I went to her with positive tests from igenex and symptoms of lyme and co's. She decided to run more tests for lyme and co's (while I was on antibiotics) all tests came back negative or equivocal, so she told me to get off antibiotics. I knew that was not the correct thing to do while still having symptoms, so I told her no. I would not recommend her. She treats based on tests and not symptoms. All of the best LLMDs treat based on symptoms because the testing is inaccurate.
Even the ones who aren’t “the best” treat based on clinical diagnosis.
I will add another comment to her name on my list.
I wouldn’t consider her Lyme Literate based on these comments.She is very lyme literate. She was the president of ILADS... probably back in 2011 or something. I don't get what her deal is. She has all the knowledge, but is trusting the testing. It's bizarre.But, isn't part of being lyme literate knowing that lyme is a clinical diagnosis...that's where you start.
If she trusts the testing...then really, she doesn't have all the knowledge...or she does, but isn't using it...which is even more perplexing.
That is what I am saying ^^^. Bizarre.So, that's why I'm saying I wouldn't consider her Lyme Literate in your response to your statement:
"She is very lyme literate"
I don't think I should remove her from my list because at least if someone asks about
her, I can share information...but if she's removed...then I won't remember her. I have just put notations beside her information so that I don't give her name out anymore.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi