That Brain Swelling Feeling -- what to do?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

JustPiccd
Regular Member


Date Joined Dec 2017
Total Posts : 42
   Posted 1/12/2018 4:15 PM (GMT -7)   
I've got that brain swelling feeling, I think many of you know what I'm talking about but . . . because I've got that brain swelling feeling, I can't articulate it that well!

Suggestions on what helps with that? Not sure if it's a herx or what.

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 9539
   Posted 1/12/2018 4:36 PM (GMT -7)   
I think Japanese Knotweed was what helped me. It is so hard for me to tell because I was taking so many things.

I think many on here say Kudzu is great.

Dahlias
Regular Member


Date Joined Jun 2017
Total Posts : 205
   Posted 1/12/2018 5:10 PM (GMT -7)   
Think I'm in the same boat. Scary. I've been taking burbur and pinella and just for the first time took a combo the dr recommended, I think for inflammation -- curcumin (turmeric) + fish oil + vitamin C. Will be looking for other ideas.
"This too shall pass. It might pass like a kidney stone, but it will pass."

JustPiccd
Regular Member


Date Joined Dec 2017
Total Posts : 42
   Posted 1/12/2018 6:43 PM (GMT -7)   
Thank you for these ideas, as I have several of these at home now so will try tonight! (probably knotweed, maybe burbur if I can find, and fish oil at least. . . ).

Georgia Hunter
Veteran Member


Date Joined May 2012
Total Posts : 2050
   Posted 1/13/2018 4:22 AM (GMT -7)   
Stop eating meat.

dacarte3
Veteran Member


Date Joined Feb 2016
Total Posts : 1727
   Posted 1/13/2018 9:57 AM (GMT -7)   
Dahlias said...
Think I'm in the same boat. Scary. I've been taking burbur and pinella and just for the first time took a combo the dr recommended, I think for inflammation -- curcumin (turmeric) + fish oil + vitamin C. Will be looking for other ideas.


Good protocol. Burbur and Pinella does help. Fish oil is helpful. And then can't go wrong with Vit C to boost immune system.
Lyme (Igenex) - Positive IFA and WB bands 23, 31, 41
Ehrlichia (Igenex)
Mycoplasma (Labcorp) - Score: 595

ABX Treatment: 03/2016-04/2016; 7/2017-9/2017
Buhner Protocol for Lyme and Mycoplasma: May 2016 - Dec. 2016; 8/2017 - Present

Notime4lyme
Regular Member


Date Joined Dec 2017
Total Posts : 32
   Posted 1/13/2018 11:57 AM (GMT -7)   
That's an awful feeling. I had it for three or four years. All I can say is maybe you need to switch something with your treatment. If your treatment is causing too much inflammation in your head maybe you need to switch to something else. When I got on a good treatment it started going away. Also it might be a herx if you did something different and it started all of a sudden.

For some reason, eating extra salt always helped. My brain swelling seemed to be related to when my sodium levels dropped suddenly.

JustPiccd
Regular Member


Date Joined Dec 2017
Total Posts : 42
   Posted 1/13/2018 1:02 PM (GMT -7)   
Notime really interesting you mentioned about the salt b/c whenever I have this, I crave salt like there's no tomorrow, and eating a lot of it *does* seem to help. I hadn't been able to explain why as it's not really related to worsening of POTS symptoms, lowered bp, etc.

All I could find last night was evening primrose oil and flax seed oil so took both of those and am ordering the rest, esp. the burbur and pinella and more fish oil. Sometimes my brain is so out of it that I forget which supps I ran out of already.

I agree something needs to be switched up in the protocol, though I think I'm also having a worse than usual herx b/c of re-adding mimosa pudica, which for some reason *for me* has been the strongest herb I've tried for babesia duncani, whereas all of the other recommended ones did next to nothing -- which could indicate other parasites or something but I don't think so as I also have been on Alinia for over a yr. So . . .hard to say. The first time I took this herb I had a fever and night sweats almost immediately which was a pretty clear babs herx. I also get really bad brain swelling feeling stuff around babs overall so I do think it's related but maybe that means I should slow down on the herb too.

ChickenArise
Veteran Member


Date Joined Nov 2015
Total Posts : 1269
   Posted 1/13/2018 11:38 PM (GMT -7)   
I keep dexamethasone on hand but this was in case I experienced actual brain swelling while using albendazole. In case I had a tapeworm egg in the brain. Luckily there was no need to use it but it was very cheap, and available in small doses to accommodate any level of it.

You probably dont need any but you never know. I just wanted to be prepared and cover all bases.

If for any reason someone thinks this would be a poor choice or on the other hand knows the optimal dose per kilogram of weight for this instance, please let me know. You can never be too prepared.

2014 Mold Sick,2015 Clinical Lyme and co.,2016 Morgellons,2017 Remission
YT: ClintFromNYtoVA2
Twitter: @ClintFromNYtoVA
Blog: www.fascinatingtimetobealive.blogspot.com/
" Expectations are the leading cause of disappointments "

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35979
   Posted 1/14/2018 11:36 AM (GMT -7)   
JustPiccd said...
Notime really interesting you mentioned about the salt b/c whenever I have this, I crave salt like there's no tomorrow, and eating a lot of it *does* seem to help. I hadn't been able to explain why as it's not really related to worsening of POTS symptoms, lowered bp, etc.


I would encourage you to have your blood sodium levels checked as well as getting a 4 point saliva test for cortisol (blood tests simply aren't accurate enough). When my adrenals were failing, my blood sodium was very, very low (my doctor actually told me I needed to start adding salt to everything!!), and my cortisol levels ended up flat lining before I could get anyone to believe me.

As for brain swelling, I use kudzu root, and it's works well for me.
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New set of infections 8/2014 - still treating.
Come visit me: dogwoodtraditionals.freeforums.net/

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35979
   Posted 1/14/2018 11:37 AM (GMT -7)   
ChickenArise said...
I keep dexamethasone on hand but this was in case I experienced actual brain swelling while using albendazole. In case I had a tapeworm egg in the brain. Luckily there was no need to use it but it was very cheap, and available in small doses to accommodate any level of it.

You probably dont need any but you never know. I just wanted to be prepared and cover all bases.

If for any reason someone thinks this would be a poor choice or on the other hand knows the optimal dose per kilogram of weight for this instance, please let me know. You can never be too prepared.


While I've always said there is an appropriate time and place for steroid use, even with Lyme patients, I hope you never have to use it, CA!!! I know that you know the issues with steroid use during an active infection.
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New set of infections 8/2014 - still treating.
Come visit me: dogwoodtraditionals.freeforums.net/

ChickenArise
Veteran Member


Date Joined Nov 2015
Total Posts : 1269
   Posted 1/14/2018 3:24 PM (GMT -7)   
Traveler said...
ChickenArise said...
I keep dexamethasone on hand but this was in case I experienced actual brain swelling while using albendazole. In case I had a tapeworm egg in the brain. Luckily there was no need to use it but it was very cheap, and available in small doses to accommodate any level of it.

You probably dont need any but you never know. I just wanted to be prepared and cover all bases.

If for any reason someone thinks this would be a poor choice or on the other hand knows the optimal dose per kilogram of weight for this instance, please let me know. You can never be too prepared.


While I've always said there is an appropriate time and place for steroid use, even with Lyme patients, I hope you never have to use it, CA!!! I know that you know the issues with steroid use during an active infection.


Good to hear from a person I have nothing but love and respect for. I hope 2018 is the best year for you yet in so many ways !

2014 Mold Sick,2015 Clinical Lyme and co.,2016 Morgellons,2017 Remission
YT: ClintFromNYtoVA2
Twitter: @ClintFromNYtoVA
Blog: www.fascinatingtimetobealive.blogspot.com/
" Expectations are the leading cause of disappointments "

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35979
   Posted 1/14/2018 3:32 PM (GMT -7)   
=) Thank you CA!! And, of course, I wish the same for you!!!
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New set of infections 8/2014 - still treating.
Come visit me: dogwoodtraditionals.freeforums.net/

Lapis_29
Veteran Member


Date Joined Sep 2017
Total Posts : 541
   Posted 1/14/2018 4:11 PM (GMT -7)   
i have had dramatic results with head pressure using DMSO

put some on my temples, behind the ears, base of the skull, and on the small of my back. I usually feel much better within the hour.

do that everyday for a week and i guarantee you will feel a lot better.

JustPiccd
Regular Member


Date Joined Dec 2017
Total Posts : 42
   Posted Yesterday 12:01 PM (GMT -7)   
Traveler I almost had a saliva test for adrenals but then heard the one I was about to do (via Quest) wasn't that reliable (?) -- can you recommend a specific test for that (preferably Quest since it's available near me)? Just if you happen to know more specifics, it would be helpful -- I had no idea there was a sodium test I could do, that's really helpful, thank you.

And Lapis, I was going to go looking for DMSO after reading maybe your post on this somewhere else here, you just reminded me -- I think I actually have some so will find and try that.

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35979
   Posted Yesterday 2:49 PM (GMT -7)   
If you go to this site: /stopthethyroidmadness.com/recommended-labwork/ and scroll down to the bottom of the page, they list reliable labs for thyroid and adrenal testing. This is a fairly good site for adrenal health information, and an excellent site for thyroid health information.

I could rattle on for hours about adrenals, testing adrenals and more. LOL! So, if you have specific questions, let me know. I've learned a whole lot while treating my own....without a doctor, as there were none in my area that was willing to test me(talk about crazy!!). I had all the symptoms of thyroid and serious adrenal issues, and still no doctor would test me until I started seeing a doctor that refused to take insurance.

Something else that is frequently used for brain pressure is kudzu root. I wouldn't have a working brain if it weren't for Kudzu root and a few other things!
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New set of infections 8/2014 - still treating.
Come visit me: dogwoodtraditionals.freeforums.net/

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 28696
   Posted Yesterday 4:05 PM (GMT -7)   
I've used ZRT Labs for hormone testing a few times now.

In Canada, we don't need a Dr. to sign anything (unless that has recently changed) - but I think in the U.S. you do.

www.zrtlab.com
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Rikky1
Veteran Member


Date Joined Jun 2015
Total Posts : 2649
   Posted Yesterday 6:06 PM (GMT -7)   
if the brain swelling is from built up toxins then Jernigan's Anti Tox II CNS/PNS works wonders.
New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, January 16, 2018 12:47 AM (GMT -7)
There are a total of 2,917,469 posts in 320,134 threads.
View Active Threads


Who's Online
This forum has 159221 registered members. Please welcome our newest member, jollytonya.
202 Guest(s), 3 Registered Member(s) are currently online.  Details
WeightLoss, Dimitri71, gotlymee