Can someone help me understand test results? Please.

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JasonG515
New Member


Date Joined Nov 2017
Total Posts : 9
   Posted 12/26/2017 8:05 PM (GMT -6)   
My doctor says my "initial testing was abnormal for lyme, but that I didn't meet criteria for lyme disease on the western blot." Also says I "showed positive antibodies for mono." Then says "with lyme disease he has old antibodies, but no current signs of infection on testing." Doc also says she doesn't think any of my symptoms are lyme. On my western blot I tested positive for the following ...

- P66
- P58
- P41
- P18

I was positive for 4. If I was positive for 5 then the CDC recognizes it as definitely Lyme?

I have dealt with horrible symptoms for over 5 years ...

- Muscle Twitching
- Insomnia
- Chronic Fatigue (like horrible fatigue ... can't function properly)
- Chronic Headaches
- Facial Pain
- Neck Pain
- Anxiety
- Malaise (very sick feeling ... blah ... out of it)
- Nausea
- Joint and muscle pain
- Pins and Needles feelings
- Memory problems
- Brian fog
- Trouble articulating my thoughts
- Strange pains throughout body

I saw a lyme literate doctor. He looked at my test results and my symptoms and said he believed it was lyme and co-infection. He put me on oral antibiotics. I felt a little better after two weeks then bad again. I did the antibiotics for like a month. Then came off of them. I've been doing vitamins, supplements, herbs, and essential oils. Here's what's cleared up ...

- Joint and muscle pain
- Pins and Needles feelings
- Muscle Twitching

Thankful those are better but I still feel like crap daily. Sleep always helps. But bad feelings quickly returns.

What do you guys make of my lab/test results and the four positives for the Western Blot?

I'm going back to my lyme doctor this week or next week.

- Jason

Post Edited (JasonG515) : 12/26/2017 6:35:54 PM (GMT-7)


Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33895
   Posted 12/26/2017 8:16 PM (GMT -6)   
Jason - if the LL Dr. has diagnosed you with Lyme disease...and you had some improvement taking the antibiotics he prescribed...then why not stick with the treatment?

Chronic lyme (plus the coinfections) will not be treated in one month.

You are looking at many months (maybe a few years) ...no matter if you treat with antibiotics...or herbals.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

JasonG515
New Member


Date Joined Nov 2017
Total Posts : 9
   Posted 12/26/2017 8:39 PM (GMT -6)   
I'm sticking with the treatment. I'm just going through a very hard time right now. I'm frustrated. I'm sick of this. I'm not able to do what I used to do. I'm not even the same person. Thanks for your reply. Have a good night.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33895
   Posted 12/26/2017 8:47 PM (GMT -6)   
I meant the antibiotic treatment that you stopped. Or are you back on it again?

It is a rough go...sorry you're having such a bad time...
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

JasonG515
New Member


Date Joined Nov 2017
Total Posts : 9
   Posted 12/26/2017 9:01 PM (GMT -6)   
I'm going back to my lyme doc this week or next week. As soon as he can get me in to see what antibiotics he wants me on now.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33895
   Posted 12/26/2017 9:16 PM (GMT -6)   
Jason - are you detoxing...?

One of my favorite detoxes is a warm epsom salt bath. It helps with my pain.
I also take magnesium in the evening.

A binder is also good for removing the toxins out of the digestive tract.


It's a ridiculously long, and arduous journey we 're on.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Missouri
Regular Member


Date Joined Sep 2017
Total Posts : 397
   Posted 12/28/2017 12:07 PM (GMT -6)   
Jason, I had similar test results and symptoms. I have also responded well to treatment. I agree with Girlie, keep treating!

I am right there with you on the whole issue of being a different person. It sucks. I am in my 5th month of treatment and I am starting to catch more and more glimpses of the "old me".

good luck my friend
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