Trying ketamine with lyme DX

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

lotsofbites
Regular Member


Date Joined Jun 2017
Total Posts : 22
   Posted 1/6/2018 12:30 AM (GMT -6)   
I have tried antiobitcs for lyme. Was Dx in 2004 and saw a well known LLD in the midwest and made some improvement. Then a sudden death of my brother set me back big time now have PTSD and suffered sevier grief for five years. I had a good MD in TN but not LLD now I live in NC and so far have not seen anyone that deserves the title Dr. would appreciate anyone that can send me one. Currently I am struggling with edema. anxiety, bad insomnia. I am trying ketamine for depression and anxiety/depression, had four treatments so far.

Anyone that is up all night please notify me if you want to discuss lyme I am feeling pretty hopeless.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33872
   Posted 1/6/2018 12:35 AM (GMT -6)   
Lotsofbites - I responded to your other post. You can email me - I may have options for LLMD’s in the area you’re looking.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Psilociraptor
Veteran Member


Date Joined Jul 2016
Total Posts : 1353
   Posted 1/6/2018 8:08 AM (GMT -6)   
How is that ketamine working for you? I've never taken it medicinally but have used it in the past. Never did much for my symptoms, but I understand the doses clinically are much larger? I don't know... that stuffs weird. I don't think I could be around a doctor on it :P

lotsofbites
Regular Member


Date Joined Jun 2017
Total Posts : 22
   Posted 1/6/2018 10:47 AM (GMT -6)   
I have had four treatments and they have helped but short acting. I have a few more to do then it is suppose to be maintance infusions. I am not sure if I can afford them ongoing. I found a clinic that had a special and paid for eight treatments up front.

I do think they are doing some good and soon there is suppose to be a nasal spray out on the market.

JustPiccd
Regular Member


Date Joined Dec 2017
Total Posts : 84
   Posted 1/6/2018 6:43 PM (GMT -6)   
Lotsofbites, I'm really interested to hear more about results of ketamine esp. for PTSD symptoms. Have you looked into stellate ganglion block for PTSD too? Seems like it acts in some similar ways on the brain. Also great to know about the nasal spray.

lotsofbites
Regular Member


Date Joined Jun 2017
Total Posts : 22
   Posted 1/6/2018 7:10 PM (GMT -6)   
I have never heard of stellate ganglion but will look it up ASAP.

I can keep you updated on the ketamine. I have PTSD from a few different things in life but my brothers death was the worst. This happened in 2006 and so time has helped a lot. If there is anything I can tell you about the ketamine infusion treatments please just ask. I do think I had some relief with sleep and anxiety but it is short lived. I am only half way through the treatments but everything I have been told and read says it is short lived. I am hoping that my MD will get the compounding prescription ordered soon. Also I have hopes for the approval of the esketmine still being tested and soon to be on the market.

lotsofbites
Regular Member


Date Joined Jun 2017
Total Posts : 22
   Posted 1/6/2018 7:30 PM (GMT -6)   
Girly I do not have a email account to send you a message for a LLD. I use to know some and went to a good on in MO back in 2004. I have been out of touch with what is going on in the Lyme community because I thought I had done all I could. I went to looking up treatments again and read Buhners book. This has helped more than antiobitcs but I do need help and I can't let this anxiety get any worse.

Thanks

lotsofbites
Regular Member


Date Joined Jun 2017
Total Posts : 22
   Posted 1/6/2018 7:37 PM (GMT -6)   
stellate ganglion looks very promising. I don't understand when I have needed treatment so badly for anxiety and no Dr has mentioned this or the ketamine.
Why do these things call thereselves Dr not try to help with so much torcher we go through?

Where do you find a Dr that does the stellate ganglion block? I don't want to be torchered any longer.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33872
   Posted 1/6/2018 8:13 PM (GMT -6)   
lotsofbites said...
Girly I do not have a email account to send you a message for a LLD. I use to know some and went to a good on in MO back in 2004. I have been out of touch with what is going on in the Lyme community because I thought I had done all I could. I went to looking up treatments again and read Buhners book. This has helped more than antiobitcs but I do need help and I can't let this anxiety get any worse.

Thanks


Can you get an email account? or do you not want one?

I can't post the names and contact information on the forum.

We can help you with Buhner's herbs....treating the infection(s) may be key to helping with your anxiety.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

lotsofbites
Regular Member


Date Joined Jun 2017
Total Posts : 22
   Posted 1/7/2018 12:47 AM (GMT -6)   
I don't know how to set up that type of account. I know of a couple of LLD in NC just not sure about anyone seeing them.

I have Buhner book and have been taking several of his recommended herbs.
I have been doing this since May. Just nothing helps insomnia and anxiety.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33872
   Posted 1/7/2018 12:55 AM (GMT -6)   
lotsofbites said...
I don't know how to set up that type of account. I know of a couple of LLD in NC just not sure about anyone seeing them.

I have Buhner book and have been taking several of his recommended herbs.
I have been doing this since May. Just nothing helps insomnia and anxiety.


If you have an email account - you can use it for the forum.
- you just go to My Profile (upper blue bar ) then click on "edit" and add your email address.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33872
   Posted 1/7/2018 12:58 AM (GMT -6)   
lotsofbites said...
I don't know how to set up that type of account. I know of a couple of LLD in NC just not sure about anyone seeing them.

I have Buhner book and have been taking several of his recommended herbs.
I have been doing this since May. Just nothing helps insomnia and anxiety.


You can start a new thread - "Anyone seeing LLMD____ in NC? In the blank put his/her initials.
Then members can respond.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

lotsofbites
Regular Member


Date Joined Jun 2017
Total Posts : 22
   Posted 1/7/2018 2:06 AM (GMT -6)   
Cn you check if I did my email correctly?

My husband takes care of all computer stuff that is why I don't know how to set up the account like you have.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33872
   Posted 1/7/2018 2:55 AM (GMT -6)   
lotsofbites said...
Cn you check if I did my email correctly?

My husband takes care of all computer stuff that is why I don't know how to set up the account like you have.


Yes, yay!


I will send you an email just to say 'hi' and that will confirm that it's working.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

JustPiccd
Regular Member


Date Joined Dec 2017
Total Posts : 84
   Posted 1/8/2018 7:13 PM (GMT -6)   
Heya Lotsa, for stellate ganglion block, I would just Google "stellate ganglion block north carolina" -- I'm not sure where you are in the state, but it seems like a number of people come up on Google who do this treatment. I hope you can get some relief somewhere.
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, August 17, 2018 5:52 PM (GMT -6)
There are a total of 2,993,865 posts in 328,086 threads.
View Active Threads


Who's Online
This forum has 161248 registered members. Please welcome our newest member, RJS321.
293 Guest(s), 7 Registered Member(s) are currently online.  Details
Nick_69, KitKat880, InTheShop, ShinytopPC, ltc1225, Aerose91, borborygmi