for those of you who have recovered

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sickoflyme123ct
New Member


Date Joined Jan 2018
Total Posts : 4
   Posted 1/8/2018 6:54 PM (GMT -6)   
For those of you who have recovered, do tremors (hand shaking) and skin wrinkles go away after you've recovered?

Girlie
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Date Joined May 2014
Total Posts : 33803
   Posted 1/8/2018 7:43 PM (GMT -6)   
Welcome to our community, sickoflyme123ct!


My tremors went away early on in treatment. Actually my leg tremors went away even prior to treatment.

The skin wrinkles - not sure...i have them bad on the back of my hands...certainly lightning it's worse.

Not changed for the better...unfortunately...

Do you have a LLMD? if not, we can help you find one. Start a new thread: "Looking for LLMD in/near_____" and fill in the blank with your location.
Then enable your email so members can send you names privately. We don't post the names/contact information on here for privacy reasons.

You can also send me an email, I may have some options for you.

We encourage our new members to take a look through the information contained in the thread: "New to Lyme?..Start Here!" It's packed full of useful information.

And, please feel free to start a new thread if you'd like to share your 'story' with us here.


Edit: You said "For those of you who have recovered..." I am not fully healed yet...but wanted to post my experience anyway.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Post Edited (Girlie) : 1/8/2018 5:49:11 PM (GMT-7)


dacarte3
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Date Joined Feb 2016
Total Posts : 1903
   Posted 1/8/2018 7:46 PM (GMT -6)   
Yes. For me the "parkinson" like symptoms stopped, especially after I specifically addressed Neuro-lyme. Because that is what the shaking is. The same neurological mis-firing that happens with parkinson happens with lyme as well.

Parkisons is just a name of a condition it can have multiple root causes. Luckily for you, you know it's lyme caused and you can do something about. If you are interested in a neuro-lyme protocol that worked for me let me know.

The skin wrinkles? Depends what kind you are talking about. The wrinkly fingers and hands is blood flow issues and collagen issues, that can be remedied.

If you are talking about the like the shinier, papery wrinkles, I want to say people have healed from that. If I'm not mistaken I had some of that going on around the heel of my feet in the earlier days of lyme and now it's gone.
Lyme (Igenex) - Positive IFA and WB bands 23, 31, 41
Ehrlichia (Igenex)
Mycoplasma (Labcorp) - Score: 595

ABX Treatment: 03/2016-04/2016; 7/2017-9/2017
Buhner Protocol for Lyme and Mycoplasma: May 2016 - Dec. 2016; 8/2017 - Present

PeteZa
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Date Joined Jul 2015
Total Posts : 9729
   Posted 1/8/2018 7:51 PM (GMT -6)   
No more tremors or shaking. I had vibrations too and tics. The tic on my lip was so annoying. All gone with treatment.

Wrinkles and crepe skin - well, I'm old and that hasn't gotten worse. I think it got better when I healed, but I didn't much care about that. I had so much worse things to recover from that the skin was the least of my problems.

I did notice that being in water my fingertips wrinkled a lot faster than my sisters. She never had lyme and is 16 months younger than me.

I just keep doing my collagen and biosil even though I healed.

dacarte3
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Date Joined Feb 2016
Total Posts : 1903
   Posted 1/8/2018 8:33 PM (GMT -6)   
PeteZa said...

I did notice that being in water my fingertips wrinkled a lot faster than my sisters. She never had lyme and is 16 months younger than me.


Me too. It still happens every once and a while. Randomly. Weird.
Lyme (Igenex) - Positive IFA and WB bands 23, 31, 41
Ehrlichia (Igenex)
Mycoplasma (Labcorp) - Score: 595

ABX Treatment: 03/2016-04/2016; 7/2017-9/2017
Buhner Protocol for Lyme and Mycoplasma: May 2016 - Dec. 2016; 8/2017 - Present

astroman
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Date Joined Mar 2014
Total Posts : 5081
   Posted 1/8/2018 8:52 PM (GMT -6)   
There are many different types of tremors. Not everyone with lyme has the same type. Just like in the non-lyme world, there are many causes.

Motion type of tremors are different than Parkinsons tremors (a specific resting tremor).

Here are 8 types : /en.wikipedia.org/wiki/Tremor

In our case some are related to anxiety, a "toxified" body, adrenal or thyroid issues with the infection, lack of sleep. These all influence the nervous system. One could pool them all together to fall under "nuero lyme", which is somewhat of a buzz word though.

It has also been noted that some with identifiable autoimmune conditions also have tremors.

What I have noticed in co-workers: Many smokers have tremors, until they light up.

Hypertension can be another (with or w/o lyme).

-------------------------------

My tremors improved but are not 100% gone, but way better. I had very ridged, shaky MS like movements for a while. Sleep, thyroid and time duration of and after physical activity have still been an influence in my case.

I never had the skin issues mentioned, but other skin issues that corrected.
Had initial lyme symptoms late 80's, then again w/with bullseye early 90's. Ended ABX for Lyme in 2015. Rebuilding / repairing / fine tuning since then; member "10 Percenters Lyme Club". What an adventure this has been. Hashimotos adds to the enjoyment.

Post Edited (astroman) : 1/8/2018 7:08:57 PM (GMT-7)


sickoflyme123ct
New Member


Date Joined Jan 2018
Total Posts : 4
   Posted 1/9/2018 2:45 AM (GMT -6)   
Wow - I'm overwhelmed with all of these helpful responses. Thank you all very much. This is a very welcoming forum.

Girlie, Peteza - That's good to hear that your tremors went away after treatment. I am hoping mine will go away.

dacarte3 - What did you do to address the neurolyme?

shinier, papery wrinkles is definitely a good way to describe what I have.

astroman - thanks for providing this link. I didn't realize there were so many types of tremors.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33803
   Posted 1/9/2018 3:17 AM (GMT -6)   
The tremors in my legs were at the same time I got weak.

I had to stop driving because when I was stopped at a red light...my leg was weak and shaking so bad I didn't know how much longer I could keep the brake pedal pressed.

That day I stopped driving and working.

I am driving again...but still not working.

My hand tremors - right hand resolved soon after treatment, but my left hand (that side has nerve issues from lyme and co's) took a few more months.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Deejavu
Veteran Member


Date Joined Aug 2005
Total Posts : 4438
   Posted 1/9/2018 8:59 AM (GMT -6)   
I am one who had many symptoms but I never had tremors, I had a non-productive cough from ehrlichiosis, extreme fatigue, difficulty walking, sharp pains in both legs, brain fog, etc. Since I have healed I don't have any of those symptoms anymore.

Also, I didn't have wrinkles either unless I did too many dishes in very hot water smile

I guess everyone is different.

Hope this helps,
Denise
12 years well ~ used Dr. Jernigan's protocol from his book about Biological Medicine (used Borrelogen, Microbojen and Neuro-Antitox).

I still detox even though healed and drink Green Vibrance. I come back to help others for others helped me when I was sick. Pay it forward! smile

http://javuviews.wordpress.com/2013/04/24/how-i-became-better-from-chronic-lyme

dacarte3
Veteran Member


Date Joined Feb 2016
Total Posts : 1903
   Posted 1/9/2018 7:40 PM (GMT -6)   
sickoflyme123ct said...

dacarte3 - What did you do to address the neurolyme?

shinier, papery wrinkles is definitely a good way to describe what I have.



My neuro symptoms were parkison and ALS like with head fog thrown in for fun. When I learned the reason(s) why lyme may cause these symptoms I addressed those possible causes. A lot of the time what is to blame is toxins that lyme creates and gets into the brain and CNS. So I went with this possibility and researched ways to combat the neuro toxins.

There's several toxins that lyme is directly or indirectly responsible for so I researched what toxin can create these particular symptoms when it comes to lyme. That research then led me to the fact that lyme is known to disrupt the healthy production and lifecycle of a compound called Acethycholine (ACE). It's this compound that is responsible for nerve health/nerve communication and the lack ACE can disrupt the nerve signal from the brain to the muscles.

Thus, parkison and ALS like symptoms. I took a chance that this was what in fact was happening to me and then researched what can help with this.

My conclusion was help the body produce more acethycholine and help it maintain healthy levels (for lyme toxins are excessively destroying it).

That protocol is Choline itself, and Huperzine A (precursor to acethycholine), and then EGCG and Fish oil to help detox and in theory aid in helping the body keep the healthy levels of Acethycholine.

The creepy shiny skin. That is know to be a subset of lyme symptoms called ACA. I had some going around the heels of my feet when I first got lyme. Treatment, plus daily treatment with coconut oil is what I did.
Lyme (Igenex) - Positive IFA and WB bands 23, 31, 41
Ehrlichia (Igenex)
Mycoplasma (Labcorp) - Score: 595

ABX Treatment: 03/2016-04/2016; 7/2017-9/2017
Buhner Protocol for Lyme and Mycoplasma: May 2016 - Dec. 2016; 8/2017 - Present

astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 5081
   Posted 1/9/2018 9:26 PM (GMT -6)   
dacarte3 - good detective work.

Ive researched acethycholine a little in the past, but it was never a big topic in lyme data that I found. Any of the top lyme "gurus" mention this in your digging for this?

I think it might have been in Genova e-val test I did years ago, i'll have to look.

Depending on personal methalation, the doors open pretty wide for all the neuro related symptoms.

/en.wikipedia.org/wiki/Acetylcholine

Interesting that nicotine fits into the acethycholine cell receptors- and thats the calm smokers feel for a while.

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 9729
   Posted 1/9/2018 10:51 PM (GMT -6)   
I think my cough was mycoplasma. I did cordyceps for it.

I should say -- I did cordyceps and my cough slowly went away.
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