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kimbo62
Regular Member


Date Joined Apr 2015
Total Posts : 100
   Posted 1/17/2018 8:06 AM (GMT -6)   
Does anyone have Morgellons? How do you deal with it?

Lapis_29
Veteran Member


Date Joined Sep 2017
Total Posts : 844
   Posted 1/17/2018 9:12 AM (GMT -6)   
there are a lot of overlap between morgellons and bartonella.

what are you specific symptoms? Do you have the fibers growing out of your skin that so many with morgellons have?

True morgellons is actually a treatment resistant mite infestation.

goshawk
Veteran Member


Date Joined Sep 2016
Total Posts : 2122
   Posted 1/17/2018 9:48 AM (GMT -6)   
Hi Kimbo62,

Yes, there are members here that have Morgellons. Some have had success .

Have you heard of Dr. G .S. book "Morgellons; The legitimization of a Disease."

She is the leading expert and has treated the most patients with Morg. her book offers treatment options and other important and helpful things that you can do to help.

There is also a yearly conference in Austin, TX with speakers and researchers from around the world.

Link to the foundation: www.thecehf.org/


Morgellons has scientifically been linked to the Lyme Bacteria.

Here is a link to scientific peer reviewed research:

www.thecehf.org/morgellons-disease-research.htm


Around 6 % of people that get Lyme will get Morgellons. If you have Morgellons you do have Lyme.

Not everyone gets the Lesions. The one thing that differentiates Morgellons from anything else is if you have fibers.

A clinic in Germany found that 80% of morgellons patients in their study also had Bartonella.

It is wise to treat for Bartonella and Dr GS has had patients have success with doing that.

I am sorry you are facing this and I wish you the best of healing.

There is hope to get better but it can take time.

I have itching, crawling sensations and some fibers. I haven't had lesions but do have issues on scalp sometimes.

Treating for Bartonella has stopped the biting, stinging. The itch/crawling sensations have all so improved and I have them less frequently.

I am also treating Lyme,Babesia, Bart and candida.

Please take care, Jo

goshawk
Veteran Member


Date Joined Sep 2016
Total Posts : 2122
   Posted 1/17/2018 10:34 AM (GMT -6)   
also another member has posts about this with info on another helpful protocol

Link /www.healingwell.com/community/default.aspx?f=30&m=3964949&g=3967123#m3967123

Dahlias
Regular Member


Date Joined Jun 2017
Total Posts : 462
   Posted 1/17/2018 11:12 AM (GMT -6)   
I haven't watched this, but this video was just posted of an interview with a local Morgellons specialist. Hope this works. /youtu.be/hm__damdJYU

Post Edited (Dahlias) : 1/17/2018 10:18:42 AM (GMT-7)


ChickenArise
Veteran Member


Date Joined Nov 2015
Total Posts : 1506
   Posted 1/17/2018 3:43 PM (GMT -6)   
Dahlias said...
I haven't watched this, but this video was just posted of an interview with a local Morgellons specialist. Hope this works. /youtu.be/hm__damdJYU


The host of the interview is sold on Morgellons being completely bacterial. He attacks people that have evidence saying otherwise and is a disinformation agent. The doctor he interviews I dont know much about but I would run not walk away from this channel.

Try the protocol at morgellonsshield.com/morgellons-recovery-shield-1/ first and I think you will make progress. After a few weeks see what remains to be addressed.

My email is in my profile if you need any other help.

2014 Mold Sick,2015 Clinical Lyme and co.,2016 Morgellons,2017 Remission
YT: ClintFromNYtoVA2
Twitter: @ClintFromNYtoVA
Blog: www.fascinatingtimetobealive.blogspot.com/
" The path to disappointment is paved with expectations "

Post Edited (ChickenArise) : 1/17/2018 5:33:57 PM (GMT-7)


magoo2
Veteran Member


Date Joined Mar 2015
Total Posts : 1246
   Posted 1/17/2018 5:58 PM (GMT -6)   
I had Morgellons-at least that what Creek Trail medical told me.

Here is how I cured Morgellons in my case.

A biological dds found several jaw infections that my normal dds missed-I cleaned them up with the biological dds. Then Dr Yu had me on many round of anti parasite meds. He aggressively uses meds at much higher doses then most will but he also has the experience of treating over 10,000 parasite patients. He would use various combinations of antiparaistie meds-high dosesmaybe 4 times higher then typical.

That's it-a biological dds and treat parasites-aggressively. I would throw in some ozone treatments but I didn't start downg ozone until I cured my Morgellons.

Morgellons is mainly a dental thing-polymicrobial dental infection that creates a focal infection

ChickenArise
Veteran Member


Date Joined Nov 2015
Total Posts : 1506
   Posted 1/17/2018 6:38 PM (GMT -6)   
magoo2 said...
I had Morgellons-at least that what Creek Trail medical told me.

various combinations of antiparaistie meds-high dosesmaybe 4 times higher then typical.



We did do some massive antihelmintics didnt we? The good ol' days! I remember I was taking 40 grams of Ivermectin horse paste for 5 days just to get half the human dose of the difficult to obtain Prazicuantel (included in the horse paste at sub human doses).

I am surprised my liver didnt stage a coo.

I was reading an old panicky thread of mine from time ago. It is amazing how far we have come.

Ah good times (not really).

You may need to go this route, Kimbo, but lets hope you dont or at least lets get you feeling a little better so you can handle it.

I like to refer to Dr. Yu's protocol as the shotgun protocol.

This is a very complex disease. Both me and magoo paid close attention to our teeth. I removed all metal implants.

Do you have decay at the base of your teeth? Does the back of your throat glow under UV light? I think monitoring these things are very good in indicators of the level of disease and healing once you get the symptoms under control.

Magoo are you 100% now? Throat glow? I am at 90% and improving.

2014 Mold Sick,2015 Clinical Lyme and co.,2016 Morgellons,2017 Remission
YT: ClintFromNYtoVA2
Twitter: @ClintFromNYtoVA
Blog: www.fascinatingtimetobealive.blogspot.com/
" The path to disappointment is paved with expectations "

Post Edited (ChickenArise) : 1/17/2018 5:55:14 PM (GMT-7)


magoo2
Veteran Member


Date Joined Mar 2015
Total Posts : 1246
   Posted 1/17/2018 7:08 PM (GMT -6)   
I like dr yu take on meds. I never did paste made for animals but I did do three weeks of 12 mg of ivermectin four times a day-plus homeopathics and wormwood. He would use various combinations of pharmacy meds and homeopathics. I never had a liver issue with any of his meds. I would see him every month and he would change the meds based off his test.

My honest opinion is he is the single best person in the world for IDing dental issues and IDing and treating parasites. Most chronic people have both issues-few know it

I am way better- cured Morgellons but still have some issues to clean up. I have found ten pass ozone helpful

dacarte3
Veteran Member


Date Joined Feb 2016
Total Posts : 1897
   Posted 1/17/2018 8:18 PM (GMT -6)   
I had morgellon as well. Like Magoo said you have to address parasites. Like with lyme I went the a natural route.

I did herbs, probiotics, and antifungals (both nystatin and diflucan).

I am now morgellon symptom free.
Lyme (Igenex) - Positive IFA and WB bands 23, 31, 41
Ehrlichia (Igenex)
Mycoplasma (Labcorp) - Score: 595

ABX Treatment: 03/2016-04/2016; 7/2017-9/2017
Buhner Protocol for Lyme and Mycoplasma: May 2016 - Dec. 2016; 8/2017 - Present

kimbo62
Regular Member


Date Joined Apr 2015
Total Posts : 100
   Posted 1/20/2018 2:42 PM (GMT -6)   
Thank you for your responses. I’ve been under the weather, now have positive ANA Dr thinking Lupus. Anyways.....yes I have fibers. I’m scaring bad. I’m embarrassed by all these scars. Need suggestions. HELP

goshawk
Veteran Member


Date Joined Sep 2016
Total Posts : 2122
   Posted 1/20/2018 2:48 PM (GMT -6)   
Hi Kimbo62,

Hey I understand your scared and I know this has to be difficult , but there is hope to get better.

No matter the scars you are still you... and don't let this infection take that away.

Not sure but there is a woman on face book you might want to follow, she is a fighter and offers others hope. You can email me for her name if you want to.

Hang in there , Jo

magoo2
Veteran Member


Date Joined Mar 2015
Total Posts : 1246
   Posted 1/20/2018 4:13 PM (GMT -6)   
advice- find a doctors that looks for and treats dental and parasite-get cured.
Morgellons sucked!

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32652
   Posted 1/20/2018 4:46 PM (GMT -6)   
Do LLMD's diagnose Morgellons?



I have a few things on my upper back - left side. They're like little thin slivers poking out of my skin - and my husband says they're hard to remove...they don't budge usually when he tries to pull them out.

He needs a magnifier to see them.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

tonesg
Regular Member


Date Joined Apr 2009
Total Posts : 58
   Posted 1/20/2018 5:05 PM (GMT -6)   
magoo2 said...
I had Morgellons-at least that what Creek Trail medical told me.

Here is how I cured Morgellons in my case.

A biological dds found several jaw infections that my normal dds missed-I cleaned them up with the biological dds. Then Dr Yu had me on many round of anti parasite meds. He aggressively uses meds at much higher doses then most will but he also has the experience of treating over 10,000 parasite patients. He would use various combinations of antiparaistie meds-high dosesmaybe 4 times higher then typical.

That's it-a biological dds and treat parasites-aggressively. I would throw in some ozone treatments but I didn't start downg ozone until I cured my Morgellons.

Morgellons is mainly a dental thing-polymicrobial dental infection that creates a focal infection


How did your dentist treat the infections? I have recurring dental problems, never been able to completely get rid of the issues.

magoo2
Veteran Member


Date Joined Mar 2015
Total Posts : 1246
   Posted 1/20/2018 5:37 PM (GMT -6)   
tonesg-first of all I also had to go back for several operations.
look for a biological dds-one that uses ozone and prp. Do some ozone IVs before-ten pass if possible.
after do vit c and ten pass and don't travel far for two days. Ozone injections before can tighten up the infection and after help heal. Also get some homeopathic drops for dental. Dental infections can be an f-er to get rid of but are often the one thing that restores health. I often wonder if the dental spirochete is flagging all the lyme test. FYI-many good lyme docs aggressively treat dental

Girlie- instead of being diagnosed with morgellond I think you would be better served to get dental checked by a biological dds and parasite tested but a good energy tester. I think my guy in st. louis is the all time best at those two things but there must be others

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32652
   Posted 1/20/2018 5:52 PM (GMT -6)   
magoo2 said...
tonesg-first of all I also had to go back for several operations.
look for a biological dds-one that uses ozone and prp. Do some ozone IVs before-ten pass if possible.
after do vit c and ten pass and don't travel far for two days. Ozone injections before can tighten up the infection and after help heal. Also get some homeopathic drops for dental. Dental infections can be an f-er to get rid of but are often the one thing that restores health. I often wonder if the dental spirochete is flagging all the lyme test. FYI-many good lyme docs aggressively treat dental

Girlie- instead of being diagnosed with morgellond I think you would be better served to get dental checked by a biological dds and parasite tested but a good energy tester. I think my guy in st. louis is the all time best at those two things but there must be others


I'm in Canada. West coast. I doubt if I will be in St. Louis. I have just scheduled my trip to Dr. J. in DC.
Energy testing - Is that the same concept as muscle testing?
Not sure I believe in that.
There may be someone near my location.

Dr. J does do some parasite treatment - mostly with Alinia, I think.


As far as dental spirochetes flagging lyme tests - that would just be the band 41, right?
Not the other bands are cross-reacting with dental spirochetes.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

magoo2
Veteran Member


Date Joined Mar 2015
Total Posts : 1246
   Posted 1/20/2018 6:09 PM (GMT -6)   
Girlie- st louis just might be worth the trip if you think you have Morgellons. I don't live close to st louis either. I cannot think of any better in the world with dental and parasites.
As far as what bands does a dental spirochete flag-no clue. most docs never tell you a dental spirochete even exist.
Just my experience treating parasites often is a lot more than just taking alina. your experience may be different.
Yes energy test is kind of like muscle testing. I find some docs-like dr st, louis is great at it-others aren't. Some dentist are good at it some aren't. I usually ask how often they find dental issues or parasites-if the answer is not often then are simply missing it.

Go luck-keep up the fight

ChickenArise
Veteran Member


Date Joined Nov 2015
Total Posts : 1506
   Posted 1/20/2018 6:56 PM (GMT -6)   
I am going to be completely honest, all of the antihelmintics (Ivermectin, Nitazoxanide, Albendazole, Mebendazole, Diethylcarbamazine, and Pyrantel) were much easier to go through than the antibiotics as far as side effects go. They were not difficult to obtain with the exception being prazicuantel which you can get for fishes or horses.

The only antibiotic that was as easy on my system as any of the antihelmintics was Clarithromycin.

I think some members here know more about treating this than most doctors do. I have all of you to thank for my remission.

Your mileage may vary.

2014 Mold Sick,2015 Clinical Lyme and co.,2016 Morgellons,2017 Remission
YT: ClintFromNYtoVA2
Twitter: @ClintFromNYtoVA
Blog: www.fascinatingtimetobealive.blogspot.com/
" The path to disappointment is paved with expectations "

Post Edited (ChickenArise) : 1/20/2018 6:01:58 PM (GMT-7)


Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32652
   Posted 1/20/2018 7:01 PM (GMT -6)   
ChickenArise said...
I am going to be completely honest, all of the antihelmintics were much easier to go through than the antibiotics as far as side effects go. They were not difficult to obtain with the exception being prazicuantel which you can get for fishes or horses.

The only antibiotic that was as easy on my system as any of the antihelmintics was Clarithromycin.

I think some members here know more about treating this than most doctors do. I have all of you to thank for my remission.

Your mileage may vary.


I personally don't have many issues with the antibiotics...other than herxing.
I've now and then had some esophageal issues - It was with mino and doxy - taken without food. And a rash here and there - which could also be the infections.

But, they clear up quickly.

I'll see where Dr. J. takes me...and reassess after that. I'm breaking the bank to go there...so I'm going to dive in with both feet...
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32652
   Posted 1/20/2018 7:03 PM (GMT -6)   
ChickenA - So good to hear you're in remission....must feel soooo good!
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32652
   Posted 1/20/2018 7:03 PM (GMT -6)   
Sorry, kimbo - the thread got sidetracked for a bit..
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Lapis_29
Veteran Member


Date Joined Sep 2017
Total Posts : 844
   Posted 1/20/2018 8:15 PM (GMT -6)   
classic morgellons is actually a mite infestiation, treatment resistant. I think alot of lymies call bartonella symptoms morgellons, but they never actually had classic morgellons.

the following is NOT my story, but the treament protocol described here has worked for several ppl with morgellons. this is the best description of what exactly is going on with classic morgellons i have found

-------------------------------------------------------------------------------

These plugs are parasites. DO NOT LET ANYONE CONVINCE YOUR OTHERWISE …and believe me, they’ll try (ill-informed dermatologists included). The parasites are called Demodex mites. That plug is the adult stage of the mite. Usually, humans are only inhabited by Demodex folliculorum and Demodex brevis. I suspect you’re describing the Demodex injai, the "large-body" Demodex.

You'll want to get rid of these things ASAP and with extreme prejudice. I wound up with an all-out infestation because it took me 7 years, 5 useless dermatologists, and 2 ill-equipped primary care physicians to figure it out. One dermatologist accused me of making the sores myself and suggested I take an anti-depressant. But, don't get me started on that... I even had an elevated IGg because my system was so irritated by them.

Anyway, back to the mites …The adults move around on your skin (usually at night because they don’t like light) and give you an itchy, crawly sensation. After they mate, the pregnant female emerges to lays eggs. When the pregnant female comes out, it looks kind of like a regular pimple. But, no puss comes out it-only fluid- and it gets red and irritated if you mess with it. The eggs she lays around the area where she emerged, that look kind of like "spindles." They’re down inside your skin but have little white hairs sticking out of your pores. Those hairs get a little thicker and will sometimes fall out as the egg evolves into an adult mite. Don’t bother pulling them out. The hairs will simply detach and the mite will stay in your pore. The adult mites are NOTHING NICE. They have, what I call venom (for lack of a better word), that causes a sever immune response.

If you mess with them, they create this clear fluid that makes a hole in your skin. If you persist, they will make you bleed profusely. I think that stuff is an anti-coagulant too! After you lose the battle (and you will), your skin feels like it's on FIRE. Depending upon how much you messed with them, you'll either have a sore spot that won't heal or a plasticky quasi-scab looking thing …on top of a sore that won’t heal. If you lift up the plasticky scab, you can see the adult mites attached to the underside of it. I say that to say this: DON’T BOTHER MESSING WITH THEM. You will not get them out without putting a deep hole in your skin. They just dig down deeper if you try to pull them out with tweezers. The immune response will make a real mess of your face. You cannot kill the adult Demodex with creams because they move down into your pores beyond the reach of topical miticides. You cannot kill adult Demodex with ingested miticides because they have a hard outer shell that protects them from absorbing the chemicals. If you pinch one of those white plugs really hard with some tweezers you can hear it crunch. (I even tried applying a tiny bit of RAID …didn’t work.)

I got rid of the MF’ers with 3 things: (1) Ivermectin, (2) Permethrin SFR, and (3) sulfur paste (all of which I found at the local feed store for animals). First: Use Ivermectin to kill the mid-stage mites. I used the equine version. It’s a paste with 1.87% Ivermectin. (DO THIS AT YOUR OWN RISK. IVERMECTIN DOSES ARE DETERMINED BY WEIGHT. I SIMPLY USED THE APPROPRIATE AMOUNT OF PASTE FOR MY WEIGHT. I HAD NO PROBLEMS AT ALL, BUT BE CAREFUL). Within 6-8 hours of your first dose of Ivermectin, you'll see the mites pushing out of your pores IN DROVES. Because it only kills the mid-stage mites (not eggs or adults), you’ll need to take Ivermectin once a week, for 4-6 weeks. When you take the Ivermectin, change your bed sheets every night, for at least three nights. Also, buy a few extra pillow cases so you can have a newly washed pillow case every night for at least four weeks. I STRONGLY suggest this measure because the mites wreaked havoc on my scalp.

My hair has not grown for more than 3 years. You may want to use Selson Blue shampoo for 4 to 6 weeks, just in case. Second: Use Permethrin SFR, which is 38.6 % Permethrin, to kill the eggs. Dilute it in a spray bottle and spray EVERYTHING in your house, including mattresses, couches, carpets, etc. …EVERYTHING. Then, vacuum really good, and spray EVERYTHING again. Buy new pillows too. Wash ALL CLOTHING and LINENS in hot water. Put them in the dryer on “high heat.”

I even lightly sprayed the Permethrin solution on the dried laundry, and the replaced bed sheets. Permethren is not really toxic to humans, and it’s odorless once it dries (PLEASE READ THE PACKAGING THOROUGLY). WHILE I DON’T RECOMMEND THIS: I poured ¾ cup of the Permethrin SFR in my bath water. After soaking for a short time, there were so many eggs (with the white hairs) that my bath water had a film on it. I only did this because I had a full-on infestation. Third: Apply the sulfur paste all over your body. It’s a little tricky to apply, so I suggest wearing gloves. Also, it’s really thick and has a strong smell. I used Pierce’s All Purpose Nu-Stock.

I had to mix the paste with baby oil to get it to spread. You’re supposed to wear it, kind of like calamine lotion, for 3 days straight. Then re-apply, on top of the first application, and wear for another 3 days. The objective is to keep the adult mites from mating and laying new eggs. I realize this is a lot. But, BELIEVE ME, you do not want to be infested with these things. This has been a 7-year nightmare for me …finally coming to an end. Good luck!

Post Edited (Lapis_29) : 1/20/2018 7:18:04 PM (GMT-7)


magoo2
Veteran Member


Date Joined Mar 2015
Total Posts : 1246
   Posted 1/20/2018 8:22 PM (GMT -6)   
chickenA- glad you are better. can you outline what got you better?

Lapis_29
Veteran Member


Date Joined Sep 2017
Total Posts : 844
   Posted 1/20/2018 8:25 PM (GMT -6)   
Girlie said...
Do LLMD's diagnose Morgellons?



I have a few things on my upper back - left side. They're like little thin slivers poking out of my skin - and my husband says they're hard to remove...they don't budge usually when he tries to pull them out.

He needs a magnifier to see them.


NOBODY will diagnose you will morgellons, as officially it doesn't exist and in fact the official diagnosis is 'delusional parasitosis' because dermatologists are too @#$*&$ arrogant and obstinate to believe people in a first world country could get a mite infestation.
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