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Tsak11
Regular Member


Date Joined Sep 2017
Total Posts : 51
   Posted 1/13/2018 1:45 PM (GMT -6)   
Relatively new to the idea of treating Bart. I was treating Lyme for 3months and got significantly better however had lingering nerve issues such as fine tremors in hands, increased anxiety intermittently, heel and arch pain, and nerve like calf and buttcheek pains as well as some residual muscle weakness. Kept feeling like my body was constantly still trying to fight something off. Another symptom was cramping and pain in the bladder area. Thought maybe a UTI so my PCP put me on Cipro. On day 3, my nerve issues went nuts! Every day since, became less and less. Went back to LLMD on Friday and he says Bart. So I'm taking 250mg of Levaquin and 100mg Doxy twice daily and using Serrapeptase. I told him I feel amazingly better but still have mild nervy issues here and there. He said, Tara... It's only been two weeks. LOL. I see him again in 6 weeks. I do the Meyers Cocktail and Glut IVs each time I see him as well. Also taking a heavy duty multi called IntraMAX. I know about the warning on the Fluoros and know what to watch for. So far. So good.
Question is I also have the Bart rash on my neck, chest, and upper abdomen. Does this go away when Bart goes away? Always so confused how to tell when to stop treating and when to keep going?

Notime4lyme
Regular Member


Date Joined Dec 2017
Total Posts : 385
   Posted 1/13/2018 2:24 PM (GMT -6)   
I heard the rash goes away when the bartonella goes away... I don't know: I still have a rash, and I still have bartonella. I think it is a good idea to stop treatment when it isn't helping anymore, or you get too many side effects. Of course, in the rare event, (at least in my case) that something seems actually gone I guess you should stop too.

I'm glad the levaquin is helping.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33876
   Posted 1/13/2018 5:18 PM (GMT -6)   
I wouldn't stop as long as you still have symptoms.

You want to treat until active symptoms are gone...plus 4-8 more weeks.

Some LLMD's will put you on a maintenance schedule for some time...where you take abx for a few days every few weeks...or one week out of 4...
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

bluelyme
Veteran Member


Date Joined Nov 2015
Total Posts : 4898
   Posted 1/13/2018 8:58 PM (GMT -6)   
Levaquin can flox you and has a black box warning ...fyi ...rifampin and zith for 4 months than 11 months of hh2 and allicin with bvt 2yrs and lots of alinia n roceph put a dent in my bart

Tsak11
Regular Member


Date Joined Sep 2017
Total Posts : 51
   Posted 1/14/2018 12:44 PM (GMT -6)   
Thank you everyone. I've been on the quinolones for about 3 weeks. Just started Doxy 1 week ago and yesterday started having muscle weakness, slight achiness, and tiredness. Assuming that's a Herx from Doxy. Of course I also just began the Serrapeptase 2 days ago. Don't know if that works this fast? I started having symptoms in May/June 2017 and started IV treatment early August 2017. Of course that was only for Lyme not knowing I had Bart too until the Lyme cleared. What an incredible journey.

Traveler
Elite Member


Date Joined May 2007
Total Posts : 36310
   Posted 1/14/2018 1:12 PM (GMT -6)   
We often say that treating these infections is like peeling an onion - as one layer comes off (infection healed or at least bacterial loads down) another layer shows itself.....and can make us cry!!!!

Hang in there!! As you peel away those layers, you are getting closer to being done!!!
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New set of infections 8/2014 - still treating.
Come visit me: dogwoodtraditionals.freeforums.net/

Tsak11
Regular Member


Date Joined Sep 2017
Total Posts : 51
   Posted 1/15/2018 12:02 PM (GMT -6)   
Thank you so much!!

Tsak11
Regular Member


Date Joined Sep 2017
Total Posts : 51
   Posted 1/15/2018 1:27 PM (GMT -6)   
Question. Is anyone familiar with Doxycycline making a strain of Bart more virulent? I was doing quite well on Levaquin alone then added Doxy about 10 days ago. On day 7 I started feeling really bad. Most seemed to lift in 24 hrs but continue to feel not as well. My LLMD said to stop it if I start feeling worse. I don’t know if I should grin and bear it or stop it?

Traveler
Elite Member


Date Joined May 2007
Total Posts : 36310
   Posted 1/16/2018 1:18 PM (GMT -6)   
Doxy may be treating a different infection. It's not at all uncommon for symptoms of other infections to increase during a herx, particularly when treating more than one infection.

How's your detoxing? If you raise the amount of detoxing you are doing, it may make staying on the Doxy more tolerable.

Otherwise, herxing is hard on the body. It means that there are more toxins in the bloodstream than the body can adequately handle, and it can get quite out of hand and be very harmful for the body. So the key to healing is to not herx a lot or hard, because that means our bodies are not handling it well.
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New set of infections 8/2014 - still treating.
Come visit me: dogwoodtraditionals.freeforums.net/

Tsak11
Regular Member


Date Joined Sep 2017
Total Posts : 51
   Posted 1/16/2018 2:58 PM (GMT -6)   
Ok agreed but curious what it's treating because the Lyme was already covered? Ugh. Detoxing I use plenty of water and lemons and also activated charcoal. Thank you for the responses. I ended up called my LLMD he told me to quit the Doxy. I was on it for 10 days. Curious what it was fighting. Hmmm

Traveler
Elite Member


Date Joined May 2007
Total Posts : 36310
   Posted 1/16/2018 4:04 PM (GMT -6)   
Doxy can be used for a number of infections, including Lyme, Anaplasmosis, Ehrlichia and RMSF - not to mention other types of infections it could be hitting.

I would encourage you to start doing a lot more for your detoxing though. Read through this list and see what else you can add, we need to 'engage' many of our eliminatory organs - kidneys, liver, skin, intestines....

Not everyone needs to do the kind of detoxing I do, but here is my list so you can get an idea of the kinds of things that you may need:
It took a lot of diet changes as things with my body changed,
I use a foot soak,
dry skin brushing,
making sure my bowels moved at least once a day (sorry if it's TMI!)
pushing myself to drink at least 64 ounces of lemon water each and every day,
liver/gall bladder flushes (all natural), as needed,
oil pulling with tea tree oil,
taking activated charcoal, as needed,
Alpha lipoic acid,
Quercetin,
​ turmeric,
Methyl B-12 and methyl folate,
Dandelion tincture,
red root tincture,
Yogi brand detox tea (original flavor)
Have added cytokine remodulators - Chinese Skullcap and Red clover extracts
and keeping the amount of stress in my life at a bare minimum.

​ I have used apple cider vinegar to help with detoxing as well - it's really good, but started making my stomach issues worse, so I stopped using it daily and only use it occasionally when I know I need a boost in my detoxing for just a day or two.​

You can find some really good detoxing suggestions in the "New to Lyme?" thread that sits at the top of the forum. And this is another really good resource for detoxing ideas for Lyme patients:
www.tiredoflyme.com/detox-methods.html

But, there is such a thing as over detoxing. This happens when we move more toxins than our body is capable of processing out effectively. Many toxins are stored in our tissues, and by detoxing, we move them to the bloodstream where we can process them out of our bodies through the lymph system, then on to the liver and kidneys as so on. We have to be sure to add in more detoxing routines slowly and carefully, or we will end up herxing just like we had never been detoxing. This article helps to explain that some: www.tiredoflyme.com/4-reasons-why-you-still-feel-bad-despite-detoxing.html
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New set of infections 8/2014 - still treating.
Come visit me: dogwoodtraditionals.freeforums.net/

Tsak11
Regular Member


Date Joined Sep 2017
Total Posts : 51
   Posted 1/17/2018 3:21 PM (GMT -6)   
Thank you Traveler. I do drink a lot of water but need to add the lemon juice. When I have the Meyers Cocktail and Glut detox IV I use activated charcoal to help eliminate everything. I want to incorporate it at least once per day. Haven't been sleeping well again so I feel I may be behind on detoxing. Ugh. It's like a job. Today I was working and all of a sudden felt overwhelmed, my finger tips got tingly and got cold flashes. I went to lay down. Not sure what that was.
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