I have only been on Doxy for about
3 weeks and thus far, I am only able to tolerate 100mg per day. When I take 200mg I puke, have burning, joint/back pain, insomnia, and a strange heavy feeling all over. I am doing daily detox treatments (epsom baths, Chlorella, lemon water, tried alka seltzer gold). My hair is so tangled and dry, I can't even run a brush through it. I just don't feel like I want to continue treatment, but I know that not continuing isn't an option either. I feel hopeless, and like I will never get better. We haven't even addressed the co-infections/cyst busters yet, and according to my doc, rifampin is a seriously strong antibiotic. I know it's early, but I can't see myself tolerating anymore than the tiny amount of Doxy I'm on and I feel like giving up. I still look young, but I swear I looked twice my age in holiday photos. I honestly don't even recognize myself anymore. I looked forward to starting treatments with the hope that I would notice an improvement, but it is starting to sink in that some of this may not be reversible, and that is really tough. The collagen loss and joint pain are on the level of my mom's in her 70s. As someone in their 30s, it's hard to imagine what life will look like when I'm elderly. My friend told me her friend is "cured" from Lyme, but their personality has never been the same. I know it's still early, I'm just feeling very discouraged.
My doctor also is unwilling to continue working with me until I get an EKG, has anyone else been required to get one? He is also recommending that I get my PCP (totally clueless) to order an EKG and bartonella tests, has anyone ever had bart diagnosed through a PCP? I thought the testing for co-infections was just as poor as Lyme tests.
My doctor also completed my FMLA/STD paperwork (listed my symptoms and a spirochete infection as my diagnosis), but stated that if the insurance company digs, he is not going to cooperate and does not want to jeopardize his practice. He made it seem like he is taking a big risk and going out on a limb for me for completing that paperwork on my behalf. I haven't heard from anyone here that any of their doctors have been given any trouble, is he just being paranoid?
Post Edited (CatLady18) : 1/4/2018 11:39:09 PM (GMT-7)