Babesia - lingering symptoms

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frankinstein
New Member


Date Joined Sep 2017
Total Posts : 4
   Posted 1/16/2018 10:08 AM (GMT -6)   
I've read through hundreds posts about Babesia, but one thing I really haven't been able to get an answer to is how long does it take for lingering symptoms to fade? I was one of the lucky ones (if you can call it that) who was bitten, diagnosed, and treated quickly. Felt like a ton of bricks hit me but within a month or so symptoms where abating. Each month (it has been 6) there has been improvement (albeit slowly) in my lingering symptoms. I still suffer from fatigue, subtle balance problems, and sensitivity to temperature changes. Every variation of tick-borne lab work you can think of has been repeated multiple times all negative now. Clearly the inflammation associated with Babesia gave me a beat-down. I've come to understand anecdotally that it is just a slow crawl to normal which may take a long time.

Not looking for additional treatment advice but just some reflections on the journey for those of you that are following a path similar to mine.

And let me share my hope and prayers for those hit hard by this...so inspiring to see how strong you people are fighting this beast.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32617
   Posted 1/16/2018 12:39 PM (GMT -6)   
frankenstein - I'm not full healed yet...but have lost a lot of symptoms in the past three years.

For me, most of my symptoms have slowly reduced over time (with treatment) until they're gone.
I've never had quick resolution of any of them (not that I can remember at the moment)
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

WalkingbyFaith
Veteran Member


Date Joined Aug 2017
Total Posts : 1680
   Posted 1/16/2018 9:55 PM (GMT -6)   
frankinstein,

I got the impression from your post that you were treated and treatment has stopped, but you still have symptoms and you are thinking the symptoms will go away on their own at some point without further treatment. Is that correct? I'm of the persuasion that lingering symptoms mean lingering infections and/or immune dysfunction that needs to be addressed.

You mentioned subsequent testing was negative, but testing is notoriously unreliable.

Rikky1
Veteran Member


Date Joined Jun 2015
Total Posts : 2860
   Posted 1/17/2018 9:27 AM (GMT -6)   
babesia can be a real b*tch to treat let alone eradicate. even if you treat right away could take many months to years to resolve.

as walkingbyfaith said not sure i would rely solely on a blood test to determine whether its cleared. babesia is a clinical symptom so if you're still having symptoms well you probably still have it.

its taken me almost a year of continuous abx therapy to get my liver and spleen to go back to normal and that's a telltale sign of this infection. symptoms also.

your immune system may be able to get the infection under control at this point but nobody really knows.

BJD55
Regular Member


Date Joined Jan 2017
Total Posts : 376
   Posted 1/17/2018 10:00 AM (GMT -6)   
Yeah, I'm still struggling with relatively mild but residual symptoms. Mostly anxiety /agitation accompanied by what feels like a shortness of breath or discomfort in my upper chest while at rest. Some brain fog too. These come and go. I get to feeling near 100% for a week or so then the symptoms return for another week or 2. At least I can function in life again, and for that I'm grateful. I wish I could hit it hard with higher doses of herbs or abx but alas I can't hack the herxes so I chip away with small doses of herbs.at a tolerable level. Wishing you all good healing in the new year.

frankinstein
New Member


Date Joined Sep 2017
Total Posts : 4
   Posted 1/17/2018 11:31 AM (GMT -6)   
DJB55, How long past treatment are you?

ChickenArise
Veteran Member


Date Joined Nov 2015
Total Posts : 1506
   Posted 1/17/2018 6:10 PM (GMT -6)   
I directed a person with confirmed B. Duncani infection to the protocol on here:
morgellonsshield.com/morgellons-recovery-shield-1/

Within 2 weeks of using it daily his chronic nausea went away and he is feeling much improved. Prior to this his comfort rating was often 3 or 4 at best. Now he is at 7 on most days and continuously improving.

There is a uncanny close relationship between Lyme and Morgellons that is not understood by mainstream medicine. Babesia also converts the iron in your blood to a form it can use and your body no longer can. This protocol stops that conversion.

I posted the science of how this works recently in another thread. The credit goes to Cliff Carnicom for his tireless research. It's not a cure, but a step towards solutions. If it works for you please let us know.

2014 Mold Sick,2015 Clinical Lyme and co.,2016 Morgellons,2017 Remission
YT: ClintFromNYtoVA2
Twitter: @ClintFromNYtoVA
Blog: www.fascinatingtimetobealive.blogspot.com/
" The path to disappointment is paved with expectations "

Post Edited (ChickenArise) : 1/17/2018 5:31:15 PM (GMT-7)


BJD55
Regular Member


Date Joined Jan 2017
Total Posts : 376
   Posted 1/17/2018 6:31 PM (GMT -6)   
frankinstein said...
DJB55, How long past treatment are you?

Ha! Still treating after almost a year. Took me 4 months to get diagnosed correctly as I never saw a tick bite.

I've had 2 integrative docs that are marginally Lyme literate. I've made a ton of progress but would like to be done with it and move on. I lost >20lbs, became very weak and deconditioned, profoundly fatigued, and looked pallid and sick. I gained back the weight but with less fat/more muscle, most of the stamina, and now look better than before I got sick. Oh, and I'm sleeping better too.

I have an extrinsic source of stress that I think exacerbates the anxiety and agitation. Unfortunately I need to deal with that internally as I don't know how to eliminate the external stressor.

I'm going to retest then visit a prominent llmd in sf before long who supposedly understands how to get patients around this herx business. My current llmd only offered a glib remark and no alternatives when I told him about the herx problem that starts within 12hrs of taking the abx. So I stopped seeing him several months ago and stuck with herbal formulas, rather than doing damage taking the wrong abx. But, I'll try abx again so long as I can trust the prescribing doc.

I wish I could offer you some sage advice but this is such an individual disease. There are tons of people who've treated longer and more aggressively than I and haven't made near the progress I have. I can't explain it, unless maybe my immune system is handling it thus far.
All the best,
BJD
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