Hi all - my 21 year old DD is coming up to her 2 year anniversary of her first symptoms, 1 year anniversary of diagnosis (CDC+ LD, Bartonella & Babesia), and nearly 7 month anniversary of treatment. She's been on bicillin (penicillin) injections every 2 weeks, zithro, plaquenil (anti-inflammatory), Nystatin (anti-fungal), Trental (cell support), Bromelain (pineapple enzyme - don't know what the heck it was for..lol) since last June. All prescribed by her LLMD in Sorrento Valley, San Diego. Her neuro symptoms are gone (tremor, blurred vision, vertigo), as well as her joint pain, and cardiac symptoms (chronic tachycardia). The primary remaining symptom is fatigue, and she still sleeps 12-14 hours a day. Her exercise tolerance is up slightly. She recently had an appointment & was taken off everything except bicillin (injections now every 3 weeks), zithro, & plaquenil. The NP added Cordyceps (immune-boost) and DD started acupuncture and a mindfulness class. It's been a long journey (especially given her age,19-21), and her college experience has been signicantly impacted. But, she is meeting lots of people through the university disabled students association, and now serves as an advocate for others when possible. I would never wish LD on anyone, let alone my child, but there have been some growth experiences for all of us, as well as moments of deep gratitude (e.g. that she was able to stay in school part-time, and has some very understanding professors and boss!) As a parent, I feel hopeful that she might fully recover, or, maintain a somewhat "normal" functional life. I know those little bacteria buggers can sometimes hide & re-surface, and we will forever be vigilent. Thanks to all - it was so very helpful to have this forum to turn to - especially when we did not yet have a diagnosis/treatment plan. This is not a goodbye, but rather a check-in and an intended message of hope for all of you fighters and caregivers out there!
Post Edited (UCSDMom) : 1/25/2018 9:51:55 AM (GMT-7)