Thanks for the response, Girlie. I should clarify. I was diagnosed and treated in 2009-2012 and then I just stopped treatment because I was diagnosed with Melanoma, so I freaked out a bit. But then I had a bunch of neurological problems in April 2016, so I went back to my LLMD. I am frustrated that he keeps planting the MS seed in my head. I texted my husband after my September appointment because I was so excited to finally have him say, "You definitely don't have MS because the bands you have on both of your Lyme tests cause neurological lyme." So I reminded him of that. So I've been steadily treated since April 2016. I think he's trying to "CYA"... because he has been problems with the state about treating for Lyme. I will just keep on. But I know he's going to be bothered by these recent MRIs.
DX w/ Lyme, Babs, Bart in Sept '09. On IV abx Nov '09 until Mar '09. Orals for a few months and I felt great so I just stopped. In Apr '16, things suddenly went awry... my ability to walk was affected, double-vision, it hurt to touch my bare belly with my bare fingers, but no problem touching through fabric. Started three oral abx in Apr 2016. New problems in Dec 2016. Back to 4 abx Dec '16.