Hello everyone! I am a Healing Well member (Veteran Member - I like the sound of that rather then what could have happened) since 2006. I joined Healing Well around April 2006 when I figured out researching on my own that I indeed had some type of insect borne disease. In 2003 (looking back as hindsight is 20/20) I started having various low grade symptoms that would come and go. Severe night sweats on and off (thought it was early menopause), significant weight loss for no apparent reason, yeast infections, couldn't handle any alcohol at all, dizziness on and off and poor balance. I was a long distance runner, running in the woods every morning for years... like at 5am. Years went by of writing in my journal trying to figure out what I had going on. Many lab tests and nothing found. I still was able to continue my long distance running, but remember one day running on a country road at a good clip and my legs just gave out underneath me and I fell hard to the dirt and gravel which resulted in much scarred knees. Then the disease/infection came out with a vengeance in June 2005 when I went on an antibiotic for dental work.
I was very ill for almost one year before I was finally clinically diagnosed with Lyme by a family physician that did the right thing and gave me a trial of tetracycline. I "herxed" for months and months and was on antibiotics for ~eight months and then a herbal regime that I also figured out on my own. Visits to 12 doctors, but because of negative Lyme tests not one thought outside the box and continued to look for the root cause of my severe symptoms by June/July 2005 increasing in intensity to: exercise intolerance (couldn't walk up 3 steps without being out of breath let alone run anymore), brain fog, severe balance and dizziness issues, severe insomnia, extreme fibromyalgia, feeling like I had "the flu" that never went away. The doctors only really offered drugs or band-aides such as sleep meds, pain meds, anxiety meds, you name it until my final doc who did the "right thing" and gave me a clinical diagnosis of Lyme to get the antibiotics I so desperately needed. By the time I went on my first antibiotic (tetracycline around April or May 2006) I am sure I was on my way to being in a wheelchair. I had neuropathy (no feeling in my hands consistently and on & off in my legs). I'd wake up with a leg asleep and could no get it back to life for minutes upon minutes of pounding on it. They wanted to diagnose me with one of the auto-immune disease such as MS or Lupus.
I was on MD prescribed antibiotics about 8 months, first tetracycline, then biaxin/plaquenil for 6 months and NO other medications because I wanted to feel my pain so I could figure out if I was on the right track or not. January 8th 2007 was my last day of consistent antibiotics because my gut instinct told me it was time to stop. By that time I had already been researching my own herbal regime and body rehab to get better so I switched from antibiotics to that regime. You have to have a plan and be ready to back off if it doesn't work. I started out walking just a few feet to a light pole on my street and then increased my distance over time until I was able to slowly add in running all the while taking the herbal regime I had concocted.
11 years later this coming January 8th 2018 and I am so proud of myself that I thought outside the box and did not believe the nay-sayers telling me that I was never going to get better and would probably be ill the rest of my life. I am so glad I did not believe the doctors that would not accept I had an infection and only wanted to give me prescription pain killers and sleep aides. I went with my gut instinct and it worked.
I run, I teach an exercise boot camp, and I have been off all antibiotics for 11 years January 8th. I keep my stock pile of herbs which is quite extensive and I do not share that with others at least not yet. I feel that everyone has a different toxic soup so to speak and what I did to get well may not work for others. I call it Re-hab and everyone's path to get well is a little different than others. In fact, I tried to help one person and she kept getting the amounts of the herbs wrong (because of her brain fog) and she literally could have killed herself. Herbs can be very dangerous if taken wrong, combined wrong or not knowing correct dosages. The only thing I can say for sure to everyone is that if you do indeed have Lyme or Lyme and Co-infections and have never been treated with antibiotics that you must take that first course of antibiotics as per your MD. My gut knows this and has known for some time, but research is now showing that you need to get that first course of antibiotics to stop the progression of the disease before it takes over completely.
I don't post a cure, but mainly post to give even just that one person out there hope, that is doing now just like I did back then in 2006, scouring the Lyme sites looking for answers and especially for hope, that someone would post they did get well. I remember wondering where all the people that got well were. Why did they not post? Well, I am someone that got well, and I made a promise to myself that if I ever got well, I would post that I did get well.
Don't let other people rain on your parade, go with your gut instinct, stay off any unnecessary medications and work with your Lyme literate doctor to get the right treatment for you. I know there will be a quick total cure someday, you need to "not kill yourself trying to kill the Lyme" so that you will be here to get that cure.
Happy New Year Everyone! May 2018 be your year to get well!