So I have had trouble with insurance and its finally been resolved. I am 3 months post-tick bite and I have an appointment next week with a non-lyme trained GP. Its not ideal but there is only one specialist in my area that I have found that will take my INS and she requires a GP referal (as well as the testing etc he has to do before she will see me)
I have a friend who is a CRNA and she advised that I have my *SED Rate and CRP* tested. She thinks I need to have my "inflammation markers tested" .... i am unfamiliar with this but will ask the GP to do so.
That is actually why i am coming to the board for advice... if I am unaware of these test - what else am I in the dark about
? What tests should I insist he perform?
I am assuming I will get ...
- standard Lyme blood test
- co infection blood test? Specifics?
- thyroid test?
- inflammation panel?
- standard blood work?
Just to recap everyone - I found a TINY tick on my leg Aug 22. didnt really think too much about
it. I was working and had a few bug bites and this little tick looked like it was barely attached so I assumed it was a very very new bite. Honestly I had heard about
Lyme but never given it much thought.
So over the next few weeks I developed Headaches and a stiff neck. It was summer so I thought maybe the headaches were sinus/pollen/allergies, but the stiff neck was very unique. At first it was "just a crick" I thought, but it quickly escalated into the worst, most nagging stiff neck I could imagine. Wasnt sure what was going on. That and the headaches seemed to get worse for 3 wks.
Around Sept 10 or 11 I went to urgent care because I woke up at 3am with some of the worst chills and headache I have ever had. Felt like a hangover mixed with flu.
The urgent care was accommodating and gave me Doxy ABX but they literally googled Lyme on the exam room PC to diagnose me. As long as I had ABX and started what I felt like was a good step in preventing the possible Lyme progression I was happy.
Then I started doing my homework (inlcding coming here) and realized this was a serious disease and that perhaps the 100 Mg twice a day was not sufficient.
So I took 200mg/day until Sept 24th. (2 wks)
Then I went back to UC to get a refill on my "lost" Rx ...
Oct 3 - started 200 mg/day again and did that for one week, and was then advised (on here) that the dose was weak so I upped it to 300 or 400/day for 5 days...ending Tx around Oct 15.
I still feel off and but I don't have a lot of specifics other than some afternoon fatigue, some intermittent headaches, and aching in my joints in my hands (where fingers meet hand) and in my feet (where the toes meet the foot). Odd that the similar joints in both hands and feet hurt in the same manner - i am assuming this is caused by Lyme as I have never had joint issues before.
one of the things that has bothered me the most is my severe shedding ... i cannt figure out if this is due to the disease or if its due to the Abx. I have read there is a small chance Lyme causes hair loss, but I have also read a LOT of testimonials about
Doxy causing dramatic hair loss when taken in high doses. I have a lot of hair but it has been falling out like crazy (all over) especially when I first began Abx months ago
Anyone have any idea what can cause this? I have tried to find answers
- is it the Abx?
- Is it the Dx itself?
- Could it be a coinfection?
- Or could it be an autoimmune reaction my body is having to the Dz and my body is attacking my hair follicles?
Post Edited (Mb244) : 12/29/2017 1:04:50 PM (GMT-7)