Do my symptoms sound like Lyme?

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Graceeb07
New Member


Date Joined Jan 2018
Total Posts : 3
   Posted 1/4/2018 10:12 PM (GMT -6)   
about a month ago I started to notice strange symptoms happening to my body. I started getting headaches on the left side of my head really bad tension headaches that moved to both side and pain the back part of my head as well. A feeling of just all over head pressure and sometimes ringing in the ears and ear pressure my chest has been tight and my ribs have been hurting in certain areas where I’ve never had these issues. I suffer from anxiety that’s seems to have started a few months ago prior to these symptoms. I went to the hospital from the pain in my head and had chest. I had an ekg done on my heart everything was fine. But I was still worried because I was having issues with light headidness and shortness of breath out of no where. No MRI done because all the tests seemed to just link to possible tmj issues since I was complaining about my jaw. Recently I started going to the chiropractor I had aching pain in my trapezius muscles and shoulder area, aching back pain. The treatments they had for me seemed to help for a little and then the issues started coming back again but my headaches are still here and and now more symptoms have come on. Recently I’ve started to have issues with muscle twitching almost like quivers in my thigh and then my arm and other areas not much pain but seems to come on when I’m resting and after I’ve done physical activity. My jaw has been horrible there’s popping sound on the one side of my jaw and my mouth just aches along with my teeth. Ive been helpless and worried sick because I’ve been thinking the worst about my health. I’ve always been a healthy person playing sports I’m only in my 20s. And all these symptoms have come on out of no where. I was led to this site because of a thought that came to mind, I was bit by a tick about 6-7 months ago and it was latched on to me for part of the day till I got a shower and realized. I can’t remever if I had a rash but I had a red bump that was on me for quite some time I want to say longer than 2 weeks. I never got any flu like symptoms but these past few months I have suffered with depression, anxiety, for a while I would have issues in my hands and wrists area it would be a sharp aching pain feeling almost deep in my bones. I brushed these symptoms off and they seemed to disappear. But now all of these crazy symptoms have just occurred in the past month and they seem to be off and on. I have my good days and my bad days. After reading through a lot of articles with people having the same symptoms of me I’m curious to see could this be the cause? I obviously need to get checked but where do I start with that? Please give any feedback if you think my symptoms sound anything like Lyme

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32611
   Posted 1/4/2018 10:33 PM (GMT -6)   
Hi Graceeb07 - welcome!


Because you had a tick bite (and a resulting red bump) along with symptoms...YES, it could very well be lyme disease...in fact I bet it is.

I suggest you see a LLMD for an evaluation. (Lyme Literate Dr.) 'Regular' Doctors will treat lyme disease for too short of a time...and often with too low doses of antibiotics.

We can help you find one: Start new thread titled: "Looking for LLMD in/near____" and fill in the blank with your town/city.

In addition to member's recommendations, you can also email me - and I will check my list for options.

You can also contact ILADS for LLMD names:

ilads.org/ilads_media/physician-referral/

We encourage our new members to take a look through the information in the thread: "New to Lyme?..Start Here!" It's packed full of useful information.

You can also get tested for lyme disease at a lab that specializes in tick-borne disease testing.
One of those labs is Igenex. You can call them and they will send you a test kit.
The Lyme WB IgM and IgG costs $210 for both.


It takes about 3 weeks to get results...so this can be done while you are searching for a LLMD..and waiting for the appointment.

You will need a Dr. to sign the Igenex lab req.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

PDXtransplant
Regular Member


Date Joined Jun 2017
Total Posts : 207
   Posted 1/4/2018 10:33 PM (GMT -6)   
When I was trying to figure out what was wrong with me, I called a naturopath I'd previously seen and asked if they could do a lyme test for me. That's how I got an Igenex test, but I had to pay out of pocket. While I was waiting for my Igenex results, while I was at urgent care, I got a doctor to do a different test. He did the ELISA, which came back negative. My Igenix test was positive. I'd read a lot about how unreliable the ELISA is and I"m from Wisconsin and my old neighbor had lyme and a negative ELISA, so I'd go straight for Igenex (or another speciality lab). You can ask a naturopath, or, I've been told you can order a test kit yourself directly from Igenex. Though I believe you have to have a dr sign off on it.

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 9729
   Posted 1/5/2018 11:24 AM (GMT -6)   
I also was negative on the Elisa from my regular doctor and had positive bands with Igenex.

Welcome here Graceeb07

Graceeb07
New Member


Date Joined Jan 2018
Total Posts : 3
   Posted 1/5/2018 1:25 PM (GMT -6)   
Thank you for your responses I’m seeing my holistic doctor soon and I’m going to look for an LLMD in my area. I just have another question I’ve heard with tick bites to get Lyme disease the tick has to be attached for up to 24 hours, is that true? The tick that bit me was only attached for a few hours if that. I’m just curious because I never got any flu like symptoms I never had any major symptoms until months later. Is that common to not show symptoms until later on?

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32611
   Posted 1/5/2018 1:38 PM (GMT -6)   
Graceeb07 said...
I just have another question I’ve heard with tick bites to get Lyme disease the tick has to be attached for up to 24 hours, is that true? The tick that bit me was only attached for a few hours if that. I’m just curious because I never got any flu like symptoms I never had any major symptoms until months later. Is that common to not show symptoms until later on?


No, not true that the tick needs to be attached for 24 hours.
And..not everyone gets flu like symptoms.

I never saw a tick bite..and did not get flu-like symptoms.

Read the first paragraph (ILADS)

www.ilads.org/lyme/what-to-do-if-bit-by-tick.php

"While the longer the tick is attached, the higher the risk of transmission, it is possible to get Lyme disease even if the tick is attached for less than 24 hours. The salivary juices of the tick, which contain anticoagulants, anesthetics, and immune suppressors, also contain microbes that can be injected at the time of attachment. Transmission of bacteria by ticks attached less than 24 hours has been well documented in animals, and a recent paper last year documented that this can occur in humans as well."
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Post Edited (Girlie) : 1/5/2018 12:41:39 PM (GMT-7)


Missouri
Regular Member


Date Joined Sep 2017
Total Posts : 336
   Posted 1/5/2018 2:53 PM (GMT -6)   
GraceeB- I do not remember if I had flu like symptoms after my tick bite. I did not get a bulls-eye rash. I did however like you get a lump/ulcer/tumor thingy at the site of the tick bite that lasted for about a month if I remember right.

My symptom progression started with fatique, tight muscles, malaise and over time developed vision/eye issues, twitching, head pressure, burning tingling sensations etc. I was 2 years or so in before I considered Lyme.

Definitely hear you on the quiver in the thighs. Good word to describe that. That was definitely a big one for me.

Luckily I have responded well to treatment so far. I haven't twitched in the last 2-3 weeks or so!!!!

Keep in mind testing is TERRIBLE at picking up these tick borne pathogens.

I would recommend you get an appt with an LLMD. I came here with a similar story and someone told me I should make an appt with an LLMD. I did even though I wasn't sure what was wrong with me. I am forever grateful to that person. It is expensive, but so far for me worth every dollar spent (knock on wood).

Graceeb07
New Member


Date Joined Jan 2018
Total Posts : 3
   Posted 1/6/2018 10:23 PM (GMT -6)   
Thank you for the information that’s very helpful I always thought the tick had to be attached for a certain amount of time. By any chance ive read that floaters could be a symptom as well did anyone have any issues with that? I’ve just noticed recently I’ve started to have issues with floaters more than normal.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32611
   Posted 1/6/2018 10:28 PM (GMT -6)   
Graceeb07 said...
Thank you for the information that’s very helpful I always thought the tick had to be attached for a certain amount of time. By any chance ive read that floaters could be a symptom as well did anyone have any issues with that? I’ve just noticed recently I’ve started to have issues with floaters more than normal.


I don't have floaters, but it's been discussed here several times..here's a link to a recent thread:

/www.healingwell.com/community/default.aspx?f=30&m=3906900
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Missouri
Regular Member


Date Joined Sep 2017
Total Posts : 336
   Posted 1/8/2018 12:20 PM (GMT -6)   
I believe the "tick has to be attached for 72 hours" is total bs. This mentality is based on sterile lab experiments being tested with proper tick removal on mice.

Their claim about tick attachment time does not include the whole truth. Here is my beef with the current science:

They only tested B31 Borrelia. Other Borellia they do not know transmission specifics. They do not even know all of the vectors for certain Borrelia (B Lonestarii, B Bisettii, B Mayonii, etc...)

The tests were on ANIMAL transmission times, which may be very different in human transmission. They are guessing at human transmission time based on the handful of animal studies.

They have not thoroughly investigated transmission times for many co-infections.

People often do not use proper tick removal techniques. This could lead to the tick regurgitating their toxic gut contents right away. I know I personally did not know how to properly remove ticks until it was too late.

Sometimes the ticks head or mouth parts break off and are stuck in the skin. Those parts will remain in the skin well past their claimed 72 hours.

There is sooooo much gray science out there, it infuriates me to read these broad brush statements like they make about the 72 hour BS!!!!
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