What are the best oral abx to treat neurological lyme disease?

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greatguy
Regular Member


Date Joined Dec 2017
Total Posts : 104
   Posted 12/30/2017 8:44 AM (GMT -6)   
Please provide some combos and the daily dose you have been prescribed by LLMD to treat neurolyme. IV ceftriaxone isn't really an option for me, or IV in general, i hope there are oral abx that help with neurolyme too.

Spanish
Regular Member


Date Joined Sep 2017
Total Posts : 146
   Posted 12/30/2017 9:24 AM (GMT -6)   
Ive been on minocycline at 200mg per day for about 8 weeks now and it has helped massively. Im just hoping it continues, my worst symptoms were the neurological ones.

Girlie
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Date Joined May 2014
Total Posts : 33852
   Posted 12/30/2017 12:21 PM (GMT -6)   
I've never been prescribed abx to specifically treat 'neurolyme'.


just combos to treat lyme, and bart.

Minocycline has good blood/brain penetration.

You could combine mino with rifampin and treat bartonella while you treat lyme.

mino = 100 mg twice daily
rifampin = 300 mg twice daily.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

goshawk
Forum Moderator


Date Joined Sep 2016
Total Posts : 2295
   Posted 12/30/2017 1:16 PM (GMT -6)   
Hi and welcome to our forum greatguy,

We encourage all new members to read our "New To Lyme" start here thread at the top of the page.

It has useful and important information on Lyme, testing, symptoms, detoxing and more.


I wont comment on ABX for neuro Lyme since I don't know enough about ABX and only used Bactrim, Azith and Doxy for part of my treatment.

I do use Buhner herbals for Neuro Lyme, Bart and Babesia .


Take care and I wish you the best of healing, Jo

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33852
   Posted 12/30/2017 1:26 PM (GMT -6)   
Oh goodness, I never clued in that this was greatguy's first post.

Thankfully, goshawk did!!!

Welcome to our community, greatguy!


Do you currently have a LLMD to treat you?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 5083
   Posted 12/30/2017 1:50 PM (GMT -6)   
Hello first timer.

Have you have found liessons in you brain per MRI that could be suspect of lyme, thus, Neurolyme?

'Neurolyme' is often a set of symptoms which developed, but does necessarily mean lyme is in the brain.

Neurolyme can be caused by the bacteria and well as candida and its effects being: unbalanced hormones, unbalanced neurotransmitters, liver toxicity and general inability to detox well, (sometimes gene deficiencies lead up to this as well).

greatguy
Regular Member


Date Joined Dec 2017
Total Posts : 104
   Posted 12/30/2017 2:49 PM (GMT -6)   
astroman said...
Hello first timer.

Have you have found liessons in you brain per MRI that could be suspect of lyme, thus, Neurolyme?

'Neurolyme' is often a set of symptoms which developed, but does necessarily mean lyme is in the brain.

Neurolyme can be caused by the bacteria and well as candida and its effects being: unbalanced hormones, unbalanced neurotransmitters, liver toxicity and general inability to detox well, (sometimes gene deficiencies lead up to this as well).


CT scan was clean, as i'm sure MRI would be. I've heard SPECT scan is to show functional changes in the brain, but it is with radiation. Anyway, my symptons are visual disturbances, ringing in ears, concentration problems, daily headaches etc, which indicate neuro lyme.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33852
   Posted 12/30/2017 3:01 PM (GMT -6)   
greatguy said...
astroman said...
Hello first timer.

Have you have found liessons in you brain per MRI that could be suspect of lyme, thus, Neurolyme?

'Neurolyme' is often a set of symptoms which developed, but does necessarily mean lyme is in the brain.

Neurolyme can be caused by the bacteria and well as candida and its effects being: unbalanced hormones, unbalanced neurotransmitters, liver toxicity and general inability to detox well, (sometimes gene deficiencies lead up to this as well).


CT scan was clean, as i'm sure MRI would be. I've heard SPECT scan is to show functional changes in the brain, but it is with radiation. Anyway, my symptons are visual disturbances, ringing in ears, concentration problems, daily headaches etc, which indicate neuro lyme.


I think the SPECT scan shows blood flow...and with lyme, it can be lacking in some areas.

Neurolyme is treated with the 'regular' lyme antibiotics. But, you don't want to neglect the co-infections of bartonella and babesia. They can both cause 'head' symptoms.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Post Edited (Girlie) : 12/30/2017 3:34:59 PM (GMT-7)


astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 5083
   Posted 12/30/2017 3:12 PM (GMT -6)   
greatguy said...
astroman said...
Hello first timer.

Have you have found liessons in you brain per MRI that could be suspect of lyme, thus, Neurolyme?

'Neurolyme' is often a set of symptoms which developed, but does necessarily mean lyme is in the brain.

Neurolyme can be caused by the bacteria and well as candida and its effects being: unbalanced hormones, unbalanced neurotransmitters, liver toxicity and general inability to detox well, (sometimes gene deficiencies lead up to this as well).


CT scan was clean, as i'm sure MRI would be. I've heard SPECT scan is to show functional changes in the brain, but it is with radiation. Anyway, my symptons are visual disturbances, ringing in ears, concentration problems, daily headaches etc, which indicate neuro lyme.


All listed can also be also low thyroid problems and candida. Many here have had those symptoms of "nuerolyme". Just remember one can be experiencing lyme brain symptoms (my other posts mentioning the causes) without lyme actually in the brain. Many overlapping causes in this illness with the same symptoms.

Its how your bodies immune system reacts to the infection that can cause this. If lyme is in fact in the brain, then its the debris and other lyme friends in the brain doing it in addition to your immune system.

Many ABX can help in lowering the bacterial amounts, not sure which ones cross the blood/brain barrier, if thats something you were wondering. (?)

My nuerlyme symptoms were at their greatest (talked drunk, lethargy, woke blind, went dyslexic, could not problem solve, memory and word finding issues) when all my body systems were messed up at the same time, I also do not detox well per genes found, and liver detox helped me. Standard MRI was clear.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33852
   Posted 12/30/2017 4:29 PM (GMT -6)   
Some are better at crossing the blood/brain barrier. Minocycline is one that is better.


LLMD JJ who is one of the best prescribes many different abx: Minocycline, doxycycline, Amoxicillin, Ceftin, Omnicef, Bactrim DS, Azithromycin, Clindamycin,Rifampin are some.

I don't think I've seen a protocol of his with Biaxin though. I wonder if he does prescribe that one. I know other LLMD's do.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 5083
   Posted 12/30/2017 4:56 PM (GMT -6)   
My brain did not improve till I ended ABX and allowed my body to slowly detox from all the debris it created.

I used oral ceftin, flagil, and doxy all together. And the for summer time doxy equivalent- biaxin (no sun side effects). I was a shaky mess on all of these.

greatguy
Regular Member


Date Joined Dec 2017
Total Posts : 104
   Posted 12/30/2017 5:27 PM (GMT -6)   
Glad you improved. I guess all 3 were pulsed? Or taken together everyday?

astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 5083
   Posted 12/30/2017 7:35 PM (GMT -6)   
Three were taken together, twice daily. There was a fourth one too swapped out for ceftin I (I forgot what it was), not mentioned much here though.

So I was always on three at once. The idea being those three worked differently and had a wider shotgun approach used together. I did take brakes of one month in between ABX sessions for liver health. Longest straight with no brakes was five months.

JustPiccd
Regular Member


Date Joined Dec 2017
Total Posts : 84
   Posted 12/30/2017 8:47 PM (GMT -6)   
Could you do injectible Bicillin? It's not IV but requires injecting into your rear. Generally people can be trained to do it at home and it's often used for neuro symptoms of Lyme. There is one LLMD who has also used super high doses of tetracycline to achieve better brain penetration and seems to have some success, and some have extrapolated from that that with a high enough dose, other meds also can get into the brain. Treating the coinfections as people have said is a must, they can cause even worse brain/neuro symptoms than Lyme if you search and read anecdotes on this.

gfields
Veteran Member


Date Joined Oct 2015
Total Posts : 965
   Posted 12/31/2017 12:11 AM (GMT -6)   
Yes, I've injected that and ceftin into my kester. It takes a little doing, but once you do it a couple times it's not a big deal. I found that there's a 3 mm magic spot that you can inject into and it won't hurt. Takes a little poking around to find it.

Kate548
Regular Member


Date Joined Apr 2012
Total Posts : 31
   Posted 12/31/2017 5:16 AM (GMT -6)   
If I had Lyme I would take a small rice sized piece of Cannibadol which is a NON psycho-active part of the Marijuana plant. It doesn't get you high because it does not have any THC in it.
I once talked to a research doctor up in Hope BC Canada that had studied the Lyme bug for years. He said he had joined forces with a Research Scientist in New York State because the guy had an extremely powerful microscope. When they gave the lyme samples Cannibadol it put an end to them. He also told me he had an elderly woman patient who had been on various antibiotics for a long time without getting any better, but improved once she took a rice sized piece of cannibadol oil under her tongue at bedtime. It would be absorbed and pass thru the blood brain barrier. I think you would want to take it for a good month just to make sure all the Lyme is gone.
He had called me after I had filled in a questionnaire online because I thought that I might've had Lyme at the time. He recommended
a Naturopath to see that was trained in treating Lyme because he had just retired but he said that if I did have Lyme that that was a much better way to get rid of it rather than antibiotics one would have to take for a long time. He said that is the only thing that works effectively and doesn't injure your liver.
I hope this information helps someone who is suffering because it's an awful thing to have to go thru. My heart goes out to all those who are suffering!

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33852
   Posted 12/31/2017 11:52 AM (GMT -6)   
Kate548 said...
If I had Lyme I would take a small rice sized piece of Cannibadol which is a NON psycho-active part of the Marijuana plant. It doesn't get you high because it does not have any THC in it.
I once talked to a research doctor up in Hope BC Canada that had studied the Lyme bug for years. He said he had joined forces with a Research Scientist in New York State because the guy had an extremely powerful microscope. When they gave the lyme samples Cannibadol it put an end to them. He also told me he had an elderly woman patient who had been on various antibiotics for a long time without getting any better, but improved once she took a rice sized piece of cannibadol oil under her tongue at bedtime. It would be absorbed and pass thru the blood brain barrier. I think you would want to take it for a good month just to make sure all the Lyme is gone.
He had called me after I had filled in a questionnaire online because I thought that I might've had Lyme at the time. He recommended
a Naturopath to see that was trained in treating Lyme because he had just retired but he said that if I did have Lyme that that was a much better way to get rid of it rather than antibiotics one would have to take for a long time. He said that is the only thing that works effectively and doesn't injure your liver.
I hope this information helps someone who is suffering because it's an awful thing to have to go thru. My heart goes out to all those who are suffering!


Hi Kate - welcome to the Lyme forum.

CBD oil has been discussed on here many times. Unfortunately it doesn't work for everyone. I tried it for a few months in 2016 with no results.
Dr M actually teamed up with Dr Eva Sapi to research CBD oils effects on Lyme. Results in vitro were good, but it isn't proving to be as effective in vivo. Not all get results.

There are several people who have gotten their lives back. Unfortunately I read recently that one of the people has now relapsed.

So did you see the LLND and treat for Lyme?

I
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Post Edited (Girlie) : 12/31/2017 9:55:25 AM (GMT-7)

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