Cant afford testing..

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Yugomama
New Member


Date Joined Jan 2018
Total Posts : 1
   Posted 1/19/2018 11:20 PM (GMT -6)   
I am pretty darn sure that I have lyme and have had lyme for approx. 13 years. Found and engorged tick on the back of my thigh and for years have struggled with a slough of symptoms. Docs have said Fibro, depression, hashi., lupus, etc etc. I didnt even know about lyme until a couplr years ago.. symptoms all line up and I am working with a specialist which is costly in and of itself, she thinks lyme and babs. I feel bart would even fit. Anyhow she is treating me with naturals until we I am able to get testing.. well, i am 26, single mom, in school fulltime teaching student, while working for the school district..well....that is barely even income for that job, thanks US gov... but I am wondering one, if naturals are actually beneficial and if anyone knows about testing alts. Or financial help? I know there is lymetap but unsure if they actually pay anything? Experience? My family isnt willing to help me bc they think I am making it up or whatever reason..money is a touchy subject with them.. any advice?

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32656
   Posted 1/20/2018 1:57 AM (GMT -6)   
Hi Yugomama - welcome to our community.

I'm sorry but it looks like you do have lyme disease (engorged tick, followed by multi-systemic symptoms).
Since lyme rarely travels alone, it is likely that you do have Babesia and/or Bartonella coinfections.

I'm Canadian, so I can't offer suggestions for financial assistance.
There are some resources for prescription med help - in our "New to Lyme?..Start Here!"
Take a look in there - the thread has a ton of other useful information as well.

You asked about herbals. Not everyone chooses to treat with antibiotics. There are several popular herbal protocols that people on this forum are following.

You should ask your Dr. to test you for lyme - with whatever your insurance will cover. If you get a negative result...then you can re-test with one of the facilities that specialize in tick-borne disease testing
One lab is Igenex Lab in California. (You call them and they will send you a test kit)
Maybe your insurance will cover that testing as well.
You can get a Lyme WB IgM and IgG for $250 total with Igenex.

Please any questions that you have. This is a knowledgeable and supportive group here. We'll help you through this.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

bluelyme
Veteran Member


Date Joined Nov 2015
Total Posts : 4721
   Posted 1/20/2018 3:05 AM (GMT -6)   
I saw mine with a microscope. Id doc left me to die .find some one with a decent scope and look at ur blood its cheap

goshawk
Veteran Member


Date Joined Sep 2016
Total Posts : 2122
   Posted 1/20/2018 3:44 AM (GMT -6)   
Hi and welcome to our forum ,

Sorry you are facing this but I would try this website for financial help, it does list Lymetap but also many other links that may be helpful .

/lymelightfoundation.org/about-lyme/resources-adults-lyme-disease/


Yes herbals have helped many. Remember we all are different and it can take different approaches and combinations sometimes to heal.

Many use ABX and Herbals.

There are good books out there: Buhner's "Healing Lyme" 2nd edition, "Unlocking Lyme" by Dr. W R
and others.

If you get a chance check out our"New to Lyme" thread at the top of the page.

It has very important and useful information to help you on your way to getting better.


Take care and I wish you the best of healing, Jo

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 36310
   Posted 1/20/2018 12:29 PM (GMT -6)   
Hi Yugomama!
Welcome to the community!

If you haven't yet, please read through the "new to Lyme" thread, as on page 2 (I believe), there are a lot of possible ways of getting help for paying for meds listed.

While I did start out on abx (antibiotics), it didn't take me long to switch over to only herbals - so I can say yes, they definitely work!! Although I'm back in treatment after being reinfected, I healed in 2 years using only herbals after being infected and untreated for 40 years.

Testing is a touchy subject as far as I'm concerned. The testing available to us is not very good, they miss a LOT of those that actually have these infections because they test for antibodies while the body has an infection that lowers the immune response so that antibodies are not produced in high enough quantities for the test to pick up. I had to have 12 months of treatment before I tested CDC positive for Lyme and RMSF. For many, it's much better to go from your symptoms, which is actually what the CDC says to do anyway:
" Lyme disease is diagnosed based on symptoms, physical findings (e.g., rash), and the possibility of exposure to infected ticks. Laboratory testing is helpful if used correctly and performed with validated methods."
/www.cdc.gov/lyme/index.html

If we do have these infections, and we are treated with effective herbal protocols, we will have a significant decrease in symptoms, or a herx (where symptoms increase due to treatments, then settle back down) to indicate that we are on the right track.
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New set of infections 8/2014 - still treating.
Come visit me: dogwoodtraditionals.freeforums.net/

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 9729
   Posted 1/20/2018 12:42 PM (GMT -6)   
Welcome Yugomama. I had lyme. I was given antibiotics while waiting for my test to come back. My lyme literate medical doctor did not think the test was a sufficient enough positive. I moved on to the next lyme literate medical doctor. I was sick from the antibiotics so I asked him for herbs.

He gave me Beyond Balance MC-BB-1 and Tox Ease GL. I started out with just one drop and moved up in those quickly and in a very short time I was feeling better.

I figured if I could feel better with that, maybe adding in more herbs and I could heal???? So I started on Buhner's herbal protocol.

I had not had lyme for very long. I think this really makes a difference in healing time.

I was a huge detoxing person before I knew you should do that because of lyme. I did it for my innards on a regular basis for years. Another huge plus in my favor.

I am a perfectionist and stuck to my protocol to a T. Again, another huge plus for me.

I healed comparatively fast. I estimate my cost of tinctures was about $3,000. I had many herbs leftover that my husband then used to treat. This amount does not include vitamins and supplements.

All the while both of us did Stephen Buhner's core protocol from his book, Healing Lyme, 2nd Ed. We did not do his protocol that is on is website which is only 3 herbs.

And, we did Beyond Balance throughout our treatment.

He is healed also. In June it will be 2 years of no more herbs. March will be 2 years symptom free. Hubby is almost a year healed.

edited for a typo

BabsBunny
Veteran Member


Date Joined Mar 2017
Total Posts : 530
   Posted 1/21/2018 8:23 PM (GMT -6)   
LabCorp and MDL do testing which is just as (in)accurate as iGenex, but are covered by insurance. Just make sure you get the Western Blot that shows reaction to each band- those results can be interpreted by a LL physician, whereas a “positive” or “negative” single word answer does not tell you much do anything.
Lyme, Babesia, Bartonella. Symptoms began 5/2016, didn't start treatment until 9/2016. Slow but steady recovery.

*twitch twitch*

Lyme_CJ
Regular Member


Date Joined Apr 2015
Total Posts : 74
   Posted 1/21/2018 10:08 PM (GMT -6)   
Yugo - sorry to hear all of that. I and many others here can relate to much of what you've been going through. I can only second some of what's been said already about testing, I am not an expert. But it's not a simple, clear-cut matter. Most of the Lyme patient and "Lyme-literate" medical community seems to agree that the Western blot test is the better one to get.

My own tests have come up negative a couple of times, with the Igenex WB finally showing some bands but not "CDC Positive". (CDC positive is a certain minimum threshold / combination of the sub-tests / bands on the Western blot, to be considered Lyme positive.) But numbers of folks will tell you that almost any positive on that means you're infected (though some bands may cross-react with other issues, IIRC). Mine was a couple of positives and an "indeterminate", my doc told me if it was just a little more it would have been CDC positive. Which whole thing is weird because even the CDC says that Lyme is clinically diagnosed - signs, symptoms and history. As Girlie mentioned, you have those.

But even a "mainstream-accepted" diagnosis doesn't necessarily help :-(. I don't know about financial help either, I may need to learn about that myself soon.

bluelyme - I am intrigued by your comment - can you elaborate on what / how to see it under a microscope? Are you referring to any particular protocol / stain etc? Or literally just looking? I know I had a microscope test that showed biofilms or something similar, but it was with some special DNA-highlighting stain or somesuch. Any tips on whom to find / where to go?

Hang in there!

Missouri
Regular Member


Date Joined Sep 2017
Total Posts : 337
   Posted 1/22/2018 9:30 AM (GMT -6)   
I am intrigued also BlueLyme. I have a 400x (I think) microscope on hand at home. Is that strong enough to see bacterium?
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