Girlfriend very sick

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LMFD296
Regular Member


Date Joined Dec 2009
Total Posts : 153
   Posted 1/21/2018 4:30 PM (GMT -6)   
A little over a month ago my gf of two years who is 29 and in great shape (soon to be fiancé) was complaining of a stiff neck. She brushed it off as sleeping wrong. Within a few days it grew worse, she then complained of a severe headache. A day later she developed Bell's palsy and went to the ER. They ordered a cr scan, while attempting she had a seizure. They planned on admitting her and kept her overnight however after a day waiting in the er they decided to send her home and have her follow up with a neurologist. Her dx was Bell's palsy and seizure disorder. None of which she had before. Her apt was 3 days later, within that time she complained of severe headaches and stiff neck along with right sided weakness in both her arm and leg. When she finally made it to the apt the dr immediately admitted her to the er. They did a spinal tap which showed high white blood cells. They said she had meningitis. They also noticed she had the varicella virus via blood work and a rash in her right ear. After a 10 day stay in the hospital on anti viral meds she was released even though she showed no improvement with her weakness or Bell's palsy. In addition she had a few seizures during her stay and her short term memory was gone. She was sent to rehab which ended very quickly after another siezure and she was transferred the New York Presbyterian. She stayed in nyp for almost 3 weeks having various tests done including another spinal tap. All they would confirm was she had the varicella virus and that's why she is the way she is. She completed the antiviral meds (3 weeks of acylivsr) and was again sent to rehab. Her right side began to recover although her Bell's palsy remained the same. After a week in rehab she had another siuzure and her left side went limp, both arm and leg. So her right side is ok now but her left side is paralyzed. Her MRI showed clear, ct showed clear, eeg showed nothing abnormal. She finished out her rehab and was sent home with phsyc meds. They kept telling her it is all in her head. So after that she is fisnlly home but not well. At all. She can battery walk, speech is slurred from the Bell's palsy and her ears are ringing all the time.her memory has recovered. I had lyme and I believe she may have it. I'm sending her to see an llmd. Just wondering if you all think this is lyme. Sorry for the insanely long story. Thank you for reading. I should add they did a pcr for Lyme and a cra test and saw nothing.

magoo2
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Date Joined Mar 2015
Total Posts : 1301
   Posted 1/21/2018 4:43 PM (GMT -6)   
If you cant figure it out I would check dental with a biological dds.
Can be root canal-crown-implant or old wisdom socket that didn't heal.

littlevictories
New Member


Date Joined Nov 2017
Total Posts : 19
   Posted 1/21/2018 4:48 PM (GMT -6)   
I'm no expert, but it certainly sounds like LD. Going to an LLMD is a good idea.

LMFD296
Regular Member


Date Joined Dec 2009
Total Posts : 153
   Posted 1/21/2018 4:51 PM (GMT -6)   
I forgot to mention she has pain in her arms and her hands tremble, she fatigues very fast.
26 Male DX at age 12 w/ UC
Remicade 7.5kg per mg
zoloft 100mg for anxiety

NEVER FORGET 9/11/01 343 R.I.P.

LMFD296
Regular Member


Date Joined Dec 2009
Total Posts : 153
   Posted 1/21/2018 4:52 PM (GMT -6)   
Magoo2 she has never had any of that stuff done. I did think of that though. Thank you!
26 Male DX at age 12 w/ UC
Remicade 7.5kg per mg
zoloft 100mg for anxiety

NEVER FORGET 9/11/01 343 R.I.P.

greatguy
Regular Member


Date Joined Dec 2017
Total Posts : 104
   Posted 1/21/2018 5:00 PM (GMT -6)   
magoo2 said...
If you cant figure it out I would check dental with a biological dds.
Can be root canal-crown-implant or old wisdom socket that didn't heal.


You keep suggesting this thing to nearly everyone, but this doesn't explain half of the symptoms his girlfriend went through.

An llmd is undeniably needed at this point. I would alone based on Bell's palsy symptom diagnose her with lyme, Bell's palsy is so rare, that if someone gets it, it is a 100% confirmation for Lyme. Bell's Palsy is neurological paralysis, and since she didn't have a concussion or serious pre-existing events leading to that, there's nothing left besides lyme.

magoo2
Veteran Member


Date Joined Mar 2015
Total Posts : 1301
   Posted 1/21/2018 5:11 PM (GMT -6)   
Its actually fits and is something that is easy to test. Not sure why a person wouldnt check it. Also remember a ton of LLMDs check and treat dental for every lyme patient. Someone here had notes on the lyme summit-you can check them.

lyme fits every symptom a person may have-dental come close to that also. You may go to mercola.com and read the artciles on root canals and polymicrobitial infections.

LMFD296
Regular Member


Date Joined Dec 2009
Total Posts : 153
   Posted 1/21/2018 5:14 PM (GMT -6)   
That's exactly what I was thinking greatguy. In the absence of anything else it really has to be Lyme or and or co. As crazy as this may sound, I really hope it is so we can begin getting her treated.
26 Male DX at age 12 w/ UC
Remicade 7.5kg per mg
zoloft 100mg for anxiety

NEVER FORGET 9/11/01 343 R.I.P.

Traveler
Elite Member


Date Joined May 2007
Total Posts : 36310
   Posted 1/21/2018 5:51 PM (GMT -6)   
Good grief, LMFD! I'm so sorry your soon to be fiance has gone through all of that!

Don't forget that even the CDC has said that it may take numerous tests before a person will finally get a positive test - although some of us just can't mount the antibody response in order to produce those valuable antibodies for a positive test. Even the PCR's and such have great issues in detecting these infections, because they can easily miss a person that doesn't have a very high load of bacteria, and these diseases can cause great illness with even just a small amount of bacteria. So, don't wait for a positive test result.

I would say consider Lyme and Bartonella from the symptoms you shared with us. Getting her in to see your LLMD is the best option at this point, so good for you for getting that set up!

Do let us know what the LLMD has to say, get her detoxing, and all the other support things (diet, and such) that you can as well. And, keep asking questions!!!
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New set of infections 8/2014 - still treating.
Come visit me: dogwoodtraditionals.freeforums.net/

LMFD296
Regular Member


Date Joined Dec 2009
Total Posts : 153
   Posted 1/21/2018 7:19 PM (GMT -6)   
Thanks traveler. It's hard to watch her like this but I know she can beat this. I remember you giving me advice when I had lyme a few years back and I'm happy to say I consider myself "cured". I'm having her see the same llmd I saw.
26 Male DX at age 12 w/ UC
Remicade 7.5kg per mg
zoloft 100mg for anxiety

NEVER FORGET 9/11/01 343 R.I.P.

dacarte3
Veteran Member


Date Joined Feb 2016
Total Posts : 1903
   Posted 1/21/2018 7:30 PM (GMT -6)   
The Bulls eye rash is a 100% indicator of lyme.

However, while Bell Palsy isn't a 100% indicator, Bell Palsy plus other lyme related symptoms is as close to 100% as you can get outside of the Bulls eye rash.
Lyme (Igenex) - Positive IFA and WB bands 23, 31, 41
Ehrlichia (Igenex)
Mycoplasma (Labcorp) - Score: 595

ABX Treatment: 03/2016-04/2016; 7/2017-9/2017
Buhner Protocol for Lyme and Mycoplasma: May 2016 - Dec. 2016; 8/2017 - Present

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33852
   Posted 1/21/2018 8:56 PM (GMT -6)   
I agree with the others' - it sounds like Lyme Disease...LLMD is a good choice.

Let us know how it goes.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

LMFD296
Regular Member


Date Joined Dec 2009
Total Posts : 153
   Posted 1/22/2018 4:44 PM (GMT -6)   
Thanks for the replys. I thought the exact same thing. It is just too much of a coincidence to have all these symptoms plus the Bell's palsy and weakness. It has to be Lyme. Llmd appt is tmrw. I'll let you all know how it goes. Thank you for your time.
26 Male DX at age 12 w/ UC
Remicade 7.5kg per mg
zoloft 100mg for anxiety

NEVER FORGET 9/11/01 343 R.I.P.

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 9729
   Posted 1/22/2018 5:50 PM (GMT -6)   
she will be in my prayers.

k07
Veteran Member


Date Joined Sep 2015
Total Posts : 2544
   Posted 1/22/2018 6:14 PM (GMT -6)   
Did she have any recent vaccines? Just a thought. I’m sure they tested ebv...I guess since everything checked out your left with lyme, mold, metals. Hopefully llmd looks at everything. Best of luck and please let us know how she makes out.

LMFD296
Regular Member


Date Joined Dec 2009
Total Posts : 153
   Posted 1/22/2018 7:34 PM (GMT -6)   
No recent vaccines. Her blood work did show positive for ebv....
26 Male DX at age 12 w/ UC
Remicade 7.5kg per mg
zoloft 100mg for anxiety

NEVER FORGET 9/11/01 343 R.I.P.

Traveler
Elite Member


Date Joined May 2007
Total Posts : 36310
   Posted 1/23/2018 1:16 PM (GMT -6)   
LMFD296 said...
Thanks traveler. It's hard to watch her like this but I know she can beat this. I remember you giving me advice when I had lyme a few years back and I'm happy to say I consider myself "cured". I'm having her see the same llmd I saw.


Well, that's just awesome that you consider yourself 'cured'! If you haven't yet, would you mind writing up a post explaining this? We do love to post success stories!!!


And that's a very good thing to get her in to see the same LLMD!!
Best of luck!!
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New set of infections 8/2014 - still treating.
Come visit me: dogwoodtraditionals.freeforums.net/

JustPiccd
Regular Member


Date Joined Dec 2017
Total Posts : 84
   Posted 1/23/2018 6:55 PM (GMT -6)   
It definitely sounds like Lyme. But also, I would suggest you have her take Lomatium tincture for any residual virus, and take it for a prolonged period of time (adding fish oil as an additional antiviral wouldn't hurt, but Lomatium is stronger for herpesviruses which Varicella is (and they often reactivate in compromised immunity). A compromised immune system could have caused some kind of odd viral reactivation which would contribute to the symptoms. You also might consider trying to extend the antiviral meds. But also, the compromised immune system may point to additional infections, definitely I'd say shd test for bartonella via a competent lab like Galaxy Diagnostics.
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