First of all, so sorry you are suffering like this!!!
As for lyme, my opinion (perhaps unpopular - LOL) is that lyme is overly blamed and gets sometimes too much focus when other factors may be bigger issues. Don't get me wrong - I truly believe lyme is dangerous and wrecks so many people's health/lives. But it's not the only thing that does. And sometimes we focus on that when it may be a different issue that is the major complication or a combination of issues.
For example, I am positive for lyme, but yet I have very few symptoms associated with it. I didn't see improvements using lyme herbals, but yet when I treated my systemic yeast, it was a life saver change (improvement) for me. But yet, none of the doctors would focus on my yeast issues, and I had to research (and mostly self-treat).
So, my point is... we have to look at the bigger picture of our health issues.
For my kids, their issues appear to be more coinfection related. Specifically, I feel that bartonella and babesia are much bigger issues than lyme ever was. My functional medicine LLMD agrees.
So, how much of a factor is EBV? I don't know.
Please don't get me wrong. I know how dangerous lyme is. But it's the only problematic thing, and for some people, they have several issues going on, making for very complicated cases.
But since testing is so flawed and can't rely on it... and because my kids had/have so many issues.... I cycled through just about
everything I could think of. Meaning, I went through antiviral protocols, heavy metal detoxification, anti-mold (for one kid), anti-yeast, anti-babesia/bartonella/lyme, etc. I figured eventually I'd cover whatever their issue was because I was addressing the biggest known issues.
As for muscle testing, that choice is ultimately up to you. There are many here who really favor and respect it, and it has helped them. I'm not in that camp. We did muscle testing previously - for years with couple different practitioners (including FCT which very few people on this board have tried) - and in the end, it failed to help my children at all. I am no longer doing it. They sent us in circles for years. I really did like the one practitioner (he was quirky though), but he knew his stuff about
how the body worked. He has supposedly helped others where mainstream medicine have failed them. But like I said, it's not something I personally pursue at this point. I wish it would have helped us.
Disability is tough. I know somebody who hasn't been able to work for a long time now (very sick from lyme) and is constantly getting rejected for STD/LTD. It is truly tragic. Shame on those insurance companies.
Truly wishing you the best in figuring it out. It truly is a puzzle.
Kid#1: Extremely sick for several years, very difficult to treat, but doing great now!
Kid#2: Still sick now despite being treated for years but doing better (not well yet).
Kid#3: Generally good but relapsing off/on.
Me: Adv Labs positive 2016 (suspected I passed to my kids)-not as sick as others, mostly battling fatigue and yeast issues (heart/kidney issues resolved)
Treating with herbals now.
Post Edited (1000Daisies) : 1/2/2018 4:20:32 PM (GMT-7)