New member with Lyme (19M)

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hkrr7
Regular Member


Date Joined Jan 2018
Total Posts : 30
   Posted 1/20/2018 3:01 PM (GMT -6)   
What's up everyone... just getting started here! I'm 19 years old, I'm male and my name is Joe. I was diagnosed with Lyme August 2017. I don't really know much about which stage I am at or if it's my mind messing with me... According to my research, being that I haven't been to the dr since the diagnosis, I believe I'm @ stage 2...(But I am seeing an infectious disease dr this Tuesday). I say this due to my burning feet. Funny thing about that is my feet didn't start burning til I knew it was a symptom. Now, this goes for all symptoms I've felt since month 1 (August 2017)! I'm not even in pain much, just my thighs and knees, minor chest pain, lotta spams, but pain was never my issue because this pain is not the worst i've felt... My issue is energy! I was lazy before Lyme, and let me just mention that I do smoke marijuana, it helps to an extent, but now I wake up after 8-12hr sleep cycles asking myself if I actually slept that long b/c it feels as if my head has just hit the pillow. I believe I have a solid 19 year old mind which is the only thing getting me through this (could be much worse). Also, my sleep schedule was never alright, I'm naturally a nightwalker, even with Lyme... But I know I'm not the same old Joe I once was... It's ok though because I accept things quickly, as how else are you supposed to progress? Right? I'm also what you would call an I.E.D. (Intermittent explosive disorder)... This is a self diagnosis.... Simply, I get ticked off real fast for stupid reasons, to the point where I don't remember seeing anything during the burst... It's gotten much better, but the Lyme gets me super mad! I feel betrayed... Doctors tell me "you've been treated, you shouldn't feel anything" easy for them to say... Prob should of mentioned this earlier, I am not on any meds, but when I was, I was on docy... however it's spelt, for a month. The reason I haven't taken anything else is that I know my body needs to develop some sort of immunity before I depend on medical drugs, whose companies pay doctors to prescribe to me. It's a scam if you haven't noticed! (trust me I still believe in doctors, just no trust for a majority of them, well because I love money too) Anyway, I don't need their help, maybe just the infectious disease doctor, but I'm convinced this site is better off than some doctors (not all)... I believe if this planet was made with the diseases it carries, it was also made with the cure for the disease it carries! I can't trust all doctors, I know their line of work is to help/treat, but it's more "treat" than anything because apparently we don't have cures to jack crap! Which is bullcrap! Sorry for the language... Anyway the reason I wrote this was to see what others with Lyme, do to increase energy levels! Lastly, I was getting a haircut the other day and my barber's cousin had Lyme in the 80s. He cured himself, with natural remedies, over 20 yrs ago, which at that moment changed my perspective on what my future might look like, in a positive way. So mainly, I'd really love to hear about anyone's LYME SUCCESS stories, whether it be about you curing it, a decrease in symptoms, or just a false alarm, also please tell me if it was you or your doctors efforts that made the actual difference... Haven't met any doctors that are competent with my diagnosis LOL so anything helps, THANK YOU!

P.S.
This is my first post! I will beat this disease, hope you will too! Also, the only thing that seemed to help, at first, was me telling myself I am cured! My thoughts are my reality, so that was something that kinda helped, for anyone in the same boat...

hkrr7
Regular Member


Date Joined Jan 2018
Total Posts : 30
   Posted 1/20/2018 3:03 PM (GMT -6)   
I feel exhausted writing this! I want to SLEEP SLEEP SLEEP!! I refuse!!!!

Serfr
Regular Member


Date Joined Jan 2014
Total Posts : 264
   Posted 1/20/2018 4:04 PM (GMT -6)   
Hi hkrr7, Sorry you feel so bad.. Someone more knowledgeable than me should be along to help shortly. Have you read the New to Lyme post at the top of the page?
Tried abx and iv abx for 2 years, now trying herbs; Chronic Tonic (bottled) CSA formula, JK, Houttunia, Cats Claw
Symptoms August 2013-
Extreme fatigue, dizziness, head pressure, ringing ears, crawling sensations everywhere, throat pain, groin pain, very cold hands/feet, joint pain, sole pain, body/muscle spasms, teeth/gum pain, constipation, peripheral vision flashes, depression, panic attack

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33798
   Posted 1/20/2018 4:47 PM (GMT -6)   
Hi hkrr7 - welcome to our community.


Sorry you have lyme disease, but glad you found your way here.

If you are going to treat lyme disease with an MD, you should see a LLMD - who knows how to clinically diagnose and prescribe the antibiotics for lyme and the co-infections - at the right dosages and combinations.

As Serfr mentioned - we have a thread at the top of the page: "New to Lyme?..Start Here!" It's got a lot of useful information to read through.

You asked about success stories. Here's a link with many to read through:

/www.healingwell.com/community/default.aspx?f=30&m=3562412
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

hkrr7
Regular Member


Date Joined Jan 2018
Total Posts : 30
   Posted 1/21/2018 12:11 AM (GMT -6)   
Thank you!

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33798
   Posted 1/21/2018 12:38 AM (GMT -6)   
Hey Joe- Feel free to ask any questions you have - there's lots of knowledge and support here.

If you need help finding a LLMD - just start a new thread: "Looking for LLMD in/near_______" and fill in the blank.

You can also send me an email - I'll check my list and send you names if I have some for the area you're seeking.

You can also contact ILADS for names:



ilads.org/ilads_media/physician-referral/
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Traveler
Elite Member


Date Joined May 2007
Total Posts : 36310
   Posted 1/21/2018 3:09 PM (GMT -6)   
Hi Joe, I did want to address something you said in your post: "The reason I haven't taken anything else is that I know my body needs to develop some sort of immunity before I depend on medical drugs, whose companies pay doctors to prescribe to me."

The problem with this approach is that we don't build immunity to everything, and with Lyme in particular, the outer surface proteins of the bacteria change constantly - just so that the body can't build an immunity to it. One of the 'special perks' of having Lyme disease.

Now, you kept talking about pharmaceutical treatments, as far as I could tell, and especially once you told us about your Barber's cousin. Like him, I have treated with natural treatments, although I did try abx treatment at first. That failed and I moved to herbal only treatments. You can read my story (which takes place before my adrenals crashed, taking my thyroid down, and getting reinfected) here:
/www.healingwell.com/community/default.aspx?f=30&m=2977364
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New set of infections 8/2014 - still treating.
Come visit me: dogwoodtraditionals.freeforums.net/

hkrr7
Regular Member


Date Joined Jan 2018
Total Posts : 30
   Posted 1/22/2018 8:08 AM (GMT -6)   
Thank you so much for sharing! It really helps

hkrr7
Regular Member


Date Joined Jan 2018
Total Posts : 30
   Posted 1/25/2018 6:39 AM (GMT -6)   
Feeling better... Apparently, my old doctor (in jail now, insurance fraud is the reason) treated me incorrectly. He prescribed a 14-day cycle rather than a 21+ day cycle of doxy. I'm hoping this is the reason I was not symptom-free the first time, although I was doing just fine until I made this thread. I started feeling the real symptoms of the disease recently, hence why I created this thread. I am also happy to inform that my new infectious disease dr has a stop sign on his door, reading, "no pharmacy reps allowed" Never have I seen any doctor with that type of advert on their business. I'm grateful that I will beat this disease! It's already set in stone! It took me 7 months to feel this bad, so I give myself at least 7 months to CURE myself! YES, CURE! Told my parents by August 24th I will be fully recovered and back to my normal self, this is because it's my desire, and I truly believe anyone and everyone has the power, the power of self-healing, along with proper treatment! (Beating any disease, it begins and ends with the most valuable asset to mankind, THE MIND) My life has really changed drastically and I can finally call myself a MAN! I'm no longer afraid! I hope everyone will develop this mindset, as this is how a cure is implemented! BTW I am extremely fortunate to (soon) be able to talk to my barber's cousin who became symptom-free of this disease, over 20 years ago, without medical attention, but please know he is/was a pharmacist... So as soon as I gain this righteous intelligence, my next and definite plan of action will be to share if it worked for me, but most importantly share the secret sauce with you guys! I only say secret because a pharmacist is gonna know how to fix himself better than I will. Therefore, it's a secret to me! I just hope I can get my hands on the same meds he did because this was over 20 yrs ago and to be honest, ANYTHING'S POSSIBLE! I also do a lot of praying, this is what keeps me focused to search for relief! Lastly, I couldn't have started this "relief" journey without these forums to guide me and without God above! I'm extremely fortunate to be ALIVE, knowing there's much worse out there than Lyme!

PS
I will let you guys know when I am no longer infected! I will always be here for anyone else as well, no matter what you are feeling, I want to help you! So this is the beginning of righteousness !!

hkrr7
Regular Member


Date Joined Jan 2018
Total Posts : 30
   Posted 1/25/2018 6:45 AM (GMT -6)   
Also please search the INVISIBLE WEB !!! It's endless information and secrets to corrupt society! Not many people use it, but it's there to use.

I started here - https://www.nlm.nih.gov/

NOTE: I HAVE CAME ACROSS MATERIAL THAT I CANNOT ACCESS UNLESS I CONTACT "STAFF" A.K.A.
THE GOVERNMENT! I WILL LET YOU DECIDE WHAT THIS COULD MEAN, FOR YOURSELF!

Missouri
Regular Member


Date Joined Sep 2017
Total Posts : 394
   Posted 1/25/2018 9:39 AM (GMT -6)   
You were definitely undertreated by the doctor who gave a 14 day course of Doxy. Most of the mainstream docs just do not know any better. They are following what the IDSA and CDC are telling them to do.

I do not know if I agree with your other statements.

I do not agree that you can wish, pray, or hope these infections away.

My opinion is you need to live and eat very healthy and take steps to pressure the infections with anti-microbials.

I think you should read everything you can here, and get an appt with a Lyme Literate doctor.

my .02

hkrr7
Regular Member


Date Joined Jan 2018
Total Posts : 30
   Posted 1/25/2018 9:43 AM (GMT -6)   
well thats what differs the people who heal and the people that dont... Eating healthy is fantastic, but a toxic mind is the most debilitating. I cant force anyone to pray, and I don’t remember writing anything about a wish... Sorry you’re such a closed minded person, truly feel sorry...

Traveler
Elite Member


Date Joined May 2007
Total Posts : 36310
   Posted 1/25/2018 10:44 AM (GMT -6)   
Hi Hkrr7,
First of all, I'm very happy to see that you are excited about healing yourself. That would be very exciting! But - you are not allowed to use this type of language here, as per the rules you agreed to by creating an account:

hkrr7 said...
well thats what differs the people who heal and the people that dont... Eating healthy is fantastic, but a toxic mind is the most debilitating. I cant force anyone to pray, and I don’t remember writing anything about a wish... Sorry you’re such a closed minded person, truly feel sorry...



Rule #3. No posts that attack, insult, flame, defame, or abuse others. Respect other members' opinions regarding treatment decisions. Decisions about health and well-being are highly personal choices. We should respect all points of view. Flaming will not be tolerated.

As for what you are aiming for - I (and I'm sure the rest of the members here) do wish you luck, because most of us here have already found out that while a good mind set is pretty necessary, it's not about what drugs you can get a hold of, or whether or not you pray.

See, this also says to someone like me, who has been sick with these infections for most of my life (infected by the age of 7), that it's been my mind set that has been holding me back - or maybe I don't pray right, or that I haven't tried every avenue out there to find the "secret". Well, I'm here to tell you that after living with this for more than 45 years, it's taken one ______ of a mind set to just stay alive.

I do wish you all the best, but to assume that it's so simple and that we have all just "missed" it, is wrong, and speaking to others who are suffering just as much as you are, and many are suffering much more, is just wrong.

I'm hoping that by pointing this out, you will see that you may have misstepped and that you will no longer use that kind of talk (where you are attacking others), or be unkind to others while you are here. It never looks good on anyone, besides being against the rules.

Each of us have hurdles that others don't fully understand. These infections can create a lot of dysfunction and even damage to organs and systems, impeding the healing of these infections. It can be a very cyclical issue.

I've done a ton of research over the many years I've been here, and even before, and for anyone to assume that they know all there is to know about these infections, and will heal completely (or as you said, be "cured") is not something anyone should claim, especially when they are showing that they don't know it all, by assuming that everyone can heal completely. For some, this is impossible because these infections can and do dismantle the immune system, leaving some very unfortunate people with post sepsis conditions to live with.

So, maybe it would be best to just stay calm, work on healing yourself, and share what you may learn as others do here?
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New set of infections 8/2014 - still treating.
Come visit me: dogwoodtraditionals.freeforums.net/

hkrr7
Regular Member


Date Joined Jan 2018
Total Posts : 30
   Posted 1/25/2018 10:55 AM (GMT -6)   
Well first of all... “As for what you are aiming for - I (and I'm sure the rest of the members here) do wish you luck, because most of us here have already found out that while a good mind set is pretty necessary, it's not about what drugs you can get a hold of, or whether or not you pray.” Did I leave a blueprint on how to get better? Im being discriminated for praying, unreal!

hkrr7
Regular Member


Date Joined Jan 2018
Total Posts : 30
   Posted 1/25/2018 10:57 AM (GMT -6)   
I insulted no one

hkrr7
Regular Member


Date Joined Jan 2018
Total Posts : 30
   Posted 1/25/2018 11:06 AM (GMT -6)   
I CAN ASSURE ANYONE READING THIS: IM NOT HERE TO ATTACK YOU! IM HERE TO ATTACK MY DISEASE, so please understand where I am coming from, and don't be so sensitive (you guys are talking to me like I'm not the one suffering as well). I pray because it helps! I NEVER SAID ANYTHING about ANYONE ELSE BEING CURED (OBVIOUSLY YOU GUYS DON'T LIKE THE WORD CURE), BUT MYSELF!

hkrr7
Regular Member


Date Joined Jan 2018
Total Posts : 30
   Posted 1/25/2018 11:16 AM (GMT -6)   
IM SORRY FOR ANYONE WHO IS SUFFERING (NOTE: IM PRETENDING TO NOT SUFFER RIGHT NOW SO YOUR FEELINGS ARENT HURT), BUT ME, AND ANYONE ELSE WITH OPTIMISM, SHOULD NOT BE TAKEN AS A THREAT! NOW I KNOW IM GOING TO BE BANNED BUT REMEMBER WHEN I (KEY LETTER - i) CURE MYSELF I won't BE ABLE TO SHARE MY STORY BECAUSE I AM APPARENTLY DOING NO GOOD ON THESE FORUMS LOL. YOU GUYS DON'T BELIEVE IN CURES, THEREFORE YOU'RE NOT CURED! IM IN THE SAME BOAT, REMEMBER THIS! ONCE AGAIN, SORRY FOR BEING POSITIVE! BTW THIS WASNT A POLL, I DIDNT ASK YOU OR ANYONE ELSE IF THEY AGREED! BUT YOU GUYS ARE ONLY GOING TO MAKE MY DISEASE WORSE WITH ALL THIS NEGATIVITY, REMEBER: I AM NOT YOU, AND YOU ARE NOT ME!

PS
IF THERE'S AN ILLNESS THERE'S A WELLNESS! I WILL TAKE MY POSITIVITY ELSEWHERE, SOMEWHERE PEOPLE ACTUALLY WANT TO HELP THEMSELVES AND NOT RIDICULE OTHERS FOR HELPING THEMSELVES! YOURE WRONG FOR THIS, I ATTACKED NO ONE, BUT NOW IM LEFT NO CHOICE BUT TO ATTACK, SELF DEFENSE IS JUST ANOTHER MECHANISM PEOPLE WITH OPTIMISM CARRY

hkrr7
Regular Member


Date Joined Jan 2018
Total Posts : 30
   Posted 1/25/2018 11:18 AM (GMT -6)   
BAN ME.. I WILL SPREAD THE GOOD WORD AS I.M. IS MY SPECIALTY!

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 9729
   Posted 1/25/2018 11:41 AM (GMT -6)   
hkrr, this is a safe place for hurting people, including you.

It is a place where our members come for compassion and encouragement and information.

I hate to see a new person so riled up.

We just don't call anyone names on here. No matter how slight it may seem to you, an ill person can be easily offended. I am sure you are feeling this now also.

I think a good mindset is important in all aspects of life. I do not discredit the power of the mind at all. But, I do not expect everyone to agree with me. Heck, I think my outfits look great, but I don't think everyone does. The same with my hair style.....

It is just that here, we try and be very respectful of each other. We will extend that same respect back to you.

Okay, some deep breaths everyone.

This forum was made to be helpful, not to hurt you or let anyone else get hurt.

I hope you take this in the manner that I have intended it. To help you.

hkrr7
Regular Member


Date Joined Jan 2018
Total Posts : 30
   Posted 1/25/2018 11:48 AM (GMT -6)   
As soon as I make a "feel good" post, I get ridiculed for it...

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 9729
   Posted 1/25/2018 11:52 AM (GMT -6)   
hkrr7 said...
As soon as I make a "feel good" post, I get ridiculed for it...


I don't think anyone was ridiculing you at all.

It is sometimes hard to read emotions with type.

And, it is hard not to be sensitive when you have lyme.

There is nothing better to the members' ears than to hear someone is getting better. It is what everyone wants to write.

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 9729
   Posted 1/25/2018 11:53 AM (GMT -6)   
So have you found a new doctor?

hkrr7
Regular Member


Date Joined Jan 2018
Total Posts : 30
   Posted 1/25/2018 11:57 AM (GMT -6)   
I'm afraid to share anything else... I'm attacking my disease, and I share it... NOW people are attacking me because I mentioned Prayer and mental toughness (things that didn't work for others)! I don't meditate, I PRAY! When the corrupt medical industry fails all these good people, what are my options? I have no choice but to pray and heal with the element of the mind.

PS
ABX NEVER WORKED FOR ME, BUT FOR THE PEOPLE THAT IT DID WORK FOR, I DID NOT ATTACK THEM BECAUSE IT WORKED FOR THEM AND NOT ME! RATHER I WENT A NEW WAY, I DONT COMPLAIN! I AM A GOOD PERSON LOOKING FOR WHAT WILL CURE AKA MAKE ME SYMPTOM-FREE AGAIN! WHICH IS JUST AS GOOD AS A CURE! IM NOT ALLOWED TO SAY CURE? SORRY I MEANT SYMPTOM-FREE, WHICH I BELIEVE IS JUST AS GOOD AS A CURE!

hkrr7
Regular Member


Date Joined Jan 2018
Total Posts : 30
   Posted 1/25/2018 12:00 PM (GMT -6)   
I AM STILL FRESH ON ABX BTW (AFTER AN UNDERTREATMENT)... I CAN ONLY PRAY THAT THEY WORK... I APOLOGIZE TO ANYONE THAT I OFFENDED AS I REALLY JUST WANT TO HELP YOU AND MYSELF! I AM CALM AND I REALLY HOPE SOMEONE CAN DECIPHER MY PERSPECTIVE AND THOUGHT PROCESS ACCORDING TO MY POSTS... I MEAN NO HARM

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 9729
   Posted 1/25/2018 12:05 PM (GMT -6)   
No one said you could not say cure.

I just got up...... still drowsy. It snowed last night so my home is in a calm, cozy place with snow outside all the windows. Not going to shovel. It is too cold.

I have almost been healed, cured or symptom free for 2 years. I did it my way. No one is saying you can't tell us how you healed or are healing.

In your first post you said: This is a self diagnosis.... Simply, I get ticked off real fast for stupid reasons, to the point where I don't remember seeing anything during the burst... It's gotten much better, but the Lyme gets me super mad!

Is this dialogue making you that angry? Do you feel that upset with this?

When I get that upset, I back off and cool down. Nothing is worth your health and anger can do such harm to you. Especially if you are trying to heal with your mind. Use your mental toughness for good. Not for debates.

You know what is working for you and you just hang on to it. Again I do not see where anyone was attacking you at all.
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