UBI treatments? Anyone tried? Outcomes?

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Melissa58
New Member


Date Joined Jan 2018
Total Posts : 5
   Posted 1/17/2018 1:08 AM (GMT -6)   
Hey everyone. I’m Melissa. I have a doctor who thinks I have Lymes. I’ve been tested four times via various blood tests and they all come back negative. I DO however take UBI-ultraviolet blood irradiation treatments. I’ve had 8 I think so far, but they’ve been sporadic. Ive lost track of the dates because the place where I go to get them isn’t run efficiently. Good news: I seem to be doing much better. Is that in my head? Does anyone else have exepeeiene with UBI? If so, how long? Did it help or not. Please share. Thank you in advance.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33876
   Posted 1/17/2018 2:52 AM (GMT -6)   
Hi Melissa, welcome!

First - wanted to mention - you should not use your 'real' name for your screen name.
So, you can go in to your profile and change that.


i haven't had any experience with UBI.

Is that all you're doing to treat lyme? I think UBI can be an adjunct, but I wouldn't use it as the stand alone treatment for lyme.

Do you have a LLMD? Or is the doctor that's treating you your regular Dr?

No, I don't think it's in your head - that you're doing much better.

We do encourage all new members take a look through the information in the thread: "New to Lyme?..Start Here!" It's packed full of useful information.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Melissa58
New Member


Date Joined Jan 2018
Total Posts : 5
   Posted 1/17/2018 10:12 AM (GMT -6)   
Thanks Girlie. Yes. I changed my screen name.

I am taking a RX and supplements for thyroid issues. The Lyme doctor isn’t sure my pain is from the screwed up thyroid or Lymes. I have spirochetes in my blood. That’s I’m very sure of. I’ve seen them personally under a high powered microscope.

I’m not sure if my doc is LLMD. He is super knowledgeable. He left family practice at 60 to pursue Lymes and thyroid issues. He’s met the maker of the UV machine and conferences with others in the field. He has treated over 4000 people. He’s in Beloit WI.

I also eat a low sugar diet and tried gluten free but didn’t have any improvement. No sugar does help though.

Rikky1
Veteran Member


Date Joined Jun 2015
Total Posts : 2922
   Posted 1/17/2018 10:17 AM (GMT -6)   
Melissa how much do you spend per UBI treatment? Here in the Northeast it's really prohibitively expensive my old LLMD charged $350 per session. Yup you read that right and he recommended doing it 2-3x a week for a few months. Can you say cha ching?

Melissa58
New Member


Date Joined Jan 2018
Total Posts : 5
   Posted 1/17/2018 10:37 AM (GMT -6)   
Hello Rikky! Mine are $150 each. There an extra $30 charge if I get a Meyers cocktail (huge vitamin infusion push in the same line as the returned treated blood). $350 is outrageous!!

As far as the frequency: My doc recommends 1x a week for at least two months. They evaluate after that. My problem arise when I could only get them sporadically. Weather. Sickness on the technician’s part. Etc. NOW they are telling there is a shortage of supplies used to adminster UBI. No idea.

I get relief after each treatment then regress if a few weeks pass before another can be given. I’m very frustrated. I’m wasting money if I can’t get them regularly. Have you heard of this “shortage of supplies”?

Oh, if you DO get a Meyers, they are covered by insurance.

Let me know your thoughts.

1000Daisies
Veteran Member


Date Joined Apr 2016
Total Posts : 2474
   Posted 1/17/2018 10:53 AM (GMT -6)   
If you found something that is working for you, then go for it!

I have multiple sick in my family, and I've quickly learned that what works for one does not necessarily work for the other.

Our NP and functional medicine MD doctor both use UVLrx. Our NP says that it's really helps about 80% of his patients (for various issues). They have both seen positive results from using it. I know another doctor (word of mouth) in the next state who really swears by it for his lyme patients.
Kid#1: Extremely sick for several years, very difficult to treat, but doing great now!
Kid#2: Still sick now despite being treated for years but doing better (not well yet).
Kid#3: Generally good but relapsing off/on.
Me: Adv Labs positive 2016 (suspected I passed to my kids)-not as sick as others, mostly battling fatigue and yeast issues (heart/kidney issues resolved)
Treating with herbals now.

TxBart
Regular Member


Date Joined Jun 2017
Total Posts : 85
   Posted 1/17/2018 4:19 PM (GMT -6)   
I've heard of the supply shortage (the infusion center I go to has been dealing with it). The first hiccup came when Houston was hit by hurricane Harvey which knocked out the distribution center. Then when hurricane Maria hit Puerto Rico, it knocked out the primary U.S. supplier of IV bags. We were getting IV ozone done in glass bottles. Given Puerto Rico still isn't up and running, there continues to be a shortage. It's causing my doc to raise prices 10% on IV treatments to cover getting bags from other sources.

Melissa58
New Member


Date Joined Jan 2018
Total Posts : 5
   Posted 1/18/2018 2:10 PM (GMT -6)   
TxBart-Not to be argumentative, but my doc used glass bottles too. Not bags. So why is there a problem? Maybe I just do t get it. Lol. I’m an accountant. 🙃

Rikky1
Veteran Member


Date Joined Jun 2015
Total Posts : 2922
   Posted 1/18/2018 6:25 PM (GMT -6)   
glass bottles? that's old school LOL. yes there are people that still use them but there are many reasons why the plastic bags are better.

with these pathogens you have to keep at it over long periods of time for most to eradicate them. so this modality is no different than any other one its just the price can be crazy over time. if i had my druthers i'd probably try UVLrX then Myers Cocktail 2x/week for several months and see where I end up.

seems with this disease anything you do has to have some frequency and long duration to it to see if its successful.

magoo2
Veteran Member


Date Joined Mar 2015
Total Posts : 1302
   Posted 1/18/2018 8:15 PM (GMT -6)   
I do ozone with UV-seems to help but I only do it once a month. I do ten pass ozone weekly-its seems much stronger and better for me. I also throw in some RI ozone and ozone sauna a couple times a week-together it all seems to help. With that said do what works for you.
Did you mean ozone uv or just light therapy?

3HumpedCamel
Veteran Member


Date Joined Aug 2016
Total Posts : 578
   Posted 1/18/2018 10:03 PM (GMT -6)   
hi. I did 16 unit w/ozone treatments and got well for nearly a year... it it all came back and then my veins couldn't hold up to the treatment frequency, so I had to stop. I think it's beneficial, but for me it didn't last... then my doc moved to a different state so it doesn't exist here any longer.

The ozone made a huge difference in success. I did uvlrx after my doc moved, and it didn't do too much but cause a herx.
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