The onion is peeling - air hunger is rearing in son

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PeppermintTea
Regular Member


Date Joined Oct 2014
Total Posts : 266
   Posted 1/12/2018 5:54 AM (GMT -6)   
Does anyone have any tricks for reducing the feeling of air hunger?

My son is 10 weeks into lyme treating with abx. Poor thing has gone from somewhat functioning to absolutely miserable.

Air hunger has been present for the past week. I know this is an onion layer peeling off and babs coming out. He isn't treating for babs presently. That will come.

I did a search on air hunger and saw someone mentioned trying albuterol. Any other things that can help?

Thank you all and a very, happy Friday to each of you!

Warmly -

Peppermint Tea

10LymeB
Veteran Member


Date Joined Feb 2017
Total Posts : 685
   Posted 1/12/2018 10:08 AM (GMT -6)   
Cordyceps has helped me so much with air hunger. I take it every day. I use the powder.

yancync
Veteran Member


Date Joined Nov 2015
Total Posts : 551
   Posted 1/12/2018 10:10 AM (GMT -6)   
Hi Peppermint Tea,

That was my son using albuterol. JC recommended it when I was hesitant to use Ativan as a first line defense. He did end up taking an ativan once while away from home and that was pretty crazy.

It hit DS about the same time as your DS in treatment although our DS had trouble breathing before that. What happened was 2 things. General breathing was difficult and would come on in a heartbeat. The second thing is that at times it would devolve into what I guess was a panic attack and hypocalcimia (where his face would twitch and his fingers would clinch - very scary for all of us the first time it happened). We googled and tried having him breath into a paper bag (helped initially) etc. JC described it as an autonomic nervous response where the signals get mixed up.

JC gave us albuterol inhaler and Ativan scripts and we filled both. We carried Ativan with us and left a pill at school just in case he got really bad. However, he found the inhaler worked and he used it a lot the past 2 years (but not in excess), usually a few times a day. We still carry that but around just in case.

I recommend getting scripts for both. We did try nettle leaf but that didn't work. I didn't add in any herbs to supplement the babesia/myco treatments because I didn't want to exacerbate this symptom, which was a scary one for him. The feeling of suffocation is a serious one.

Hope this helps.
Parent of teen DS w/ CDC+ Lyme test Nov 2015, late stage Lyme + mycoplasma, bartonella, babesia. Currently treating with antibiotics/anti-malerials, multivitamin, magnesium, Charlotte's Web Advanced CBD oil.

Website I started: ParentsofLymeKids.com aka Lyme Disease 101 for Parents

PeppermintTea
Regular Member


Date Joined Oct 2014
Total Posts : 266
   Posted 1/12/2018 10:10 AM (GMT -6)   
Thanks, 10LymeB. Going to look it up to confirm it doesn't interfere with the current meds he is on. Have a great day!

PeppermintTea
Regular Member


Date Joined Oct 2014
Total Posts : 266
   Posted 1/12/2018 10:29 AM (GMT -6)   
Yancync - Thank you for your reply. I just put in a message to the JC clinic, too.

I need to respond to your post from yesterday on here. Agh. I am swimming in patient care. Just got off the phone with my daughter's pshyc. , appointment with son's school later. dishes in sink. Two sick kids upstairs. All four of us took Flagyl today and I have too many emails to follow up on.

I will write back! Thank you for your support. Big hugs! PeppermintTea

yancync
Veteran Member


Date Joined Nov 2015
Total Posts : 551
   Posted 1/12/2018 11:07 AM (GMT -6)   
No worries - gosh, I remember back to those weeks and I can't imagine having 3 including myself going through it. I will keep an eye here for your posts. Hang in there!!
Parent of teen DS w/ CDC+ Lyme test Nov 2015, late stage Lyme + mycoplasma, bartonella, babesia. Currently treating with antibiotics/anti-malerials, multivitamin, magnesium, Charlotte's Web Advanced CBD oil.

Website I started: ParentsofLymeKids.com aka Lyme Disease 101 for Parents
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