Is pins and needles from lyme or from doxy?

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greatguy
Regular Member


Date Joined Dec 2017
Total Posts : 104
   Posted 1/20/2018 10:11 AM (GMT -6)   
I am at my 3rd week of doxy daily and pulsed azithromycin, and i am starting to have a herxheimer? Or is this abx allergy, as i take with my abx acid reducing medication like omeprazole, if i don't, i feel like my gut will burn. It helps, but today i woke up with a pins and needles feeling that i had almost a year ago when i didn't know what was wrong with me and i wasn't on any medication besides antihistamines that didn't do JACK S*IT.

So, wondering, if i should stop and take a break or if this is a herx and i'll be fine. It feels sort of like a glass or plastic hurting me sensation throughout my body, hands, feet, face. The million dollar question that i keep thinking about everyday: Am i treating myself or am i damaging my body more?

greatguy
Regular Member


Date Joined Dec 2017
Total Posts : 104
   Posted 1/20/2018 12:48 PM (GMT -6)   
Its driving me both nuts and causing anxiety.

Traveler
Elite Member


Date Joined May 2007
Total Posts : 36310
   Posted 1/20/2018 12:52 PM (GMT -6)   
This is most likely a herx. What are you doing for detoxing?
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New set of infections 8/2014 - still treating.
Come visit me: dogwoodtraditionals.freeforums.net/

greatguy
Regular Member


Date Joined Dec 2017
Total Posts : 104
   Posted 1/20/2018 12:55 PM (GMT -6)   
I have curcumin and silybin, but i wasn't using them all these 3 weeks since i never had anything like this. Now i'm shaking like i have a flu or something. Darn!

Traveler
Elite Member


Date Joined May 2007
Total Posts : 36310
   Posted 1/20/2018 1:11 PM (GMT -6)   
I would definitely encourage you to restart the silybin, as that will help your liver detox much easier.

Turmeric (with pepperine, a black pepper extract) will help with any inflammation that may be contributing to this symptom. I know it helps with mine, but not everyone deals with the same amount of inflammation.

You're body is likely over run with toxins, as well as having symptoms of these infections. If you can, rest today,eat well, stay well hydrated and detox. This should bring this under control fairly soon.

And - I'm sorry you are dealing with this!
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New set of infections 8/2014 - still treating.
Come visit me: dogwoodtraditionals.freeforums.net/

greatguy
Regular Member


Date Joined Dec 2017
Total Posts : 104
   Posted 1/20/2018 1:21 PM (GMT -6)   
Thank you! It very frustrating not knowing if it is the drug or the bacteria. 'Cause if it is the drug, it is scary to think it could do this much harm.

Traveler
Elite Member


Date Joined May 2007
Total Posts : 36310
   Posted 1/20/2018 1:32 PM (GMT -6)   
I do agree! But it really sounds like a herx - the timing and the reaction is about right. Allergic reactions usually start with an allergic rash, then moves on to include other areas of the body, like your airway swelling and eye swelling. You didn't mention any of that, so it's fairly safe to assume you are herxing - but always watch for signs of an allergic reaction - whether you are using herbs or abx! Then there's no time to waste and we must stop the meds/herbs and likely need to be seen in urgent care.
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New set of infections 8/2014 - still treating.
Come visit me: dogwoodtraditionals.freeforums.net/

greatguy
Regular Member


Date Joined Dec 2017
Total Posts : 104
   Posted 1/20/2018 2:14 PM (GMT -6)   
That is indeed scary. But what exactly can someone do if i have an allergy and have swelling? Give me steroids that suppress the immune system, letting lyme penetrate further into the deep tissues?

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33931
   Posted 1/20/2018 4:15 PM (GMT -6)   
greatguy said...
That is indeed scary. But what exactly can someone do if i have an allergy and have swelling? Give me steroids that suppress the immune system, letting lyme penetrate further into the deep tissues?


If you have an allergy - then you go off of those meds and switch to something else.

There are many different combinations of abx to take for these infections.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

JustPiccd
Regular Member


Date Joined Dec 2017
Total Posts : 84
   Posted 1/21/2018 10:21 AM (GMT -6)   
I began having pins and needles from Flagyl at one point and because I didn't stop it immediately, it blossomed into *excruciating* peripheral neuropathy that I was only able to resolve over a slow, tedious process of doing acupuncture in my fingertips and tips of toes, taking tons of alpha lipoic acid and other measures, but it grew more painful than I could have imagined.

If peripheral neuropathy is a listed side effect, do not take pins and needles lightly. Stop the med immediately and take alpha lipoic acid and other liver support measures (that was the best) to see if that helps. You could try restarting it then under your doctor's supervision, but be extraordinarily careful, as it's nothing to mess around with if you're having that as a drug side effect.

greatguy
Regular Member


Date Joined Dec 2017
Total Posts : 104
   Posted 1/21/2018 10:35 AM (GMT -6)   
It turned to be yeast overgrowth. Not peripheral neuropathy, there wasn't pain.

greatguy
Regular Member


Date Joined Dec 2017
Total Posts : 104
   Posted 1/21/2018 1:02 PM (GMT -6)   
Bump. Tomorrow I will get tested for C. Diff and if it comes positive, then I don't know what to do... my neurological Lyme disease will never get better without long term antibiotics.

Traveler
Elite Member


Date Joined May 2007
Total Posts : 36310
   Posted 1/21/2018 2:03 PM (GMT -6)   
Don't allow yourself to get caught up in the "what if's" - that's a rabbit hole full of anxiety that won't help you any at all. I know this is tough - but the treatment for C diff can clear it up and then you can go back to treatment - although you will have to be very careful.

The other option is to turn to herbs - while they too can create intestinal issues, it's not near as likely as with pharmaceuticals.

And, as far as needing steroids - when it comes down to being able to breathe or not, steroids are the choice. It's short term needs over long term needs at that point. But, of course, it's best to not get to that point. I've told both of my kids and my hubby that I am to never get steroids - unless it's very obvious it's a situation where it will save my life....as in an allergic reaction. I can overcome having to use steroids, but I can't overcome not being able to breathe.
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New set of infections 8/2014 - still treating.
Come visit me: dogwoodtraditionals.freeforums.net/

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33931
   Posted 1/21/2018 2:04 PM (GMT -6)   
greatguy - do you have diarrhea?

That is the main symptom of c-difficile.


Don't despair - you may just need to change up your antibiotics.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

greatguy
Regular Member


Date Joined Dec 2017
Total Posts : 104
   Posted 1/21/2018 2:21 PM (GMT -6)   
I have diarrhea 4 times a day and abdominal cramps. I had these exact symptoms in march of 2017 when I wasn't on any abx. I stayed this summer in the hospital for abdominal cramps thinking it was acid reflux. I took the acid reflux med and it was placebo that they helped or they helped, but the body eventually got rid of the abdominal discomfort.

My vision got worse and my tinnitus got louder in sept. In October I found out about Lyme, which I've been suffering for years by now.

The abx may have caused the relapse of diarrhea and abdominal cramps, but they were not the root cause initially.

samadhi125
New Member


Date Joined Jan 2018
Total Posts : 2
   Posted 1/21/2018 3:10 PM (GMT -6)   
It sounds to me like a die off reaction. When the spirochetes and other microbes die off they release neurotoxins which irritate the nervous system and can cause neurological symptoms like pins and needles. Doxy is super strong! I had to back off of it because I had such a strong reaction. Have you tried increasing your detoxing regimen?

Also, despite what people say a herx is not a good thing...it's the body's way of telling you that it's overwhelmed with toxins...I had to learn the hard way not to "push through" a herx but instead listen to my body and back off.

Check out this article for some ideas... http://educatedlyme.com/2017/12/01/managing-the-jarisch-herxheimer-reaction-through-detoxing/

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33931
   Posted 1/21/2018 9:10 PM (GMT -6)   
Hi samadhi - welcome to our community!

I'm sorry you have lyme disease, but am glad you found your way here.
This is a great group of knowledgeable and supportive people.


We encourage our new members to read through the information contained in the thread: "New to Lyme?..Start Here!" It's packed full of useful information.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

LilaJ
Regular Member


Date Joined Nov 2017
Total Posts : 95
   Posted 1/23/2018 5:09 AM (GMT -6)   
I get these too.
I'm not yet on any abx as I'm scared about affect on autoimmune problems .
Is doxy safe even if you have autoimmunity? I've actually heard people use it for autoimmunity ,theroadback, and wondered about starting i

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33931
   Posted 1/23/2018 9:25 PM (GMT 0)   
LilaJ said...
I get these too.
I'm not yet on any abx as I'm scared about affect on autoimmune problems .
Is doxy safe even if you have autoimmunity? I've actually heard people use it for autoimmunity ,theroadback, and wondered about starting i



Sometimes lyme can cause an autoimmune reaction.

Doxy will help treat lyme disease...but it's not enough. you can start with it...but a second med should be added to it.

Make sure you take doxy with food...it's hard on the GI.

...and make sure you've got a good detox regimen going.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi
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