The other option is to get to a LLMD and see what they think of your tests and symptoms. As has been said, testing is not accurate enough to say a person does not have these infections with symptoms you are describing. So, it comes down to if you really feel you need a positive test or not. If you do, for insurance purposes or something, then the LLMD should be able to help you find ways to see if you can get a positive test (it's a matter of stimulating the immune system enough to produce antibodies) - but be warned, not every person's body can produce those antibodies until after they have had at least some treatments. For me, it took a full 12 months of treatments before I had a CDC positive Lyme test.
I just want to find out what's wrong with me. I can't treat it if I don't know what my issue is. Right now I have no idea if I have meneires, fibro, Lyme or what.
According to other members it would be a good idea to try the igenex tests even though I was just tested by my clinic.
If that's not worth it I would like to know because im not sure if insurance will pay for it. But if there's is some confidence in the test that the test can show different results than a standard clinic test than I am certainly willing to try it. I am looking into the idea of a llmd as well but just taking one thing at a time since my primary care is telling me not to worry about
You can post those results here..and we can help you determine if it looks like you do have lyme.
Thanks for everyones feedback so far.It's up to you whether you want to test or not. Some LLMD's will want a test even though they should be diagnosing you clinically...and using tests for back up.
You could make an appt. with a LLMD. make the appointment for 5 weeks out. In the meantime, you could test with the Igenex test ($250) - LymeWB IgM and IgG.
When results are back (3-4 weeks) - then take those results to the LLMD.
Some LLMD's have wait lists of a few months.
Igenex lab specializes in testing for tick-borne diseases...it is better than the standard clinic/lab test.
Even if you don't get a positive results...there can be indications in the results (lyme specific bands) that show up ...and are useful to back up a clinical diagnosis.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi