Do i have lyme?

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Fasih
New Member


Date Joined Jan 2018
Total Posts : 7
   Posted 1/1/2018 4:50 PM (GMT -7)   
Been reading the posts here for a couple of days and i think its time i join in here as well.

I am a 25 year old Male. I think i have lyme but i want to discuss my symptoms with you guys. After all, you guys seem experienced and quite knowledgeable whereas i just found this forum.

There is a summary of my 1 year visits to doctors at the bottom. So, check the last paragraph if you don't have time or interest.

In the summer of 2016, our university trip went to a Northern area (in Pakistan). We spent a few days there and when i came back i noticed a weird insect under my armpit. I panicked and went to the doctor to see what it is. The doctor didn't have any clue and he just cut it in half and pulled the other half with some tweezers. Anyway, i didn't know it was a tick back then and neither did the doctor so i just started living my life.

Fast forward to Jan-Feb 2017, i noticed my thighs vibrating. I just thought its nothing and probably because i sit a lot and my laptop is always in my lap or on legs. The vibrations started getting words in the next couple of months and i decided to go to a doctor in April-May. He performed some tests (B12, Vitamin D and Calcium (Not sure about the names of the tests but these things came up in the results)). I was Vitamin D deficient so he gave me Vitamin pills and injections. I took the pills for 2 months and the vibrations went away. I spent Aug and half of September in peace. In the mid-end Sept, the vibrations came back. I took it lightly thinking that Vitamin D levels must have gone down again. I went to the same doctor (end of October) and he gave me Vitamin D pills and told me to do a Vitamin D test if these doesn't help me.

After 2 weeks, the medicine didn't help and my Vitamin D levels were fine. At this point, things started to mess up for me. This is the point where i panicked. I went to the doctor only to find out that he went away on vacations for 3 months and no one gave me his cell number. I consulted another doctor and he told me its nothing and you are young just exercise and you will be good. He was like you are wasting money on all of these tests. I joined the gym and started searching at this point. I also went to a couple more doctors but mostly just gave me vitamins and muscle relaxants. I also want to say that i was experiencing breathing problems (i couldn't breathe fully) and mid-left chest pain especially during night. A lot of the times i stayed up all night because my heart was racing or i had pain in left and mid section of chest. I also had dizziness and my feet and arms used to get cold and numb during these sessions at night. I got scared thinking that i am having a heart attack or my heart isn't well (our family has heart problems). I went to the ER a couple of times and they just simply said its nothing and probably a muscle pain (they ruled out the heart problem because it wasn't a radiating pain but a shooting one). At this point, my vibrations started happening in my arms and face. I also started getting sharp pains in my thighs (sharp narrow shooting pain) but the pain wasn't severe and happened only for a short interval. I was getting cramps all over my body and even on my temples and jaw. Whenever i yawned i felt like i had a spasm on my face. It hurt like hell on the left temple-jaw-lower side of jaw area. I was getting really worried at this point and i figured it out that my symptoms are related to neuropathic pain so i decided to go to a neurologist. I told him everything and he said it looks like neuropathic pain so he gave me nuberol forte (muscle relaxant), neurobion and gabica. I didn't take gabica but i kept taking neurobion since i read that it helped a lot of people and because i was still thinking that it might be related to some vitamin deficiencies. Oh, one more thing, when i asked the neurlogist what might be causing this then he simply said (within a second) i don't know and took a sip from the cup . rolleyes

All of this happened till the end of November. In December, vibration is all over my body. I have random pains all over my body especially around chest (back side of the chest its kind of like someone pushed a rod from the front of the chest and took out from the back so a sharp pain happens from the front till the exact back of side of the chest), neck, shoulders, thighs and on the lower (and mid) back. I also have sharp pain on the left side of jaw (jawline) on temples and sharp pain in the left side of head and on the back side of the ear. These head and jaw pains came in December. All of these pains don't last very long and aren't severe but they are sharp pains (3-4 from a scale of 1-10) and worrying me. Since the last week i was so worried and found this forum and started reading about lyme and now i started thinking about the timeline and it occurred to me that it can be a lyme disease. So, here i am consulting with you guys.

So, i went to a doctor today to tell her the symptoms and maybe it is related to lyme but she said no its just anxiety and she gave me Hilin 50mg and Xanax 0.25 mg for 2 weeks and told me to do Blood CP and Peripheral Film tests. This is where i am. I still think its lyme but what do you guys think? I used to think its because of anxiety but the tick incident made me confident about lyme (although i don't want it to be) but i just don't understand how can these sharp pains be cause by anxiety. I am less stressed nowadays than i was in October (i had family problems, exams, job) and these headaches and jaw pain are new symptoms for me.

Things i do that i think might be causing some symptoms

I sit a lot and use computer all day. Probably 8-10 hours a day. (I am a software engineer). From the past 2 weeks i have started using computer while standing and i try to sit less especially in my bed. Trying to keep my posture good.

Yes, i am stressed a lot. Always worrying

I sleep less. 5-6 hours on average and always sleepy

I don't go to gym but i try to walk as much as possible

I have noticed i am always keeping my muscles tight and clenched as well

Irregular sleep patterns and insomnia sometimes. I have to work and keep myself up till 4 am usually

Things that make me better

sleeping more and less worrying made the vibrations a bit less but not entirely gone. But i am not sure whether its because i was sleeping most of the time and not feeling it?

Walking and standing make the tingling and burning sensation almost gone. I feel vibrations while sitting or laying down

Summary
Since the beginning of 2017, i have been experiencing vibrations in thighs that spread to arms and now whole body. Now i get numbness, cold, burning and vibration feelings a few times a day. Was diagnosed by Vitamin D deficiency but vibrations came back even after my levels were normal. Been diagnosed with neuropathic pain and other doctors just give me vitamins and the latest doc gave me anxiety medicine (xanax and Hilin). I found this forum a few days ago and read about lyme and i remember a tick bit me in April 2016. I didn't know it was a tick back then so i didn't notice the rash or what kind of tick it was.

I am experiecning vibrations and sharp pain all over the body. pain is usually in thighs and now in the mid section of my body. I am also having mid chest pain with short breaths problems especially at night. Just recently (a week ago) i started having sharp pin point pain on the left-top side of my head and on the back side of my ear (not really my ear but behind that on the head). Pain in left temple and left side of jaw (jaw line). Used to have lots of cramps/spams all over my body (feet, hands and even face) whenever i moved a lot but now those are gone.

Need help. Is this lyme? or anxiety? I haven't started xanax because i dont want to take it i am scared of addition side effects as well.

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 9570
   Posted 1/1/2018 5:02 PM (GMT -7)   
Welcome and so sorry you are suspecting lyme.

I think you need to have a lyme test. Most doctors will send you to a lab that does not specialize in detecting lyme disease.

Here are some labs that we suggest in the USA --

DNA Connexions - https://dnaconnexions.com/index.html
DNA CONNEXIONS
4685 Centennial Blvd,
Colorado Springs, Co 80919
Tel: 719-219-2826
Toll Free: 888-843-5832
Fax: 719-548-8220
Email: info@dnaconnexions.com

Advanced Lab - http://www.advanced-lab.com/spirochete.php
Advanced Laboratory Services Inc.
501 Elmwood Ave.
Sharon Hill, PA 19079
Phone 855-238-4949
Fax 855-238-4946

Igenexx - http://www.igenex.com/
795 San Antonio Rd, Palo Alto, CA 94303, USA
US: (800) 832-3200
International: +1 (650) 424-1191
Email: customerservice@igenex.com

I hope you are US. Also, you can take one of these tests and see how you score.

/www.lymediseaseassociation.org/images/NewDirectory/Resources/DrB_SymptomList2005Pdf.pdf

lymeontario.com/wp-content/uploads/2015/03/Horowitz-Questionnaire.pdf

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 28756
   Posted 1/1/2018 5:05 PM (GMT -7)   
Hi Fasih, welcome!


My story: After suffering from left shoulder blade 'pinched' nerve symptoms (resulting in frozen shoulder) for over 4 months...I started to get vibrations in my upper body.

Mine isn't from anxiety. It's from Lyme disease and co-infections.

Lyme is in my CNS (brain/spine) and I have/had many more symptoms than what I mentioned...but the vibrations (and now nerve pain) have been two of my worst ones.
So, I can sympathize with what you're going through.

I think you should get tested for lyme disease. A good testing facility is Igenex Lab in California. You can call them and request they send you a test kit.
You can get a Lyme WB Igm and IgG for $250.

They also have some new tests - Lyme IGX Spot and Lyme ImmunoBlot Igm and IgG

I wouldn't get all of them...but choose either the WB's or the new tests.

You can also go to a LLMD for an evaluation. We can help you find one. You want to see a Lyme Literate Dr. because they are 'specialists' in diagnosing and treating tick borne diseases.
If you see a Dr. who is not lyme literate, even IF he agrees to treat you, it will not be long enough and not the right dosages/combinations of antibiotics.

We can help you find a LLMD. Start a new thread: "Looking for LLMD in/near____" and fill in the blank with your city.
Then enable your email option so members can send you names privately. We don't post the names of LLMD's on the forum - for their privacy.

You can also email me and I may have some options for LLMD's near you.

Here is a link to Igenex website:

/www.igenex.com
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

WalkingbyFaith
Veteran Member


Date Joined Aug 2017
Total Posts : 651
   Posted 1/1/2018 7:42 PM (GMT -7)   
Fasih,

Welcome! You are certainly reasonable to suspect Lyme based on symptoms and circumstances. I definitely don't believe anxiety is causing your symptoms. Neither do I believe that things you are doing are causing your symptoms. It's possible some things we do can aggravate symptoms, but that's not the same as causing them.

dacarte3
Veteran Member


Date Joined Feb 2016
Total Posts : 1729
   Posted 1/1/2018 9:08 PM (GMT -7)   
I read tick bite and then your first symptom. That's all we need to know.

High probability of lyme and co-infections. Not 100% guaranteed but high probability.

Please get tested.
Lyme (Igenex) - Positive IFA and WB bands 23, 31, 41
Ehrlichia (Igenex)
Mycoplasma (Labcorp) - Score: 595

ABX Treatment: 03/2016-04/2016; 7/2017-9/2017
Buhner Protocol for Lyme and Mycoplasma: May 2016 - Dec. 2016; 8/2017 - Present

Fasih
New Member


Date Joined Jan 2018
Total Posts : 7
   Posted 1/2/2018 5:20 AM (GMT -7)   
PeteZa said...
Welcome and so sorry you are suspecting lyme.

I think you need to have a lyme test. Most doctors will send you to a lab that does not specialize in detecting lyme disease.

Here are some labs that we suggest in the USA --

DNA Connexions - https://dnaconnexions.com/index.html
DNA CONNEXIONS
4685 Centennial Blvd,
Colorado Springs, Co 80919
Tel: 719-219-2826
Toll Free: 888-843-5832
Fax: 719-548-8220
Email: info@dnaconnexions.com

Advanced Lab - http://www.advanced-lab.com/spirochete.php
Advanced Laboratory Services Inc.
501 Elmwood Ave.
Sharon Hill, PA 19079
Phone 855-238-4949
Fax 855-238-4946

Igenexx - http://www.igenex.com/
795 San Antonio Rd, Palo Alto, CA 94303, USA
US: (800) 832-3200
International: +1 (650) 424-1191
Email: customerservice@igenex.com

I hope you are US. Also, you can take one of these tests and see how you score.

/www.lymediseaseassociation.org/images/NewDirectory/Resources/DrB_SymptomList2005Pdf.pdf

lymeontario.com/wp-content/uploads/2015/03/Horowitz-Questionnaire.pdf


Thank you for the information. I took the Horowitz Lyme-MSIDS Questionnaire test and i scored 65+ sad

Unfortunately, i am not from US. I am from Pakistan so i am going to look for LLMDs in Pakistan. Hopefully i can find one.

Fasih
New Member


Date Joined Jan 2018
Total Posts : 7
   Posted 1/2/2018 5:26 AM (GMT -7)   
Girlie said...
Hi Fasih, welcome!


My story: After suffering from left shoulder blade 'pinched' nerve symptoms (resulting in frozen shoulder) for over 4 months...I started to get vibrations in my upper body.

Mine isn't from anxiety. It's from Lyme disease and co-infections.

Lyme is in my CNS (brain/spine) and I have/had many more symptoms than what I mentioned...but the vibrations (and now nerve pain) have been two of my worst ones.
So, I can sympathize with what you're going through.

I think you should get tested for lyme disease. A good testing facility is Igenex Lab in California. You can call them and request they send you a test kit.
You can get a Lyme WB Igm and IgG for $250.

They also have some new tests - Lyme IGX Spot and Lyme ImmunoBlot Igm and IgG

I wouldn't get all of them...but choose either the WB's or the new tests.

You can also go to a LLMD for an evaluation. We can help you find one. You want to see a Lyme Literate Dr. because they are 'specialists' in diagnosing and treating tick borne diseases.
If you see a Dr. who is not lyme literate, even IF he agrees to treat you, it will not be long enough and not the right dosages/combinations of antibiotics.

We can help you find a LLMD. Start a new thread: "Looking for LLMD in/near____" and fill in the blank with your city.
Then enable your email option so members can send you names privately. We don't post the names of LLMD's on the forum - for their privacy.

You can also email me and I may have some options for LLMD's near you.

Here is a link to Igenex website:

/www.igenex.com


Thank you and i am sorry you are going through this too. It is a horrible thing sad I hope you are doing fine now?

Since i am from Pakistan, i hope i find a Lyme specialist here. I went to 2 big hospitals looking for a specialist but couldn't find one. I asked my friends and family as well. I think i should create a new post for finding a LLMD in Pakistan. Do you know someone in these forums from Pakistan? He/She might have some information.

Fasih
New Member


Date Joined Jan 2018
Total Posts : 7
   Posted 1/2/2018 5:29 AM (GMT -7)   
Thank you to everyone else who replied. I am going to find a specialist and get tested asap. I am already sick of these symptoms sad Let's just hope i find one near me.

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 9570
   Posted 1/2/2018 8:30 AM (GMT -7)   
I don't know of a member from Pakistan, but MANY people read this forum and are not members. It is an open forum for anyone. So many your story will help someone to join.

There are herbal protocols you could do while trying to find a lyme literate medical doctor.

Stephen Buhner has a book called Healing Lyme, 2nd Ed. that has a protocol in Chapter 8 for taking herbs.

Willaim Rawls, MD has a book called Unlocking Lyme with just about the same protocol.

If you have trouble finding the books but are interested in the Buhner herbal protocol, I will be glad to post it here for you.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 28756
   Posted 1/2/2018 12:10 PM (GMT -7)   
Fasih - i don't have any LLMD's listed for Pakistan.


There is a hospital that does treat LD, but treatment looks to be just for acute cases.
(You've most likely looked at that option already)


/hospitals.aku.edu/pakistan/diseases-and-conditions/Pages/lyme-disease.aspx
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Fasih
New Member


Date Joined Jan 2018
Total Posts : 7
   Posted 1/3/2018 3:34 AM (GMT -7)   
Girlie - Yes, i have already checked them and they don't have a specialist around my area. But, they do have one in another city so i am hoping to get an appointment with him.

PeteZa - I couldn't find the pdfs of these books sad Would you be kind enough to post these here? or email me? I have my email on public smile
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