Best Lyme Doctor in CT or neighboring states

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TBSB
New Member


Date Joined Dec 2017
Total Posts : 3
   Posted 1/7/2018 6:52 PM (GMT -6)   
New to the forum and apologize if asking a question already asked. I'm desperate to find the best Lyme doctor for my 18 year old son -- could be CT, NY, MA based. My son was bitten by a tick when he was 2, has had symptoms over the years but his pediatrician and several other doctors we've seen have consistently said it isn't a function of Lyme's since he was treated when I first noticed the ring. Recently had the iSpot test done and it came back positive. Also had iGeneX for co-infections but that came back negative. Looking for the best Lyme doctor around. Horowitz in Hyde Park, NY is not taking new patients and the waitlist is closed. Would be truly appreciative of any recommendations particularly if you have first hand experience with results.

goshawk
Veteran Member


Date Joined Sep 2016
Total Posts : 2112
   Posted 1/7/2018 8:20 PM (GMT -6)   
Hi and welcome to our forum,
So sorry that your son has Lyme but thankful that you now know what you are dealing with.

We encourage all new members to read our new to Lyme start here thread. It has important and useful information on Lyme, symptoms, testing, detoxing and more.

You will need to enable your email in your profile in order to get responses on recommendations for llmd's from members.

We usually don't publish llmd's names to protect them, however there are some well known ones like Horowitz that are published at times.

If your are able to travel one of the best llmd's is a Dr.J in Washington, D.C.

There is a top pediatric in Ct also a DR. J but your son is 18 so not sure if that will help.

Others will be along soon and maybe have some recommendations for you also.

You can email Girlie our head moderator or me for more names of llmds in Ct, Ma and NY.

Some things your son can do now, are eating healthy(Gluten free or paleo), detoxing the body, building his immune system up and avoiding stress.

I am so sorry your family is facing this, but the members here are knowledgeable and so helpful when you need it.

Please take care and I wish your son the best of healing, Jo

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32611
   Posted 1/7/2018 8:44 PM (GMT -6)   
Hi TBSB - welcome!

If you send me an email I can give you some options

A well known, experienced LLMD (one of the best IMO) now has a pediatric dr in his practice. (same one goshawk mentioned) Washington DC
Send me an email (click on the envelope below my screen name) and I will provide you with the information.

I’m not sure if the paediatric LLMD - Dr J in Conneticut is taking new patients as he is trying to retire (maybe he already has - he’s about 85 years old - bless his heart)
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 9729
   Posted 1/7/2018 9:58 PM (GMT -6)   
TBSB Welcome and how sad that your son has had this for so long.

Here are some places that I used to find a LLMD.


/sites.google.com/site/lymedoctors/

/globallymealliance.org/education-awareness/find-medical-professional/

ilads.org/ilads_media/physician-referral/

/www.lymediseaseassociation.org/ -- Go to Dr. Referral tab

In case you consider using an herbalist -- buhnerhealinglyme.com/resources/herbalists/

tickbite666
Veteran Member


Date Joined Mar 2014
Total Posts : 1603
   Posted 1/8/2018 11:51 AM (GMT -6)   
Dr P in Wilton CT

Sheeks175
Regular Member


Date Joined May 2016
Total Posts : 257
   Posted 1/8/2018 12:49 PM (GMT -6)   
tickbite666 said...
Dr P in Wilton CT


I second this.

TBSB
New Member


Date Joined Dec 2017
Total Posts : 3
   Posted 1/20/2018 5:47 PM (GMT -6)   
Tickbite66 and Sheeks175, Have you seen Dr. P or the new doctor in his practice, Dr. S? Dr. P isn't taking new patients. Dr. S has been trained by Dr. P and follows his protocol, but first visit fee is $1800! Would love your feedback on Dr. P protocol and any experience with Dr. S. I believe he's only been with Dr. P's practice less than 6 months.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32611
   Posted 1/20/2018 5:55 PM (GMT -6)   
dr. P. in CT has a Facebook page with someone who is treating LD (with a different LLMD though) . They are writing a book together... I'm impressed with him.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

bleepitybleep
Regular Member


Date Joined Jul 2017
Total Posts : 53
   Posted 4/1/2018 6:38 PM (GMT -6)   
If you could go to Dr. J in DC or Dr. P's office (to the CNP who works w/him), whom would you choose?

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32611
   Posted 4/1/2018 8:12 PM (GMT -6)   
bleepitybleep said...
If you could go to Dr. J in DC or Dr. P's office (to the CNP who works w/him), whom would you choose?


Well I did choose Dr J clinic - I recently flew across the continent to go there.

It’s not $1800 for the first visit either
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

tickbite666
Veteran Member


Date Joined Mar 2014
Total Posts : 1603
   Posted 4/2/2018 8:15 AM (GMT -6)   
I never saw Dr P, his wait list was too long when I was looking for my 1st LLMD. He is one of the top LLMDs around. If you can see his assistant without too long of a wait his high first appointment cost will be saved from reduced travel time.

My LLMD in RI follows some of his protocols and she also consults with Dr H in NY, but she's booked into Fall 2018.

good luck.

Sean.scott787
Regular Member


Date Joined Jan 2016
Total Posts : 278
   Posted 4/2/2018 6:46 PM (GMT -6)   
tickbite666 said...
I never saw Dr P, his wait list was too long when I was looking for my 1st LLMD. He is one of the top LLMDs around. If you can see his assistant without too long of a wait his high first appointment cost will be saved from reduced travel time.

My LLMD in RI follows some of his protocols and she also consults with Dr H in NY, but she's booked into Fall 2018.

good luck.


I was wondering who you see in RI? I'm also in RI. Does he/she do any treatments besides antibiotics?

dbwilco
Regular Member


Date Joined Mar 2016
Total Posts : 263
   Posted 4/3/2018 3:32 AM (GMT -6)   
dr p is my doctor....the girl in the video, Dana Parish, is one of his patients, though she saw a ton of other doctors including Zhang...

the initial appt is expensive (even with the new dr and nurse practitioner), its 2hrs +, and then you go back every 2 months at about 500-600$....what do you get for that? Dr P is on cutting edge of new research, but his protocols he has used for yrs (tetra and diflucan as a base)...doesnt use Ivs and prefers a pulsing approach (2 wks on 2 wks off)...i love that if i call and leave a message i get a call back the same day, and if its important Dr P calls himself...spoke with him Sat afternoon for 20 minutes when he called with blood results....im still 50-50 on wanting to continue with abx (its been over a year), but if youre going to take them long term, you need to have confidence in who youre seeing...id say Dr P in ct and Dr J is DC (along with Dr K out west) are probably best around

tickbite666
Veteran Member


Date Joined Mar 2014
Total Posts : 1603
   Posted 4/3/2018 5:06 AM (GMT -6)   
I started a tetra, diflucan, alinia 2 week on and 2 week off pulse last May, and have gradually worked up to 4 weeks off. This is my second attempt to wean off ABX. In March 2015 I stopped ABX but relapsed in three months. I also take GSE, Astragalus, JK Plus blend and Hout full time. May drop Hout soon as well. Besides herbals, my LLMD also has had me experiment with various alternative remedies like Minuka Honey, Takuna, and Inositol.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32611
   Posted 4/3/2018 10:00 AM (GMT -6)   
tickbite666 said...
I started a tetra, diflucan, alinia 2 week on and 2 week off pulse last May, and have gradually worked up to 4 weeks off. This is my second attempt to wean off ABX. In March 2015 I stopped ABX but relapsed in three months. I also take GSE, Astragalus, JK Plus blend and Hout full time. May drop Hout soon as well. Besides herbals, my LLMD also has had me experiment with various alternative remedies like Minuka Honey, Takuna, and Inositol.


Tick bite - good to hear you’re ready to attempt weaning off abx - so are you symptom free now?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

tickbite666
Veteran Member


Date Joined Mar 2014
Total Posts : 1603
   Posted 4/3/2018 10:40 AM (GMT -6)   
Hey Girlie. I still have some lingering neuro issues that could be from the infections, or permanent damage, or just need more time to heal. So I can't say I can wait for 2 months of sx free before quitting.

I'm on my second four week off cycle this past year and so far so good. Much better than my last four week off cycle in Sept 2017. Just trying to get the immune system working again. I'll wait until my next LLMD appointment in July before making any more changes. But I'm OK at 90 to 95% functional and increasing my OFF abx pulse one week at a time.

dbwilco
Regular Member


Date Joined Mar 2016
Total Posts : 263
   Posted 4/3/2018 2:49 PM (GMT -6)   
tickbite, ive always thought you were a dr p patient, as your protocols or so similar...dr p is becoming an advocate of monolaurin and liposomal oil of oregano added to his abx protocols, if youre looking for some other herbs

Octobrsky13
Regular Member


Date Joined Feb 2016
Total Posts : 178
   Posted 4/4/2018 6:47 AM (GMT -6)   
I’m also a Dr. P patient and although I don’t personally know his NP or the new Dr. at his practice I do know that he was extremely particular about who he wanted to bring on board. I wouldn’t hesitate to recommend either of them. Just having Dr. P at the helm and directing things would be fine with me if I couldn’t see Dr. P himself.

tickbite666
Veteran Member


Date Joined Mar 2014
Total Posts : 1603
   Posted 4/4/2018 9:19 AM (GMT -6)   
dbwilco, I've tried Lomatium then Monolaurin last year and saw no results. I only took the latter for two months, so maybe I should give it another chance.

I did add Liposomal Oil of Oregano to my ABX pulse last November as well, so maybe my LLMD is tied in closer to Dr P than I thought.
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