New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Hoagie
Veteran Member


Date Joined Jul 2017
Total Posts : 618
   Posted 1/17/2018 10:08 AM (GMT -6)   
Alrighty...

I was recently at Sanoviv in Mexico to treat my Lyme. It was a big fiasco, and ended up not being able to complete treatment. Before I left, they retested me for Lyme and coinfections.

My first western blot was done 6 months ago. I tested positive for one IGM band and 3 IGG bands, all Lyme specific. Mycoplasma was the only coinfection I tested positive for and it was IGG.

The test I had 3 weeks ago showed only one lyme specific band, and it was IGG. However I tested positive for Bartonella, Babesia, and Ehrlichiosis IGG but not IGM.

Does this mean I had past exposure but no active infection? I sure feel like I have an active infection.

I am going to see a new LLMD next week. I know I will get the answers then. But, I would like some clarification beforehand.

Thank you in advance.

ALSO, my CD57 was off the charts high. Almost 600. Indicative of an overly active immune system. Not of chronic Lyme.

Post Edited (Hoagie) : 1/17/2018 9:11:16 AM (GMT-7)


PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 9729
   Posted 1/17/2018 10:36 AM (GMT -6)   
Hoagie, I am so sorry that your treatment did not get completed.

As for testing, I am so against it...... I think it is unreliable. My case is a perfect example. Lyme disease should always be based on symptoms. Just like we don't require to see the tick or the bull's eye to diagnosis lyme disease a negative test should not put a doctor off.

www.tiredoflyme.com/the-western-blot-test.html

As for CD57, well here is an article - www.tiredoflyme.com/cd57.html

Like I said, I'm not a fan of testing. I like listening to my body. I did not rely on the CD57 test. When my symptoms were gone, I continued treatment for 2, almost 3 more months, and then determined it was time for me to stop treatment.

Before anyone jumps about me not testing, I am not against ALL testing.

Hoagie
Veteran Member


Date Joined Jul 2017
Total Posts : 618
   Posted 1/17/2018 10:44 AM (GMT -6)   
PeteZa said...
Hoagie, I am so sorry that your treatment did not get completed.

As for testing, I am so against it...... I think it is unreliable. My case is a perfect example. Lyme disease should always be based on symptoms. Just like we don't require to see the tick or the bull's eye to diagnosis lyme disease a negative test should not put a doctor off.

www.tiredoflyme.com/the-western-blot-test.html

As for CD57, well here is an article - www.tiredoflyme.com/cd57.html

Like I said, I'm not a fan of testing. I like listening to my body. I did not rely on the CD57 test. When my symptoms were gone, I continued treatment for 2, almost 3 more months, and then determined it was time for me to stop treatment.

Before anyone jumps about me not testing, I am not against ALL testing.


Thank you PeteZa.

I understand what you are saying about testing. I know I was exposed. But, I am at the point where I am trying to figure out if the inflamed lesion on my brainstem is due to lyme and/or co infections, or a vascular tumor that may have been there most of my life.

Going to see a vascular neurosurgeon next Friday to try and get some clarification on the matter. Apparently, it's a lot tougher for the "experts" to figure out than I thought.

Hoagie
Veteran Member


Date Joined Jul 2017
Total Posts : 618
   Posted 1/17/2018 10:49 AM (GMT -6)   
Also, Thank you for those links. The CD57 article confirms my suspicion of coinfections being my main problem.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32656
   Posted 1/17/2018 11:43 AM (GMT -6)   
Hoagie said...
Alrighty...

I was recently at Sanoviv in Mexico to treat my Lyme. It was a big fiasco, and ended up not being able to complete treatment. Before I left, they retested me for Lyme and coinfections.

My first western blot was done 6 months ago. I tested positive for one IGM band and 3 IGG bands, all Lyme specific. Mycoplasma was the only coinfection I tested positive for and it was IGG.

The test I had 3 weeks ago showed only one lyme specific band, and it was IGG. However I tested positive for Bartonella, Babesia, and Ehrlichiosis IGG but not IGM.

Does this mean I had past exposure but no active infection? I sure feel like I have an active infection.

I am going to see a new LLMD next week. I know I will get the answers then. But, I would like some clarification beforehand.

Thank you in advance.

ALSO, my CD57 was off the charts high. Almost 600. Indicative of an overly active immune system. Not of chronic Lyme.


No, you can have active infection with only showing IgG.
In fact you can have active infection showing no antibodies.


Lyme doesn't present the same as most other infections. In other infections, after a few weeks IgM converts to IgG. But, with lyme, the IgM can persist for many months to years

From Dr. J's website
"......a confounding fact in Bb infections is that the IgM antibody may persist for years, a very unusual situation in most disease states. Logically, one would have to conclude that this reflects an ongoing reactivation or persisting and continually renewing infectious state of Bb infection. "

Also, cd57 can not be relied on - some LLMD's don't use it as a tool to gauge progress.

Dr. J. treats all patients for the three B's.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi
New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, June 24, 2018 2:51 AM (GMT -6)
There are a total of 2,974,669 posts in 326,197 threads.
View Active Threads


Who's Online
This forum has 161295 registered members. Please welcome our newest member, Blake Letras.
254 Guest(s), 3 Registered Member(s) are currently online.  Details
WorriedUCer, Hibee, Big Tasty