PGA Golfer Claims "Pulsed" Approach Working

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Fronton
Regular Member


Date Joined Sep 2014
Total Posts : 443
   Posted 1/5/2018 4:44 PM (GMT -6)   
Sad to see that Walker's wife was just diagnosed as well.
But towards the end she says a 2 week on and 2 week off regimen for her husband it working for him.


/www.golfdigest.com/story/as-jimmy-walker-continues-to-battle-lyme-disease-his-wife-reveals-shes-contracted-it-as-well

Sheeks175
Regular Member


Date Joined May 2016
Total Posts : 284
   Posted 1/5/2018 6:27 PM (GMT -6)   
He is seeing Dr. S.P in Wilton CT. You can go on his website and read his FAQ. He is really a believer in pulsing. He said he used to treat patients every day with abx, but it was taking years, so he switched to pulsing and finds it gets the same results much much quicker.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33848
   Posted 1/5/2018 6:46 PM (GMT -6)   
The article mentioned tetracycline. Hopefully there is another antibiotic with it.


Also said it's rare in Texas. rolleyes
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Mb244
Regular Member


Date Joined Oct 2017
Total Posts : 30
   Posted 1/5/2018 9:34 PM (GMT -6)   
Girlie -

Since he is treating off label (technically) is the doctor at risk of lawsuit?

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33848
   Posted 1/5/2018 9:41 PM (GMT -6)   
Mb244 said...
Girlie -

Since he is treating off label (technically) is the doctor at risk of lawsuit?


Why is it off-label?

Tetracycline is prescribed for bacterial infections.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Missouri
Regular Member


Date Joined Sep 2017
Total Posts : 396
   Posted 1/6/2018 9:00 AM (GMT -6)   
I think pulsing is considered “incorrect” by the CDC. I remember reading one of their passages that was basically saying not to use “alternative treatments” then it listed like 5-6 things that they say are “dangerous” “unproven” and “don’t work for Lyme”. Here is what I remember being on the list:
LLMD’s
Pulsed antibiotic dosing
Hyperbaric
Ozone
Bi****h injections

Serfr
Regular Member


Date Joined Jan 2014
Total Posts : 264
   Posted 1/6/2018 3:35 PM (GMT -6)   
Has anyone ever pulsed herbs?

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33848
   Posted 1/6/2018 7:49 PM (GMT -6)   
Missouri said...
I think pulsing is considered “incorrect” by the CDC. I remember reading one of their passages that was basically saying not to use “alternative treatments” then it listed like 5-6 things that they say are “dangerous” “unproven” and “don’t work for Lyme”. Here is what I remember being on the list:
LLMD’s
Pulsed antibiotic dosing
Hyperbaric
Ozone
Bismuth injections


LLMD's? really...
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33848
   Posted 1/6/2018 7:51 PM (GMT -6)   
Serfr said...
Has anyone ever pulsed herbs?


i don't think it's recommended.

One of our forum Mods who has healed (cd3764) was 'seeing' one of Buhner's recommended herbalists and he told her that she should go from taking herbs 3 X daily to 4X per day.
- That a constant level of the herbs in the system was best.

The active constituent of Artemisia Annua (Artemisinin) is one to be pulsed...and not taken daily indefinitely.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Village Crazy Lady
Regular Member


Date Joined Feb 2017
Total Posts : 379
   Posted 1/8/2018 4:45 PM (GMT -6)   
Girlie said...
The article mentioned tetracycline. Hopefully there is another antibiotic with it.


Also said it's rare in Texas. rolleyes


Rare in Texas !?!?!?!

Morons.

I’ve pulsed different combos for the last 12 months and it’s doing it for me
~~~Your Life is an Occasion, Rise to It ~~~

Lyme,Bart,Molds,Candida,Cpn,Myco,Ebv,Cmv,MTHFR,Lead.
Symptoms for years and years, Diag 6/2016, LLMD 10/2016
Treating with Abx and company

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33848
   Posted 1/8/2018 5:19 PM (GMT -6)   
Village Crazy Lady said...
Girlie said...
The article mentioned tetracycline. Hopefully there is another antibiotic with it.


Also said it's rare in Texas. rolleyes


Rare in Texas !?!?!?!

Morons.

I’ve pulsed different combos for the last 12 months and it’s doing it for me


Good news, VCL

I switched to pulsing after about 2 years of daily dosing..and I much prefer the pulsed method.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Fronton
Regular Member


Date Joined Sep 2014
Total Posts : 443
   Posted 3/19/2018 3:08 PM (GMT -6)   
Village Crazy Lady said...
Girlie said...
The article mentioned tetracycline. Hopefully there is another antibiotic with it.


Also said it's rare in Texas. rolleyes


Rare in Texas !?!?!?!

Morons.

I’ve pulsed different combos for the last 12 months and it’s doing it for me


Bump. Seeing how VCL is doing...

Rainy cloud
Regular Member


Date Joined Mar 2018
Total Posts : 35
   Posted 3/19/2018 3:36 PM (GMT -6)   
Wouldn't pulsing build antibiotic resistance? Giving Lyme time to adjust?

Sheeks175
Regular Member


Date Joined May 2016
Total Posts : 284
   Posted 3/19/2018 3:45 PM (GMT -6)   
Rainy cloud said...
Wouldn't pulsing build antibiotic resistance? Giving Lyme time to adjust?


No. Lyme has never shown resistance. It is possible, but it has never happened to susceptible antibiotics. It has only shown persistence aka persister cell bacteria. Pulsing antibiotics is one way to address persister cell bacteria according to researcher Kim Lewis.

Rainy cloud
Regular Member


Date Joined Mar 2018
Total Posts : 35
   Posted 3/19/2018 3:47 PM (GMT -6)   
Thank you for clearing that up Sheeks, I did not know that.

Village Crazy Lady
Regular Member


Date Joined Feb 2017
Total Posts : 379
   Posted 3/19/2018 4:06 PM (GMT -6)   
Hey Fronton!

I’m doing really well. Hope you are too.

I’m excited to say I think I’m on my last 6 months of abx.
If I continue doing well the LLMD will be changing me to herbs.

Right now any detriment is my own doing —diet cheats and sleep (I like to stay up late lol)


Hi Rainy cloud, welcome to the neighborhood.

I think pulsing would be the opposite, not allowing Lyme a chance to develop resistance, keeping them constantly shifting form and defenses down ready for the kill shot!

Good luck

VCL
~~~Your Life is an Occasion, Rise to It ~~~

Lyme,Bart,Molds,Candida,Cpn,Myco,Ebv,Cmv,MTHFR,Lead.
Symptoms for years and years, Diag 6/2016, LLMD 10/2016
Treating with Abx and company

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33848
   Posted 3/19/2018 4:45 PM (GMT -6)   
Rainy cloud said...
Wouldn't pulsing build antibiotic resistance? Giving Lyme time to adjust?


Apparently not. I think it's because of the long replication time of the bacteria.
(Other bacteria replication measured in hours...where lyme it's weeks)

Hope I've used the correct terms...lol.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

tickbite666
Veteran Member


Date Joined Mar 2014
Total Posts : 1660
   Posted 3/20/2018 6:20 AM (GMT -6)   
I started pulsing Tetra/Alinia/Diflucan 2 weeks ON and 2 weeks OFF last May. Before that I was pulsing Cipro/Bactrim on same 2 ON/2 OFF schedule for about a year. In July I moved to 3 weeks OFF and saw still OK, then tried 4 weeks OFF in Sept, but some sx returned and stayed on 3 weeks OFF thru winter. GSE, Hout, and JK Plus remain constant full time.

I just started my abx OFF cycle last Monday and plan to try to extend to 4 weeks OFF again. I'll keep you posted then.

Post Edited (tickbite666) : 3/20/2018 5:26:16 AM (GMT-6)


Fronton
Regular Member


Date Joined Sep 2014
Total Posts : 443
   Posted 3/20/2018 7:16 AM (GMT -6)   
Village Crazy Lady said...
Hey Fronton!

I’m doing really well. Hope you are too.

I’m excited to say I think I’m on my last 6 months of abx.
If I continue doing well the LLMD will be changing me to herbs.

Right now any detriment is my own doing —diet cheats and sleep (I like to stay up late lol)


Hi Rainy cloud, welcome to the neighborhood.

I think pulsing would be the opposite, not allowing Lyme a chance to develop resistance, keeping them constantly shifting form and defenses down ready for the kill shot!

Good luck

VCL


That's great to hear!

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33848
   Posted 3/20/2018 12:35 PM (GMT -6)   
tickbite666 said...
I started pulsing Tetra/Alinia/Diflucan 2 weeks ON and 2 weeks OFF last May. Before that I was pulsing Cipro/Bactrim on same 2 ON/2 OFF schedule for about a year. In July I moved to 3 weeks OFF and saw still OK, then tried 4 weeks OFF in Sept, but some sx returned and stayed on 3 weeks OFF thru winter. GSE, Hout, and JK Plus remain constant full time.

I just started my abx OFF cycle last Monday and plan to try to extend to 4 weeks OFF again. I'll keep you posted then.



Hope you remain symptom free on the next 4 weeks off, tickbite. Yes do let us know.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi
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