Lyme Literate Dr for Kids and Adults in NJ / NY / CT/ PA

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Dash626
New Member


Date Joined Nov 2017
Total Posts : 4
   Posted 12/29/2017 7:48 AM (GMT -6)   
Hi. I'm new to this forum (last couple of months) and I have found it very helpful to read, thank you all.

I am looking for LLMDs for myself and my children in the general NYC Metro area. I live in Essex County NJ.

I was diagnosed with Lyme only (by Dr G in Basking Ridge, NJ) and was treated for a month on Doxy (ended Dec 22). Dr G drew more blood for labs at the end and hasn't got back to me yet regarding continuing treatment, however she did explain to me that the current advanced thought is that you cannot completely eliminate all lyme from the body due to Biofilms. I'm nervous about this and have already begun to review the Buhner protocol on my own.

I had my 11 year old tested (she showed signs of brain fog and anxiety and symptoms like blurred vision, headaches, random joint pain). She tested CDC negative with 1 IGM band (39) and 4 IGG bands (41, 58, 66 and 93). Dr G looked at the blood work and examined my daughter and said no, no lyme, and that because of her youth and immune system her test results would be 'alight with positive bands'. I still have concerns about her because of the lyme specific bands, as well as her recurrent symptoms (typical wax and wane it seems).

Lastly I just got positive results for my 7 year old daughter whose only symptoms were psychiatric - emotional outbursts, crying fits and not sure why and seriously negative thoughts about herself (I'm useless). She tested CDC positive from MDL with 2 IGM bands and 5 IGG bands.

I clearly need a LLMD for all 3 of us, and now I would really like to get my husband and son tested as well (neither showing any symptoms, but you never I just made not have noticed and they are both pretty tough people).

Can anyone help me with pinpointing to the right LLMD who will be willing and open to both antibiotics and herbals / supplements? I would like to try to be at one place for all of us (at least try). I'm open to driving to CT, to PA, to NYC, Southern NJ, but for starters wondering if there might be someone in my own back yard (Union County, Morris County, Essex County...).

Thank you all so much! I think I've enabled my email so please feel free to send me a note directly.

PS my pediatrician asked me if I wanted a script for one month of amoxycillin - my 7 year old daughter has been 'different' emotionally for a while now (not only the last month, I would say since the summer, perhaps before). should I accept the antibiotic treatment for her while looking for an llmd?

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32656
   Posted 12/29/2017 11:08 AM (GMT -6)   
Hi Dash, welcome to our community.

I'm sorry that you and your children are dealing with this.

Your 11 year old has bands 39 (IGM) as well as 93 (IGG) Those are lyme 'specific'.

Those point to lyme. And, children can also have immune suppression with lyme and not have test results 'alight with positive bands'.

I'm glad you are seeking out LLMD(s) for all of you.

There is a very well known Ped's LLMD in CT. He is way past retirement age - and may have finally retired..but you could give them a call. (Dr. J) But, I think he does just abx treatment.

Shoot me an email and I will give you his Contact information.

And , I can look through my information for more LLMD's in the areas you're looking.

Hopefully you will get some members' recommendations.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 9729
   Posted 12/29/2017 11:30 AM (GMT -6)   
Dash, welcome and so sorry for your family.

Here are some resources that I used to find my LLMDs.

/sites.google.com/site/lymedoctors/new-jersey - you can search the nearby states also.

/globallymealliance.org/education-awareness/find-medical-professional/

ilads.org/ilads_media/physician-referral/

/www.lymediseaseassociation.org/ -- Go to Dr. Referral tab

And here is a Buhner list of herbalists - buhnerhealinglyme.com/resources/herbalists/

Notime4lyme
Regular Member


Date Joined Dec 2017
Total Posts : 273
   Posted 12/29/2017 4:54 PM (GMT -6)   
I'm not quite sure how to send an email.

I know there are several good doctors in New York and Connecticut. As for antibiotics and herbs, it seems to me that some doctors who use antibiotics will let you use herbs too, but they won't give you any recommendations about what herbs to take.

I took amoxicillin when I first got Lyme. It definitely made me feel better, but it didn't actually get rid of the lyme. I wish I had gotten on minocycline or something at first.

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 9729
   Posted 12/29/2017 4:58 PM (GMT -6)   
Notime4lyme to send someone an email you just click on the blue envelope under their screen name on the left side of the post.

In order for someone to send you an email, yours will have to be enabled and that is done in My Profile. Enable email and click Submit at the bottom of the page.

Dash626
New Member


Date Joined Nov 2017
Total Posts : 4
   Posted 12/31/2017 12:31 PM (GMT -6)   
Thank you PeteZa and Girlie and Traveler, for sending information directly to me via email. I really appreciate the effort.

Notime4lyme please do send me an email directly by clicking on the blue envelope below my user name. I have my daughter on Amoxycillin because I feel like it's better than nothing right now, and will get the ball rolling hopefully.

So grateful, thank you. Can't wait till Tuesday so I can get on with this. I have no time for lyme either.
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