Success with mycotoxins?

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Mister Mike
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Date Joined May 2016
Total Posts : 331
   Posted 1/4/2018 9:23 PM (GMT -6)   
Hey all – curious for info from those who tested positive to having mycotoxins and successfully cleared said mycotoxins. I finally got tested and have very high levels. My doc has put me on a protocol but I'm curious what has worked for others.

Thanks!

Deejavu
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Date Joined Aug 2005
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   Posted 1/5/2018 7:35 AM (GMT -6)   
Sorry Mister Mike, I was never tested for mycotoxins. I'm assuming you mean some type of mold?

Bump for more responses....

Denise
12 years well ~ used Dr. Jernigan's protocol from his book about Biological Medicine (used Borrelogen, Microbojen and Neuro-Antitox).

I still detox even though healed and drink Green Vibrance. I come back to help others for others helped me when I was sick. Pay it forward! smile

http://javuviews.wordpress.com/2013/04/24/how-i-became-better-from-chronic-lyme

WalkingbyFaith
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Date Joined Aug 2017
Total Posts : 1988
   Posted 1/5/2018 2:16 PM (GMT -6)   
Hey! I was positive for gliotoxin through Realtime Labs in Oct 2016. Was exposed to lots of aspergillis plus moderate amounts of other mold per ERMI test on home and workplace. Left home and workplaces in Sep 2016 for a less moldy place. Took low doses of cholestyramine for 11 days Nov 2016. Stopped after symptoms became unbearably worse. Used activated charcoal and modified citrus pectin since then. Still haven't retested for mycotoxins yet, so I have no idea if my numbers will be lower or higher. My mother was tested also. She had gliotoxin and trichothecenes. My guess is if I tested again, my numbers would be higher now and that I would also be positive for trichothecenes. I'm a terrible detoxer. I've been thinking of retesting soon. I just am worried about money. I had to stop working and have not received any income since the end of March.

I will say that after getting out of the mold, I had horrible symptoms for 7 months straight before I had one good day. After that, the awful burning subsided and I got the feeling that I'd gotten most of the mold toxins out. But without testing, I have no way to know for sure.

I started Buhner's protocol for Lyme and co in June and have been dealing with more toxins since then - either bacterial endotoxins or heavy metals getting dislodged or both. So, I've been back to burning again, but this burning feels somewhat different. It's so weird how you learn to feel and sense things in the absence of the hard data and scientific proof we've been taught to trust in.

Mister Mike
Regular Member


Date Joined May 2016
Total Posts : 331
   Posted 1/5/2018 10:14 PM (GMT -6)   
Thanks Denise! Great to see you and hope you're doing awesome. Yeah, I make the distinction between mold species like Aspergillus and the mycotoxins they produce such as Ochratoxin A, but they're definitely in the same neighborhood.

Thanks WalkingByFaith! Not sure if you're aware of it, but Great Plains Labs now has a mycotoxins test which at $299 is much cheaper than Real Time Labs. I know any cost now is too much seeing you are not working, but just something for you to tuck away for later.

I'm on Quench (activated charcoal, bentonite clay, chlorella and slippery elm) as a binder and will be starting Bryon White FNG and AV, Detox 1 for mycotoxins. I have cholestyramine but it is with the additives which doesn't do me any favors. I did modified citrus pectin for a while and your comment is a good reminder to add that back in too.

Post Edited (Mister Mike) : 1/5/2018 8:26:51 PM (GMT-7)


k07
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Date Joined Sep 2015
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   Posted 1/5/2018 10:26 PM (GMT -6)   
Hi Mike. I’m waiting on my neuroquant mri results which can indicate mold vs lyme by what parts of the brain are inflammed. I am also doing 10 doses of desmopressin (every other day) to address very low adh. Retesting marcons the end of Feb, then possibly on to VIP. My doc has not mentioned csm which is concerning since it’s a big part of shoemaker protocol. I am also doing MCP - have been for 2 1/2 yrs now. One of my fav binders because it helps with my insomnia.

Mister Mike
Regular Member


Date Joined May 2016
Total Posts : 331
   Posted 1/5/2018 10:36 PM (GMT -6)   
Thanks K07! Have you been confirmed to have mycotoxin illness or is that why you're having the neuroquant?

My adh is the only one of shoemaker's tests that my doc hasn't tested for yet, but I assume it is very low due to very frequent urination.

I don't know what my doc's opinion is of VIP. I'll have to ask at the next appointment.

Have you read Dr Neal Nathan's mold and mycotoxins ebook? Brilliant stuff. Only $7.99 on amazon.

WalkingbyFaith
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Date Joined Aug 2017
Total Posts : 1988
   Posted 1/5/2018 10:36 PM (GMT -6)   
Mr. Mike,

Thanks for the tip about the lab. Realtime offers retesting at a reduced cost up to 18 months after initial test. If I remember right it's around $225-250. I need to go ahead and do it soon.

Mister Mike
Regular Member


Date Joined May 2016
Total Posts : 331
   Posted 1/5/2018 10:38 PM (GMT -6)   
Good to know WalkingbyFaith! If you ever need to commiserate or just share info as a fellow "moldie" feel free to shoot me an email anytime!

Mister Mike
Regular Member


Date Joined May 2016
Total Posts : 331
   Posted 1/7/2018 10:50 AM (GMT -6)   
Bumping for more views.

k07
Veteran Member


Date Joined Sep 2015
Total Posts : 2537
   Posted 1/7/2018 12:47 PM (GMT -6)   
I definitely have biotoxin illness - either lyme or mycotoxin - hopefully neuroquant will shed some light. I only had high gliotoxin on realtime labs. Have lyme hla gene only.

When i take the desmopressin my urination returns to normal (no going at night) till about noon the next day (take before bed). Then my frequency picks up and I go even more than before. Like every 30 min... So it’s not fixing anything. I think that is what VIP can hopefully accomplish.

I really liked Neil Nathan’s book. I read it when it first came out - I probably should re-read.

Mister Mike
Regular Member


Date Joined May 2016
Total Posts : 331
   Posted 1/7/2018 1:38 PM (GMT -6)   
Thanks K07. If you haven't had it done yet, I highly recommend the Great Plains Lab mycotoxin test as it pinpointed exactly which mycotoxins I have. Depending upon the most prevalent mycotoxin one has, that actually directs you towards what binder is best as per Dr Nathan. Good luck with the neuroquant!

ChickenArise
Veteran Member


Date Joined Nov 2015
Total Posts : 1530
   Posted 1/14/2018 1:34 PM (GMT -6)   
Fucoidan as well as Brown Seaweed are known to be helpful for detoxing mycotoxins. I continue to supplement with these daily.

Modified Citrus Pectin was another helpful supplement I did twice in two month intervals at high doses.

Chitosan is also one that I am testing currently

2014 Mold Sick,2015 Clinical Lyme and co.,2016 Morgellons,2017 Remission
YT: ClintFromNYtoVA2
Twitter: @ClintFromNYtoVA
Blog: www.fascinatingtimetobealive.blogspot.com/
" Expectations are the leading cause of disappointments "

Post Edited (ChickenArise) : 1/14/2018 11:37:36 AM (GMT-7)


WalkingbyFaith
Veteran Member


Date Joined Aug 2017
Total Posts : 1988
   Posted 1/14/2018 8:38 PM (GMT -6)   
ChickenArise said...
Fucoidan as well as Brown Seaweed are known to be helpful for detoxing mycotoxins. I continue to supplement with these daily.

Modified Citrus Pectin was another helpful supplement I did twice in two month intervals at high doses.

Chitosan is also one that I am testing currently


ChickenArise,

How high a dose of modified citrus pectin did you take? Did you get tested for mycotoxins? If so, did you have followup testing that showed your levels came down after detox?

ChickenArise
Veteran Member


Date Joined Nov 2015
Total Posts : 1530
   Posted 1/14/2018 9:27 PM (GMT -6)   
WalkingbyFaith said...
ChickenArise said...
Fucoidan as well as Brown Seaweed are known to be helpful for detoxing mycotoxins. I continue to supplement with these daily.

Modified Citrus Pectin was another helpful supplement I did twice in two month intervals at high doses.

Chitosan is also one that I am testing currently


ChickenArise,

How high a dose of modified citrus pectin did you take? Did you get tested for mycotoxins? If so, did you have followup testing that showed your levels came down after detox?


4g daily, no, and no. So I guess I am disqualified. nono

2014 Mold Sick,2015 Clinical Lyme and co.,2016 Morgellons,2017 Remission
YT: ClintFromNYtoVA2
Twitter: @ClintFromNYtoVA
Blog: www.fascinatingtimetobealive.blogspot.com/
" Expectations are the leading cause of disappointments "

WalkingbyFaith
Veteran Member


Date Joined Aug 2017
Total Posts : 1988
   Posted 1/14/2018 9:33 PM (GMT -6)   
ChickenArise said...
WalkingbyFaith said...
ChickenArise said...
Fucoidan as well as Brown Seaweed are known to be helpful for detoxing mycotoxins. I continue to supplement with these daily.

Modified Citrus Pectin was another helpful supplement I did twice in two month intervals at high doses.

Chitosan is also one that I am testing currently


ChickenArise,

How high a dose of modified citrus pectin did you take? Did you get tested for mycotoxins? If so, did you have followup testing that showed your levels came down after detox?


4g daily, no, and no. So I guess I am disqualified. nono


Oh, 4g is not high dose to me. I've been taking Pectasol-C. Full dose is 15-20g per day. I've taken 5g for the most part, sometimes 10g. I was taking 10g for a while, but lately I've only been getting in two daily doses of binders - 3 charcoal capsules and 1 scoop of pectin.

ChickenArise
Veteran Member


Date Joined Nov 2015
Total Posts : 1530
   Posted 1/14/2018 11:55 PM (GMT -6)   
WalkingbyFaith said...
ChickenArise said...
WalkingbyFaith said...
ChickenArise said...
Fucoidan as well as Brown Seaweed are known to be helpful for detoxing mycotoxins. I continue to supplement with these daily.

Modified Citrus Pectin was another helpful supplement I did twice in two month intervals at high doses.

Chitosan is also one that I am testing currently


ChickenArise,

How high a dose of modified citrus pectin did you take? Did you get tested for mycotoxins? If so, did you have followup testing that showed your levels came down after detox?


4g daily, no, and no. So I guess I am disqualified. nono


Oh, 4g is not high dose to me. I've been taking Pectasol-C. Full dose is 15-20g per day. I've taken 5g for the most part, sometimes 10g. I was taking 10g for a while, but lately I've only been getting in two daily doses of binders - 3 charcoal capsules and 1 scoop of pectin.


Sometimes I doubled up, but wow.

I used the Vitacost brand.

I made so much progress with this dose in 2 months. How long have you been taking? The caveat is that I took 4g of monolauren with every dose at the same time. I dont know if this factored in. I have never read that monolauren has any effect on mycotoxins but I was taking it for Borellia/Oral Spirochete.

Although I never tested, my remaining teeth rotted hollow with a cavity at the base. This type of decay is a huge tip off to my version of this disease as many others infected have reported this same pattern of decay.

Most people get cavities at top or side of tooth but if any of your teeth are decaying at the base this is a big red flag.

These are relatively painless cavities because the nerve has already been eaten away by the invader before the tooth ever shows decay. They would be hollow by the time you see decay.

I cannot stress this enough. I wish I could shout it from the rooftops as I dont think it is common knowledge.

I hope you are dividing the doses over the course of the day.

I did a second follow up 2 month course after running out in between. I didnt make as much progress on the second course so it was time to change things up.

Chitosan has been compared to Welchol by some. Fucoidan has the pubmed literature to back it up.

2014 Mold Sick,2015 Clinical Lyme and co.,2016 Morgellons,2017 Remission
YT: ClintFromNYtoVA2
Twitter: @ClintFromNYtoVA
Blog: www.fascinatingtimetobealive.blogspot.com/
" Expectations are the leading cause of disappointments "

Post Edited (ChickenArise) : 1/14/2018 10:01:40 PM (GMT-7)


WalkingbyFaith
Veteran Member


Date Joined Aug 2017
Total Posts : 1988
   Posted 1/15/2018 2:58 PM (GMT -6)   
ChickenArise,

"Although I never tested, my remaining teeth rotted hollow with a cavity at the base. This type of decay is a huge tip off to my version of this disease as many others infected have reported this same pattern of decay.

Most people get cavities at top or side of tooth but if any of your teeth are decaying at the base this is a big red flag."

I'm not understanding your message about this type of tooth decay. This type of tooth decay is a big red flag indicating what??? What do you mean by "my version of this disease"?

Mister Mike
Regular Member


Date Joined May 2016
Total Posts : 331
   Posted 1/16/2018 7:48 AM (GMT -6)   
Thanks all for your comments. I'll have to try Fucoidan and Brown Seaweed. Used MCP for a little while before I got the definitive diagnosis of mycotoxin illness, but my doc has put me on a product called Quench which is a combo of activated charcoal, chlorella, bentonite clay and slippery elm, so I quit the MCP. May have to alternate that with the Quench though seeing folks have good results with it.

ChickenArise
Veteran Member


Date Joined Nov 2015
Total Posts : 1530
   Posted 1/16/2018 12:42 PM (GMT -6)   
WalkingbyFaith said...
ChickenArise,

"Although I never tested, my remaining teeth rotted hollow with a cavity at the base. This type of decay is a huge tip off to my version of this disease as many others infected have reported this same pattern of decay.

Most people get cavities at top or side of tooth but if any of your teeth are decaying at the base this is a big red flag."

I'm not understanding your message about this type of tooth decay. This type of tooth decay is a big red flag indicating what??? What do you mean by "my version of this disease"?


I have what I believe to be the Morgellons variant of Lyme. Before anyone gets technical I have heard it all and we would have to agree to disagree. My symptoms were similar to that of many with a few exceptions.

The disease has many fungal overgrowth characteristics as well as Bartonella related symptoms. Traditional Bartonella treatments were not effective in my case.

Cavities of the nature I described would indicate infection with the Morgellons variant.

2014 Mold Sick,2015 Clinical Lyme and co.,2016 Morgellons,2017 Remission
YT: ClintFromNYtoVA2
Twitter: @ClintFromNYtoVA
Blog: www.fascinatingtimetobealive.blogspot.com/
" Expectations are the leading cause of disappointments "

WalkingbyFaith
Veteran Member


Date Joined Aug 2017
Total Posts : 1988
   Posted 4/29/2018 9:49 PM (GMT -6)   
Just thought I'd update my response on this thread. My mother and I both finally got retested with Realtime labs for mycotoxins. I took cholestyramine for 11 days and have been on modified citrus pectin (usually 5 grams per day) since last May. My mother took Welchol for one month and recently got back on it (maybe 2-3 weeks).

My total results are now negative. Mom is still positive. We lived in the same moldy house and have been in the same alternate house for the past year and a half.

Interestingly, comparing my results with hers and comparing our retest results with our initial tests, it is evident we are simply being exposed to a different group of mycotoxins in our current living environment compared to our house. I had an ERMI done on the house we have been staying in. Total ERMI was 3.43 and HERTSMI-2 was 4. (HERTSMI-2 in our moldy house was 10.)

I recently had my TGFB-1 tested again. Three months after moving to the house we're in now, it was normal ar 1,481. This was a couple weeks after taking some cholestyramine. Two months after that it was up to over 4,000. I had been in a moldy dentist office right before thise labs were drawn, so I assumed the elevation then was from that exposure. When I tested again this February it was over 17,000. I was shocked. I don't really know what happened.

Possible explanations:

- mold in ducts is worse and HVAC wasn't running much at the time labs tested normal
- cross contamination mycotoxins on a bunch of furniture and personal belongings brought into the house late last year
- mold/mycotoxin exposure from my car
- is TGFB-1 affected by non-mold toxins???

Getting a Neuroquant MRI tomorrow. Hopefully, it will shed some light.
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