I'm still here. I am so terribly sorry for what you're going through and especially the financial straits you're in. If it were not for my parents, I'd be in pretty much the same situation. I'm 47 and haven't worked since the end of March. I finally got my application for retirement due to disability sent off about
a week ago, but I was told it would take 6-18 months for them to even make a decision and I have no guarantee it will be approved, though my lawyer expects it to be. As part of the application, I was also required to apply for Social Security disability. That's less likely to be approved. I think you practically have to be dead to be approved for that, but it may take as short as 3 months to get a decision back on that.
I think your instincts and assessment of your environment and it's effects on your health are right on the money. The fact that your LLMD ignores that or has no knowledge of mold issues in relation to Lyme is concerning. I know there are a number of articles that have been published by Better Health Guy and the Townsend Letter as well as talks given at conferences on the matter. The fact that your doctor dismisses this shows he is not fully informed or up-to-date.
THE LIVING SITUATION:
I don't know what to tell you about
your living situation. You said you get Medicare. Do you have a caseworker you can talk to? Most caseworkers have lists of references for agencies that provide various services. You may be able to either get some kind of housing assistance or your relative may be able to get help making the needed repairs and finding and cleaning up all the mold. (As you seem to already understand, if there's been visible mold then there's more mold elsewhere that isn't visible.)
My LLMD told me that people who have to be in moldy environments have to 1) use sauna daily and 2) use nasal washes daily or they will remain sick or get sick again. There are YMCA's that have saunas. If there's a YMCA in your area, go check the place out. Cost is minimal. If there's no YMCA, ask your LLMD about
sauna and see if the doc has any affordable suggestions.
AS TO NOT WANTING TO BE HERE ANYMORE:
I have had those feelings, too. My parents and I left our moldy home in Sep 2016, moved in with a relative and are STILL THERE. I paid a doctor-recommended mold expert to provide a remediation plan for my house. He took the money and never provided a protocol. We don't know what to do about
the house, which is why we haven't done anything and now we don't have much money left to do anything with. I've been so afraid of a bad remediation job due to my severe mold and chemical sensitivities that I've been paralyzed in a state of inaction. I have times when I feel so stuck in this endless mess, that I want to check out, too, but I don't. And don't you either. God is allowing us to go through this and He's here with us while we're in it. We just have to hold His hand and keep on walking by faith.
I'll keep you in my prayers.
Post edited to correct typos.
Post Edited (WalkingbyFaith) : 1/18/2018 8:04:08 PM (GMT-7)