so many stories of people beating this horrible disease.

I would like to think this is due to the fact that the people who get better just dont spend time on the forums anymore but I just dont know.

Maybe It would be a good idea to have a separate section where people can tell their stories and also a success section where people can read about people who got better and how they achieved it.

I feel It would give people hope and help them remain positive which can only be a good thing or am I missing something?

Post Edited By Moderator (Girlie) : 12/27/2017 10:49:10 AM (GMT-7)


astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 4214
   Posted 12/26/2017 1:02 PM (GMT -7)   
Every new years, some come back to say hello. Some people here have put them together on a post to last year.

When most heal, they get on with their life, as this what an extended nightmare. They now have better things to do.

Some almost healed (better than nothing) appear time to time.
Had initial lyme symptoms late 80's, then again w/with bullseye early 90's. Ended ABX for Lyme in 2015. Rebuilding / repairing / fine tuning since then; member "10 Percenters Lyme Club". What an adventure this has been. Did I mention Hashimoto sucks?

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 28806
   Posted 12/26/2017 1:12 PM (GMT -7)   
Here's a link to some of the success stories

/www.healingwell.com/community/default.aspx?f=30&m=3562412



EDIT: I realize that the success story should be posted in it's own thread and then just the link posted here.

If you have a healing story...start a new thread so it has it's own 'space' and we can add the link to the thread of successes.
Do not add it to the thread (linked above)

Sorry for the confusion!!!
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Post Edited (Girlie) : 12/27/2017 10:50:37 AM (GMT-7)


astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 4214
   Posted 12/26/2017 1:16 PM (GMT -7)   
I just made a post for new ones.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 28806
   Posted 12/26/2017 1:18 PM (GMT -7)   
astroman said...
I just made a post for new ones.


I'm thinking we should just keep building on the original one?
That way they're all in one thread?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 9581
   Posted 12/26/2017 1:20 PM (GMT -7)   
Girlie said...
Here's a link to some of the success stories



Girlie that is just mine and not the list of success stories.

This is a better link --

/www.healingwell.com/community/default.aspx?f=30&m=3562412

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 28806
   Posted 12/26/2017 1:22 PM (GMT -7)   
I think it's fixed now - not sure what happened
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 4214
   Posted 12/26/2017 1:33 PM (GMT -7)   
Girlie said...
astroman said...
I just made a post for new ones.


I'm thinking we should just keep building on the original one?
That way they're all in one thread?


Girlie- OK, but maybe add to the title though. Like "success stories 2017 post here." That's a little more directive.

Then delete mine.

Spanish
Regular Member


Date Joined Sep 2017
Total Posts : 31
   Posted 12/27/2017 9:52 AM (GMT -7)   
Fantastic just what I was looking for... we could all do with some positivity from time to time.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 28806
   Posted 12/27/2017 10:52 AM (GMT -7)   
astroman said...
I just made a post for new ones.



Sorry for the confusion Astroman.

I think each healing story should be a separate thread...and then just a link to it in the 'Success stories'
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Post Edited (Girlie) : 12/27/2017 6:27:29 PM (GMT-7)


astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 4214
   Posted 12/27/2017 6:20 PM (GMT -7)   
Well, actually I was talking about a place for posting new threads on this. Hoping they (posters) would see the title and post here. There should be new posts pretty soon, usually a few come back around new years.

Linking works too, to past or new success stories.

astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 4214
   Posted 1/2/2018 2:03 PM (GMT -7)   
bumped up for new stories to be linked here.

Post Edited (astroman) : 1/3/2018 12:10:38 AM (GMT-7)


dacarte3
Veteran Member


Date Joined Feb 2016
Total Posts : 1729
   Posted 1/2/2018 7:46 PM (GMT -7)   
as many as 1 in 15 people have lyme and co. That's approximately 500M (half a billion) people worldwide.

a minscule percent of those people are on online forums or writing a blog about their lyme disease. People treat, get better, and then move on with life.

I even did that myself the first time I put lyme into remission.

Then when I relapse I came crawling back with my tail between my legs. Now as I have lyme 90%+ back into remission once again, I've decided I will not do that again.

I'm consistently back on to share hope and advice. I'm not just going to use this place (the place that taught me so much about getting well and helped keep my sanity during really dark times) only when I'm down and out.

But to stick around and give back how I can.

Edit: to give some perspective. I was listening to a podcast where a guy was being interviewed. The interview had NOTHING to do with lyme disease. But through the natural progression of the conversation of this 2hr+ podcast lyme disease happened to come up.

And the guest said "oh yea I had lyme disease" and the conversation continue for about 30 minutes on lyme disease. He had it for 3 years undiagnosed. He was in terrible shape. At one point bed ridden. Aand it took 3 years for him to fully recover. He shared his complete story. Once again the interview and podcast originally had nothing to do with lyme disease.

It just shows you how common it is and how people get, get better, and move on.
Lyme (Igenex) - Positive IFA and WB bands 23, 31, 41
Ehrlichia (Igenex)
Mycoplasma (Labcorp) - Score: 595

ABX Treatment: 03/2016-04/2016; 7/2017-9/2017
Buhner Protocol for Lyme and Mycoplasma: May 2016 - Dec. 2016; 8/2017 - Present

Post Edited (dacarte3) : 1/2/2018 7:54:20 PM (GMT-7)


astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 4214
   Posted 1/2/2018 9:24 PM (GMT -7)   

1000Daisies
Veteran Member


Date Joined Apr 2016
Total Posts : 2146
   Posted 1/2/2018 9:55 PM (GMT -7)   
Just my opinion, but I would love to see a "2018 Success Stories" thread with links to those who post in 2018 with their successes. Owned by the moderators (who tend to stay on these boards for longer periods of time).

Then, we could have a master post listing links to those threads:
"2018 Success Stories"
"2017 Success Stories"
"Pre-2017 Success Stories"

I think some of us would like to see success stories from those we have gotten to know while we posted here. smile (Of course, we'd love to see them all, but it's nice to see those success stories of people we've been personally talking to for the past year / months / whatever.)
Kid#1: Extremely sick for several years, very difficult to treat, but doing great now!
Kid#2: Still sick now despite being treated for years but doing better (not well yet).
Kid#3: Generally good but relapsing off/on.
Me: Adv Labs positive 2016 (suspected I passed to my kids)-not as sick as others, mostly battling fatigue and yeast issues (heart/kidney issues resolved)
Treating with herbals now.

astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 4214
   Posted 1/3/2018 12:18 AM (GMT -7)   
1000Daisies- Sounded good to me at first too (just 2018), but were not exactly overflowing with new stories (ex; healed in 2018), much less older ones.

We had more posting this the last few years. But this week/year is still young.

And although partial healing is a partial success, but doesn't full recovery sound better? I've been "partial" for almost two years. Sounds greedy, but I'd like more than that! smile

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 28806
   Posted 1/3/2018 12:43 AM (GMT -7)   
Hey Astroman - do you consider yourself partial - not fully healed?

I was thinking you were fully healed because you've cleared all active infection...and now are just rebuilding your weaker areas - like the muscle/fascia...etc.
You're not treating anymore, right?

It's really difficult to determine what is fully healed, isn't it. There can be areas that need rebuilding...after the years of the unchecked infection.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

NicHostetler
Regular Member


Date Joined Mar 2017
Total Posts : 387
   Posted 1/3/2018 6:57 AM (GMT -7)   
dacarte3 said...
as many as 1 in 15 people have lyme and co. That's approximately 500M (half a billion) people worldwide.

a minscule percent of those people are on online forums or writing a blog about their lyme disease. People treat, get better, and then move on with life.

I even did that myself the first time I put lyme into remission.

Then when I relapse I came crawling back with my tail between my legs. Now as I have lyme 90%+ back into remission once again, I've decided I will not do that again.

I'm consistently back on to share hope and advice. I'm not just going to use this place (the place that taught me so much about getting well and helped keep my sanity during really dark times) only when I'm down and out.

But to stick around and give back how I can.

Edit: to give some perspective. I was listening to a podcast where a guy was being interviewed. The interview had NOTHING to do with lyme disease. But through the natural progression of the conversation of this 2hr+ podcast lyme disease happened to come up.

And the guest said "oh yea I had lyme disease" and the conversation continue for about 30 minutes on lyme disease. He had it for 3 years undiagnosed. He was in terrible shape. At one point bed ridden. Aand it took 3 years for him to fully recover. He shared his complete story. Once again the interview and podcast originally had nothing to do with lyme disease.

It just shows you how common it is and how people get, get better, and move on.


This is SO true! When I first found out I had Lyme I felt so alone. Then as you start to talk to people about it you find that almost everyone knows SOMEONE that has/had Lyme.

-My sister is a teacher and one of the teachers at her school had it for a few years and then beat it.
-My manager had a friend at her last job that had it for awhile
-One of my friends just got it a few months ago
-I went out with some work friends and they said someone in another department is struggling with it
-My uncles best friend had Lyme. Doctors told him he had cancer but they couldn't find it. They told him he would die. He found an LLMD and did IV Rocefin and got 100% better almost instantly. I think he only did it for a month.

The list goes on and on. People get Lyme, beat Lyme and don't want to look back in my opinion. Usually if I try to talk to someone about how they got better they are really short. Like Astroman said, it's like an extended nightmare that we just want to forget when it is all over.

When I heal, though, I will be sure to help in every way I can if someone comes to me.

Post Edited (NicHostetler) : 1/3/2018 7:15:02 AM (GMT-7)


astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 4214
   Posted 1/3/2018 7:36 AM (GMT -7)   
Girlie said...
Hey Astroman - do you consider yourself partial - not fully healed?

I was thinking you were fully healed because you've cleared all active infection...and now are just rebuilding your weaker areas - like the muscle/fascia...etc.
You're not treating anymore, right?

It's really difficult to determine what is fully healed, isn't it. There can be areas that need rebuilding...after the years of the unchecked infection.


Right, I'm not treating, and still going forward with small positive steps. In my opinion, and in my case, the healing process extends beyond the "eradication" time.

**So, more like "success in the making", LOL.?**

I consider every little gain in rebuilding the left over damage still part of the healing process. My cleaner diet is also part of the healing treatment, as it is actually doing something.

Since Lyme messed my body up for decades, it only makes sense this will take a lot longer than under 10 year infections usually do, thus the physical and autoimmune damage I deal with. My actual "eradication time" was not very long though - candida was part of that as well.

I worked out yesterday, a full body workout (but no "maxing out"), hopped out of bed feeling pretty good this morning.

Post Edited (astroman) : 1/3/2018 8:08:45 AM (GMT-7)


Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 28806
   Posted 1/3/2018 11:40 AM (GMT -7)   
astroman said...



I worked out yesterday, a full body workout (but no "maxing out"), hopped out of bed feeling pretty good this morning.


That's great!

I am slowly getting my strength back...but still fairly weak in certain areas some days. But, I do still have active infection....so a ways to go yet.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

RedEye
Regular Member


Date Joined May 2017
Total Posts : 111
   Posted 1/3/2018 1:55 PM (GMT -7)   
Haven't visited this forum for a while because I got busy finishing up this semester and actually got my bachelor's degree finally, while also treating this terrible disease (I got reinfected with 10X more debilitating pathogens in terms of pain during a cabin trip right before the beginning of the semester). I instantly amped up my protocol to eradicate these infections for good and got through very dark times (depression, suicide ideations, extreme social anxiety, ocd, rage...etc name the mental symptom, I have it) throughout the last 3 months and I'm glad to say I'm back to being 99% well except for the minuscule anxiety. I used countless supplements but the most effective ones that come to mind right now are Megahydrate, 10 in 1 biopure, MSM, colostrum, and CBD oil. I've discontinued using these supplements for about 1 month now and still feel great. I had terrible hamstring and gluteal pain during the last stages of treatment. Just thought that was worth mentioning as I've never had this symptom before, or at least not to the extent that I would feel this excruciating pain most of the day. Below are a couple of links to some of the helpful threads posted by me and if anyone has any questions I'll be glad to answer.

https://www.healingwell.com/community/default.aspx?f=30&m=3844524

https://www.healingwell.com/community/default.aspx?f=30&m=3900651

https://www.healingwell.com/community/default.aspx?f=30&m=3928600

Post Edited (RedEyedArab) : 1/3/2018 1:58:01 PM (GMT-7)


Spanish
Regular Member


Date Joined Sep 2017
Total Posts : 31
   Posted 1/3/2018 2:18 PM (GMT -7)   
Great posts guys! To keep the success storries visible without bumping could we not make it a sticky at the top of the forum under the new to lyme thread? It might also encourage more people to post in it
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