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tonyaraven
Regular Member


Date Joined May 2017
Total Posts : 398
   Posted 1/1/2018 1:51 PM (GMT -6)   
I feel like you all are my only ones to turn too! It's so hard when all this happens when it's the weekend and then a holiday because I can't get ahold of my doctor to tell him what is going on. I woke up this morning thinking things were getting better because I didn't feel as exhausted but now I realize it seems worse. I am so shaky and the pain moves around between my head and back in such intensity I almost feel like I could pass out. I'm having such a weird sensation in my head, dizzy, fuzzy, out of it sensation, my eyes can't really focus very well. Can a herx just keep getting worse? I just don't know what is happening to me. Usually when I herx it only lasts a day or two and then goes away, so I don't know what this is. I've been off all my meds for the last couple days and just detoxing like crazy but don't feel like it's doing anything. I've had all sorts of head issues over the last few years, but this just seems so intense.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33909
   Posted 1/1/2018 2:01 PM (GMT -6)   
Tonya - it can take more than a couple of days for a herx to subside.

It depends on how much detoxing you are doing...and whether or not your body has detox challenges...and also the meds can build up...the ones with the long half-lives can be in our system for awhile.

Remind me - what meds were you on prior to stopping a couple of days ago?


Are you taking a binder for detox?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

dbwilco
Regular Member


Date Joined Mar 2016
Total Posts : 297
   Posted 1/1/2018 2:02 PM (GMT -6)   
i had neuro herx like that...lasted almost a wk, if i remember...took Pinella and Jernigan's neuro-antitox to clean out toxins from brain

tonyaraven
Regular Member


Date Joined May 2017
Total Posts : 398
   Posted 1/1/2018 2:40 PM (GMT -6)   
Thanks Girlie and dbwilco. It always helps to hear others can relate and that I'm not a special case that no one can understand!! So i have been on augmentin(4 pills at 1000mg) and malarone (3 a day), crypto plus only once a day and artemisinin solo plusing at a low dose (250mg). I've been on that protocol for months with the only change was starting the Artemisinin solo about a month a go. I was doing fine on these with only small herxes here and there that would last part of a day. THe only thing that continued to be a problem was an continuous yeast infection, fungal nails and angular chelitis so I took diflucan last week for 3 days (it didn't make me feel well so I stopped) but the horrific herx/flare didn't start until a week after the diflucan so it's so hard to know what is the cause of all this! I just want it to end!! I did have a chiropractor who my llmd recommended do muscle testing on me and he said that my Lymphatic system was having a hard time draining so my detoxing is not working as efficiently. I am detoxing like crazy: epsom salt baths, dry brushing, activated charcoal, yucca, lymph detox, lemon water and yesterday I did 2 glasses of alkazetzer gold. I need to get more pinella and neuro antitox, I did have those but ran out many months ago and never really needed them until now! My new year's resolution is to stop crying and try to be as positive as possible even when I feel like I am dying!! It's going to be challenging...not sure I'll keep my resolution even for the first day!!!!

dbwilco
Regular Member


Date Joined Mar 2016
Total Posts : 297
   Posted 1/1/2018 2:53 PM (GMT -6)   
im on mepron right now, and im WAY more emotional than normal, worrying about every symptom, is this the right treatment, are abx ruining me, is this candida or co-nfections etc...ive seen it called the "mepron blues"...since youre on malarone, i wouldnt be suprised if thats helping your tears flow...you sound like me, in that you want all the info, and will do all the detoxing, expecting this disease and treatment to make sense. it doesnt. symptoms seem to come and go.

i mentioned earlier diflucan is used by my llmd to specific go across the BBB, and it did cause a neuro herx with me...also diflucan causes your liver to slow down (not necessarily a bad thing, though it can be tough on your liver)...but this slowing down of your liver can kick the other meds up a notch...thats why youre not supposed to take xanax and things like that while on diflucan, as the liver wont clear it as fast....

goshawk
Forum Moderator


Date Joined Sep 2016
Total Posts : 2299
   Posted 1/1/2018 3:58 PM (GMT -6)   
Hi have you ever used Red Root herbal tincture? This helps with moving things along in the lymph system.

As others said the Jernigans Neuro Anti Tox II CNS/PNS helps .


It's OK to cry, battling these infections is not usually easy for us. It's better to let it out, rather than keep it in.

There were times were I thought I was going to die from the neuro symptoms...but I made it through.

You will too, your body just needs to get back to a more stable place and like others said it can take some time.

Don't worry about resolutions, you are not feeling well, so it would be better to set small goals and tasks.

Simple goals like taking a few minutes every day to reflect on something that makes you smile, or setting a time daily to take extra special care of yourself....maybe write in your journal a future goal or dream that you will accomplish when you are well.

We are so busy taking care of our physical body we need to remember to take care of our mind and soul.

You will be stronger and healthier someday.

The good thing is tomorrow your llmd should be in and you can call them.

Take care, Jo

Traveler
Elite Member


Date Joined May 2007
Total Posts : 36310
   Posted 1/1/2018 4:16 PM (GMT -6)   
Well, one thing to take into account would be the long term use of arteminisin. I know that it's somewhat controversial in some circles, but Buhner is a highly renowned Herbalist and his cautions should be given deference.

Here is what he has to say about the use of arteminisin:
"Arteminisin begins to become less present in the blood the longer it is taken; by day 7 the constituent is only present at 24% of it's day 1 levels. The isolated constituent is not very effective if taken longer than 7 days at a time for parasitic infections. If it doesn't work for Babesia (or whatever) within a few week to a month, it is not going to. Pulsing will not help."

From your timeline though, I would think that it was a herx from Candida that has you in it's grips right now. Candida produces toxins known as gliotoxins. According to Dr. Neil Nathan (an expert on molds), gliotoxins are most effectively bound by Bentonite clay and S. boulardii (a probiotic, actually). It may be something to either check into yourself or talk to your doctor about.

I'm not sure what's in the "lymph detox" that you said you were taking, but red root will help with detoxing the lymph system, as will lymph massages (/www.youtube.com/watch?v=QA-wi0d7-Ro ) - just watch the red root, as it can also "thicken" the blood and make it more difficult for the body.

Keep on working on detoxing more/better - that's a huge part of our healing!
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New set of infections 8/2014 - still treating.
Come visit me: dogwoodtraditionals.freeforums.net/

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33909
   Posted 1/1/2018 4:42 PM (GMT -6)   
Malarone consists of Atovaquone and Proguanil.

The atovaquone has a half life of 2-3 days. So if you've been taking it for months...it builds up.

So, it could very well take awhile before your herxing subsides - if the malarone is contributing.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

tonyaraven
Regular Member


Date Joined May 2017
Total Posts : 398
   Posted 1/1/2018 4:59 PM (GMT -6)   
Yes, I gave up on that New Year's resolution fairly quickly! Maybe it is the Malarone, I think the moon could also be affecting my mood as well as just feeling so incredibly bad! Thanks to all of you for the feedback! I'm going to be good to myself and if crying is what I need then I'm going to be ok with it!! It seems like it makes sense that the Diflucan caused this insane herx from the things you've said. I looked at the Cryto plus I'm taking and it actually has red root in it so I have been taking that. I actually have some Bentonite clay so I might try some of that. The other thing that I read that is good for a candida herx is molybdenum which I think I'll try. Interesting about the Arteminisin, I wonder if it's working for me.

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 9729
   Posted 1/1/2018 5:49 PM (GMT -6)   
tony, don't discount the full moon and the possibility that it can influence your body.

Make sure you put this in your journal and if it happens again, check of what phase of the moon we are in.

tonyaraven
Regular Member


Date Joined May 2017
Total Posts : 398
   Posted 1/1/2018 9:47 PM (GMT -6)   
Yes, PeteZa, I will put that on my journal as well. So hope that this herx/flare will mellow out soon, I feel so spent! I so badly need a break so that I can rebuild my strength!

dacarte3
Veteran Member


Date Joined Feb 2016
Total Posts : 1903
   Posted 1/1/2018 11:03 PM (GMT -6)   
goshawk said...
Hi have you ever used Red Root herbal tincture? This helps with moving things along in the lymph system.

As others said the Jernigans Neuro Anti Tox II CNS/PNS helps .




I endorse this recommendation. Red Root and then herbs specifically for neuro symptoms.

Pinella. Neuro protocol that I use (Choline, Huperzine A, EGCG, Fish oil) I recommend as well.

And as others have said, herxing can last for several days, even an entire week. Just hang in there.
Lyme (Igenex) - Positive IFA and WB bands 23, 31, 41
Ehrlichia (Igenex)
Mycoplasma (Labcorp) - Score: 595

ABX Treatment: 03/2016-04/2016; 7/2017-9/2017
Buhner Protocol for Lyme and Mycoplasma: May 2016 - Dec. 2016; 8/2017 - Present

tonyaraven
Regular Member


Date Joined May 2017
Total Posts : 398
   Posted 1/2/2018 12:17 AM (GMT -6)   
I'm going on day 6 tomorrow and headache is definitely much worse tonight. I will definitely get lots of neuro detox herbs tomorrow. I'll share with you what my llmd says as well. I'm trying to figure out how to get a bit of relief tonight it's like I'm being stabbed in my head and then the pressure of a vice too😩
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