EBV: To Treat or Not to Treat?

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1000Daisies
Veteran Member


Date Joined Apr 2016
Total Posts : 2345
   Posted 1/2/2018 5:17 PM (GMT -6)   
First of all, so sorry you are suffering like this!!!

As for lyme, my opinion (perhaps unpopular - LOL) is that lyme is overly blamed and gets sometimes too much focus when other factors may be bigger issues. Don't get me wrong - I truly believe lyme is dangerous and wrecks so many people's health/lives. But it's not the only thing that does. And sometimes we focus on that when it may be a different issue that is the major complication or a combination of issues.
For example, I am positive for lyme, but yet I have very few symptoms associated with it. I didn't see improvements using lyme herbals, but yet when I treated my systemic yeast, it was a life saver change (improvement) for me. But yet, none of the doctors would focus on my yeast issues, and I had to research (and mostly self-treat).
So, my point is... we have to look at the bigger picture of our health issues.

For my kids, their issues appear to be more coinfection related. Specifically, I feel that bartonella and babesia are much bigger issues than lyme ever was. My functional medicine LLMD agrees.

So, how much of a factor is EBV? I don't know.

Please don't get me wrong. I know how dangerous lyme is. But it's the only problematic thing, and for some people, they have several issues going on, making for very complicated cases.

But since testing is so flawed and can't rely on it... and because my kids had/have so many issues.... I cycled through just about everything I could think of. Meaning, I went through antiviral protocols, heavy metal detoxification, anti-mold (for one kid), anti-yeast, anti-babesia/bartonella/lyme, etc. I figured eventually I'd cover whatever their issue was because I was addressing the biggest known issues.

As for muscle testing, that choice is ultimately up to you. There are many here who really favor and respect it, and it has helped them. I'm not in that camp. We did muscle testing previously - for years with couple different practitioners (including FCT which very few people on this board have tried) - and in the end, it failed to help my children at all. I am no longer doing it. They sent us in circles for years. I really did like the one practitioner (he was quirky though), but he knew his stuff about how the body worked. He has supposedly helped others where mainstream medicine have failed them. But like I said, it's not something I personally pursue at this point. I wish it would have helped us.

Disability is tough. I know somebody who hasn't been able to work for a long time now (very sick from lyme) and is constantly getting rejected for STD/LTD. It is truly tragic. Shame on those insurance companies.

Truly wishing you the best in figuring it out. It truly is a puzzle.
Kid#1: Extremely sick for several years, very difficult to treat, but doing great now!
Kid#2: Still sick now despite being treated for years but doing better (not well yet).
Kid#3: Generally good but relapsing off/on.
Me: Adv Labs positive 2016 (suspected I passed to my kids)-not as sick as others, mostly battling fatigue and yeast issues (heart/kidney issues resolved)
Treating with herbals now.

Post Edited (1000Daisies) : 1/2/2018 4:20:32 PM (GMT-7)


1000Daisies
Veteran Member


Date Joined Apr 2016
Total Posts : 2345
   Posted 1/2/2018 5:24 PM (GMT -6)   
Oh, I forgot to mention...

Kid#2 was being treated for years with abx (which we no longer use) for lyme and company. He wasn't making progress. In fact, he get 100x worse. He went from being a functional, highly active kid with a few issues to being so nonfunctional that he couldn't attend school regularly for 2 years. We went to a NP, who started him on antivirals (primarily Lysine Extra and monolaurin). This was a big piece of the puzzle for him (but certainly not the only piece). It GREATLY helped him to improve. When I've taken him off, he regresses, and when I put him back on, he improves to a point. Monolaurin could be addressing other things than viral loads (maybe yeast for him?). But the change in him was very remarkable.

What about a trial run of monolaurin and something like Lysine-Extra or whatever supplement/herbals your doctor may recommend? Or is treatment for EBV really different?

I tried monolaurin(or Lauricidin) for the rest of us, and we all didn't react as positively as Kid#2. We are all so different. So who knows!!!!! Again, so much trial and error for sure!
Kid#1: Extremely sick for several years, very difficult to treat, but doing great now!
Kid#2: Still sick now despite being treated for years but doing better (not well yet).
Kid#3: Generally good but relapsing off/on.
Me: Adv Labs positive 2016 (suspected I passed to my kids)-not as sick as others, mostly battling fatigue and yeast issues (heart/kidney issues resolved)
Treating with herbals now.

medlabscientist_topatient
Regular Member


Date Joined Dec 2017
Total Posts : 28
   Posted 1/2/2018 5:57 PM (GMT -6)   
Thank you. I will tell him. smile

PeteZa said...
Thank you to your Dad medlab and thank you Dude Abides!

medlabscientist_topatient
Regular Member


Date Joined Dec 2017
Total Posts : 28
   Posted 1/2/2018 6:00 PM (GMT -6)   
My best friend had recently told me about the supposed EBV-Lyme connection. It's Lyme... smile

caramba said...
Great information, thanks! I was just reading a thyroid book where the author blames it all on EBV, even goes to say that lyme symptoms themselves are due to EBV, not Lyme..

medlabscientist_topatient
Regular Member


Date Joined Dec 2017
Total Posts : 28
   Posted 1/2/2018 6:03 PM (GMT -6)   
Thank you. I will tell him. He's my rock in all of this craziness. Just about to call him now. smile

Traveler said...
Dude! I did not realize you served in the military - I'd like to join in and say thank you for your service as well! And to Medlabscientist - I'd say thank you to your Dad as well!!!

You all do us a great honor by serving! Thank you.

medlabscientist_topatient
Regular Member


Date Joined Dec 2017
Total Posts : 28
   Posted 1/2/2018 9:17 PM (GMT -6)   
thank you. I'm very sorry you and your children are suffering as well.

I've got to believe that holding my wrist and diagnosing me based off of some "feeling" of muscle weakness or strength is pure junk science. there are too many variables at stake: is the doctor pressing too hard or too soft? Is there scientific fact to back up this kind of diagnoses? Can you actually feel the organs through the wrist, and adequately diagnose from this? No. I don't buy it. I believe in Eastern medicine, but this to me is quackery.

I realize my health history is long and very involved, and Lyme disease is kicking in all those past infections and creating havoc throughout my body. I know all of human kind has bacteria, viruses, and parasites in their bodies, but the difference is their immune system can fight them off adequately. Ours cannot. Lyme and its coinfections serve to complicate the host's health and immune system, but have deftly allowed itself not to kill the host, therefore it's a parasitic bacterium, along with all coinfections because they also are deft at taking just enough to survive from the host, but not killing us. Smart. Smart as can be microbes these guys are!

Testing is extremely flawed. The gold standard in testing in PCR, and it's nowhere near adequate enough to test for Lyme and its coinfections, because they are so very good at hiding in places in the body where blood and urine samples can't reach them.

It is my belief that I need to treat all 4 species of toxic mold (3 doctors have said this is my worse problem), then Bartonella, my second worse issue, and it's a beast of a bacterium and so very hard to eradicate, and then Lyme disease, which may seem odd, but it is the least of my health issues. All can be treated at once, but then I am extremely sensitive and have to go extremely slow and detox like crazy! I have not had an antibiotic or herbal protocol from the 5 doctors previous to the new one, that I have ever handled well. My herx reactions are extreme dizziness and extreme pain. My body is telling me no. Don't do this to me.

Thank you. I will look into the herbal you mentioned. I'm currently being treated by all herbals, and I want nothing to do with antibiotics, but in order to get rid of Bartonella (according to Stephen Buhner) two antibiotics along with his herbal protocol for each symptom of Bart is the recommended treatment.

I wish you the absolute best as well. It most certainly is a puzzle. I frustrating, mind blowing, difficult puzzle.

Best,
medlabscientist


1000Daisies said...
First of all, so sorry you are suffering like this!!!

As for lyme, my opinion (perhaps unpopular - LOL) is that lyme is overly blamed and gets sometimes too much focus when other factors may be bigger issues. Don't get me wrong - I truly believe lyme is dangerous and wrecks so many people's health/lives. But it's not the only thing that does. And sometimes we focus on that when it may be a different issue that is the major complication or a combination of issues.
For example, I am positive for lyme, but yet I have very few symptoms associated with it. I didn't see improvements using lyme herbals, but yet when I treated my systemic yeast, it was a life saver change (improvement) for me. But yet, none of the doctors would focus on my yeast issues, and I had to research (and mostly self-treat).
So, my point is... we have to look at the bigger picture of our health issues.

For my kids, their issues appear to be more coinfection related. Specifically, I feel that bartonella and babesia are much bigger issues than lyme ever was. My functional medicine LLMD agrees.

So, how much of a factor is EBV? I don't know.

Please don't get me wrong. I know how dangerous lyme is. But it's the only problematic thing, and for some people, they have several issues going on, making for very complicated cases.

But since testing is so flawed and can't rely on it... and because my kids had/have so many issues.... I cycled through just about everything I could think of. Meaning, I went through antiviral protocols, heavy metal detoxification, anti-mold (for one kid), anti-yeast, anti-babesia/bartonella/lyme, etc. I figured eventually I'd cover whatever their issue was because I was addressing the biggest known issues.

As for muscle testing, that choice is ultimately up to you. There are many here who really favor and respect it, and it has helped them. I'm not in that camp. We did muscle testing previously - for years with couple different practitioners (including FCT which very few people on this board have tried) - and in the end, it failed to help my children at all. I am no longer doing it. They sent us in circles for years. I really did like the one practitioner (he was quirky though), but he knew his stuff about how the body worked. He has supposedly helped others where mainstream medicine have failed them. But like I said, it's not something I personally pursue at this point. I wish it would have helped us.

Disability is tough. I know somebody who hasn't been able to work for a long time now (very sick from lyme) and is constantly getting rejected for STD/LTD. It is truly tragic. Shame on those insurance companies.

Truly wishing you the best in figuring it out. It truly is a puzzle.

Post Edited (medlabscientist_topatient) : 1/2/2018 8:23:14 PM (GMT-7)


medlabscientist_topatient
Regular Member


Date Joined Dec 2017
Total Posts : 28
   Posted 1/2/2018 9:19 PM (GMT -6)   
Herbals or Valtrex. That is what has been used this past year to treat my non existent EBV. ;)

medlabscientist

Mustard Seed said...
So what's the treatment for EBV?
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