An LLMD told me that I had been undertreated, which I agree is true, and he also said that I reminded him of a severely debilitated, bedbound patient who required nearly a decade of antibiotics before they really improved.
I get it I'm in for the long haul now, and I'm committed, and about three years into my latest leg of treatment after being off of meds and horribly relapsing. I have multiple coinfections and am a complex case, and am very sick and debilitated.
I read another article today about a Lyme patient who had been told they would need probably seven or eight years of antibiotics.
I get it can sound outrageously long, but I'm actually looking for hope here, as I don't know of many who stayed on antibiotics *that* many years in a row. I'm not talking about herbal treatments as more than adjuncts, but steady course of antibiotics. I do use herbs as well, but for me, they do not cut it as a first-line treatment and I always relapse on herbs alone.
If you are really debilitated, I would go to one of the best LLMD's there is (if it were me)
I'm just curious if anyone started out really far down, and misdiagnosed or untreated for too long, and came back after many many years of treatment on that level, and even after treatment seemed to not be making dramatic gains.
Well, I'm not sure how a LLMD would be able to tell a patient that they would need 7 or 8 years of antibiotics.
Some really bad cases I've known...or read about
were healed in 3-4 years. I don't think anyone can predict - too many variables. How long was the person ill before treating, how many coinfections do they have, how well they detox, how is their gut health...adrenals...etc.
I don't know if even a LLMD can predict duration of treatment required.
If you are really debilitated...then seek out one of the best, more experienced LLMD's for treatment. That's what I'd do. Well, actually, that's what I'm doing now after three years of treatment and plateauing.
Watch Under Our Skin and the sequel Emergence. The Ranger in that documentary - he got well (he was on IV abx for awhile) - and I can't remember if it was 5 or 8 years it took him.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi