Is anyone else a caregiver for someone with Lyme?

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cakegirl
Regular Member


Date Joined Nov 2016
Total Posts : 254
   Posted 1/11/2018 1:32 PM (GMT -6)   
Just wondering if any else is caring for someone with Lyme? I know Peppermintea is. Would be good to hear from other caregivers and how they cope.

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 9729
   Posted 1/11/2018 1:34 PM (GMT -6)   
I think we have lots of parents here that are taking care of their kids with lyme and some are even taking care of themselves.

I took care of my husband but he is healed now.

1000Daisies
Veteran Member


Date Joined Apr 2016
Total Posts : 2438
   Posted 1/11/2018 2:30 PM (GMT -6)   
Yes, I am. sad

I've been doing this for several years now. I try not to complain (much). But I'm really tired. Really really really tired. sad

I remember in the beginning years (when only one kid was sick)... how I thought this was just a temporary thing. Little did I know how much this would take over our lives and become the new "normal" for us. It makes me really sad when I think about it.
My friends (and most of my family) IRL just don't have a clue on understanding how difficult this is.
Kid#1: Extremely sick for several years, very difficult to treat, but doing great now!
Kid#2: Still sick now despite being treated for years but doing better (not well yet).
Kid#3: Generally good but relapsing off/on.
Me: Adv Labs positive 2016 (suspected I passed to my kids)-not as sick as others, mostly battling fatigue and yeast issues (heart/kidney issues resolved)
Treating with herbals now.

yancync
Veteran Member


Date Joined Nov 2015
Total Posts : 544
   Posted 1/11/2018 3:04 PM (GMT -6)   
Yes, I am to a teenager son. I have friends who are treating for Lyme and trying to heal their kids, like 1000Daisies. I'm in absolute awe of them.

Yesterday DS was going for a blood draw and I was feeling awful from a cold and I told him that he is the strongest person I know - I just have such empathy for everyone suffering from these infections.

As far as handling it myself, it was exhausting the first few years because there were so many ups and downs, research to be done, appts and I was always having to drop things/leave work and go get him. I have 3 part-time jobs and they are pretty flexible so it has worked out. We are blessed in that area because I would have had to quit if I had a full-time job. There are so many economic components to raising kids with chronic illnesses that probably bankrupt many. We have been lucky there.

However, none of what I've dealt with remotely compares to what Lyme patients go through so I don't think about it much. It's just the new reality. What's harder though is knowing what the future holds for him and whether he will stay in remission and so on.

Also it does take a toll on relationships. Luckily his sister is 2 years older and quite mature but I could see how it impacted her. There is less of me left to go around to my spouse and so on. I 'm sure it's the same for all caregivers.
Parent of teen DS w/ CDC+ Lyme test Nov 2015, late stage Lyme + mycoplasma, bartonella, babesia. Currently treating with antibiotics/anti-malerials, multivitamin, magnesium, Charlotte's Web Advanced CBD oil.

Website I started: ParentsofLymeKids.com aka Lyme Disease 101 for Parents
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